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Infantile Scoliosis - J's diary: February 2012
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Wednesday, 29 February 2012. J asked for a purple cast yesterday! Yes - you read that right - he. He can say 'purple' and knows the corresponding colour! He also pointed at the earrings of one of the keyworkers at the nursery today and said "purple" (which they were). Tuesday, 28 February 2012. Cole and the Crooked Flower. Http:/ shop.earthycrunchymama.com/products/cole-the-crooked-flower. From the back cover:. The Infa...
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Infantile Scoliosis - J's diary: October 2014
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Wednesday, 1 October 2014. How to contact C.A.S.T. I've been asked how to contact the C.A.S.T group. They used to have a Yahoo group, but have now switched mainly to Facebook. If you go to the infantile scoliosis website http:/ www.infantilescoliosis.org/. There is a facebook link on their homepage to "join" them. Best wishes to you and your family. Subscribe to: Posts (Atom). How to contact C.A.S.T.
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Infantile Scoliosis - J's diary: June 2012
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Tuesday, 12 June 2012. Can you believe it - it's 3 months already and J will get his second cast in Oxford tomorrow! We've seen all manner of diggers, dump trucks and cranes (they are replacing all street lights locally and so there are lots and lots of vehicles literally outside our door! I need to get to bed now. It's such an early start tomorrow (and a long day). What I really want is "yes, I understand [your pain]" ...
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Infantile Scoliosis - J's diary: Deep breath - hairwashing (help!)
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Thursday, 29 March 2012. Deep breath - hairwashing (help! Sometime very soon I need to tackle hairwashing. I have deliberately avoided this until now, but the weather has been very hot (well, for March it has) and J is sweating in his heavy-weight cast. I've investigated the trays that the occupational therapist mentioned:. If he co-operates then any of the above might work. But if not ("NOOOOOOOOOO"! New bathing techni...
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Infantile Scoliosis - J's diary: "we're not out of the woods yet"
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Tuesday, 20 May 2014. We're not out of the woods yet". Those were the doctor's words. "We're not out of the woods yet". This is a critical period for lung development and the brace is controlling J's spine while he grows so the doctor said he must stay in brace. It is normally recommended that they stay in for 18 to 24 months. We've only had just over a year. In the car I said a few sentences so J could hear using what ...
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Infantile Scoliosis - J's diary: January 2012
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Thursday, 26 January 2012. I didn't blog my thoughts on Tuesday because I was too angry. Even now I'm not sure how coherent this will be. One other point about the x-ray is that I was told that we might not get the result in 2 weeks time. Even more waiting. My plan was to see what state his back was in and if necessary move heaven and earth to see re treatment in the US. If the x-rays show the curves have remained stati...
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Infantile Scoliosis - J's diary: hello again!
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Monday, 19 May 2014. Such a lot has happened since the last post- new camera (hard to download photos! New job, new baby (J has a baby brother! But I was determined to write before tomorrow's appointment. We are hoping tomorrow will be the end of treatment. Just x-rays and monitoring from now on. we hope! What gives me hope about tomorrow is that there seemed to be improvement in the curves at the last appt. We didn...
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Infantile Scoliosis - J's diary: January 2013
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Wednesday, 16 January 2013. Despite my last post where I saw going to brace as a wonderful thing, that's not how I feel now. It wasn't until after our consultation that I started to doubt the sense of going to brace. He's only 2 years 8 months and is growing A LOT. His shoe size has gone up 2 sizes within the last few weeks! So I contacted the consultant again and have just come off the phone. Of course I don't want to ...
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Infantile Scoliosis - J's diary: Don't sweat the small stuff
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Monday, 2 April 2012. Don't sweat the small stuff. Washing: J is very willing to sit with his feet in a tub of water - so at least part of him gets a good wash regularly. He doesn't like me wiping his arms/legs/neck etc, but gets over it fairly quickly. Labels: http:/ infantilescoliosis-diary.blogspot.co.uk/; infantile scoliosis Js diary;. Subscribe to: Post Comments (Atom). Dont sweat the small stuff.
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Infantile Scoliosis - J's diary: April 2012
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Infantile Scoliosis - J's diary. Diary of my son's treatment for infantile scoliosis. Thursday, 26 April 2012. Diagnostic booklet - early detection of Infantile Scoliosis. This is a link to an exellent booklet. Produced by the Infantile Scoliosis Outreach Programme in the US with tips for paediatricians and parents for early detection of Infantile Scoliosis. Thursday, 12 April 2012. The upper curve now measures 19.3 degrees in cast standing up. NB There was a change between October and February that I do...
