sleepdeprivedmum.com
Sleep Deprived Mum: Forever Four
http://www.sleepdeprivedmum.com/2014/10/forever-four.html
Sunday, October 12, 2014. I don't know if you're five today. Or if you're forever four. I don't know if your hair gets long. Or if you've grown a little more. I don't know if you're starting school. I don't know where you'll play. I don't know if there'll be birthday cake. If you're five not four today. Will angels sing Happy Birthday? Will there be streamers everywhere? Will you watch us send you your balloons. As they travel through the air? Are you partying with Ethan? Will you give Alana a kiss?
sleepdeprivedmum.com
Sleep Deprived Mum: Miracle. Angel. Star.
http://www.sleepdeprivedmum.com/2014/07/miracle-angel-star.html
Tuesday, July 1, 2014. Miracle. Angel. Star. There is a whole post to write before this one. But that one will take time as it will encompass the last 6 weeks and how life goes from normal, to upside down and back to new-normal. This one is about one day that goes from normal to amazing. So it comes first. Bored of miracle and hero status. Nico chose to graduate to Angel earlier than anyone would have wished. But it seems Angel was not high enough a title for our Mr Monster. After /during desert, Tim who...
sleepdeprivedmum.com
Sleep Deprived Mum: November 2014
http://www.sleepdeprivedmum.com/2014_11_01_archive.html
Sunday, November 16, 2014. Standing in the line at a Christmas circus yesterday, a girl of about 10 years old rolls up behind us in a power chair. I make small talk with her and her dad but make no mention of the rush of Nico-based questions that have just come at me. His daughter had good speech and much greater motor function than Nico's. Did this girl have CP or some other reason for the chair? Would he have had a power chair? How did her parents juggle everything? Subscribe to: Posts (Atom). Nicos en...
sleepdeprivedmum.com
Sleep Deprived Mum: August 2014
http://www.sleepdeprivedmum.com/2014_08_01_archive.html
Tuesday, August 19, 2014. Almost 100 days but its no exaggeration to say feels like yesterday. There is no waking hour that passes where I don't have a thought of him skip across my mind. Sometimes it lingers and dances for a while. Sometimes it just keeps on moving. I hear his inhaled laugh so clearly that I even feel the whole body-shake that went along with it. I tiptoe through the house in the middle of the night in an effort not to wake him with sudden noises in the silence. then I remember. I never...
sleepdeprivedmum.com
Sleep Deprived Mum: Circus Tears
http://www.sleepdeprivedmum.com/2014/11/circus-tears.html
Sunday, November 16, 2014. Standing in the line at a Christmas circus yesterday, a girl of about 10 years old rolls up behind us in a power chair. I make small talk with her and her dad but make no mention of the rush of Nico-based questions that have just come at me. His daughter had good speech and much greater motor function than Nico's. Did this girl have CP or some other reason for the chair? Would he have had a power chair? How did her parents juggle everything? Subscribe to: Post Comments (Atom).
sleepdeprivedmum.com
Sleep Deprived Mum: New normal
http://www.sleepdeprivedmum.com/2014/07/new-normal.html
Saturday, July 12, 2014. The week after that day. Was a bit of a blur. but everyone was AMAZING! Friends were calling to lock in times to come and see us, flowers were arriving every few hours and the sideboard was covered in cards. It was like Grand Central Station with all the comings and goings and our kitchen was overflowing with groceries, meals and baking. It was heartwarming and so much more appreciated than I could ever express. I took a few minutes to compose myself and told my boss that today m...
sleepdeprivedmum.com
Sleep Deprived Mum: May 2014
http://www.sleepdeprivedmum.com/2014_05_01_archive.html
Saturday, May 31, 2014. The Day the Fight Stopped. Trigger warning: child passing. Direct recount. Until 2 weeks ago. Writing this is my therapy. My road to healing. Stop reading now if you don't want to know how the world as you know it can change in a split second. That scenes you only see in movies . They happen. And I froze. That instant parental paranoia panic hit and I scream back at him "DONT! You don't yell like that you freak me out! It feels like the ambulance is there before we are. I know...
sleepdeprivedmum.com
Sleep Deprived Mum: October 2014
http://www.sleepdeprivedmum.com/2014_10_01_archive.html
Sunday, October 12, 2014. I don't know if you're five today. Or if you're forever four. I don't know if your hair gets long. Or if you've grown a little more. I don't know if you're starting school. I don't know where you'll play. I don't know if there'll be birthday cake. If you're five not four today. Will angels sing Happy Birthday? Will there be streamers everywhere? Will you watch us send you your balloons. As they travel through the air? Are you partying with Ethan? Will you give Alana a kiss?
sleepdeprivedmum.com
Sleep Deprived Mum: April 2012
http://www.sleepdeprivedmum.com/2012_04_01_archive.html
Saturday, April 28, 2012. DNR : Do Not Resuscitate. I think the title of this post is fair warning, it may not be an easy post to read. or write. As with most of what I write, unless it is a straight recount of an event, I have no idea where it is heading but I feel a need to get it out. After 3 nights on the ward and 2 nights in a recliner in ICU, I went home for a sleep in my own bed and it hit. HARD. Sp02 at 66% when I took hom to hospital on Sunday. How did I not know/ notice? He should have been blu...
sleepdeprivedmum.com
Sleep Deprived Mum: December 2014
http://www.sleepdeprivedmum.com/2014_12_01_archive.html
Thursday, December 11, 2014. I'm on a train. Like right now as I type this, I'm sitting on a train. We just went past The Hospital and I just wanted to be there. With Nico. I'd swap this "easier" life in a heartbeat for a lifetime of hospital stays. (Totally unfair to Nico. But allowed to be selfish here). For 50,000 sleepless nights. For a house filled with hoists, tracks and equipment. For 1,000,000 feeding tubes and nappy changes. Subscribe to: Posts (Atom). What do you want to read about? Picture Win...
