MORQUIO.COM

Carol Ann Foundation Main Page

Morquio Symposium 2015 Pictures. The Carol Ann Foundation is a 501c3 non-profit organization dedicated to seek out people who have Morquio in order to provide a mutual aid network; act as an advocate between patients, physicians and scientists; compile medical information into a database; and pursue funding for education, families and research. Our Medical Advisor and Clinical researcher, Dr. Shunji Tomatsu. Is currently working on a treatment to help with the bone problem.

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The Carol Ann Foundation

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The Carol Ann Foundation

Mary Smith

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Tu●●on , AZ, 85743

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mb●●●●●●@yahoo.com

View this contact

The Carol Ann Foundation

Mary Smith

8164 w cir●●●●●●●●●●s morteros

Tu●●on , AZ, 85743

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mb●●●●●●@yahoo.com

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Carol Ann Foundation Main Page | morquio.com Reviews

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Morquio Symposium 2015 Pictures. The Carol Ann Foundation is a 501c3 non-profit organization dedicated to seek out people who have Morquio in order to provide a mutual aid network; act as an advocate between patients, physicians and scientists; compile medical information into a database; and pursue funding for education, families and research. Our Medical Advisor and Clinical researcher, Dr. Shunji Tomatsu. Is currently working on a treatment to help with the bone problem.

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1 facebook

2 stories

3 medical

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6 yahoo groups

7 maria's blog

8 mission statement

9 what is morquio

10 about vimizim

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Carol Ann Foundation Main Page | morquio.com Reviews

https://morquio.com

Morquio Symposium 2015 Pictures. The Carol Ann Foundation is a 501c3 non-profit organization dedicated to seek out people who have Morquio in order to provide a mutual aid network; act as an advocate between patients, physicians and scientists; compile medical information into a database; and pursue funding for education, families and research. Our Medical Advisor and Clinical researcher, Dr. Shunji Tomatsu. Is currently working on a treatment to help with the bone problem.

INTERNAL PAGES

morquio.com

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paypal

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Click the button below to donate through PAYPAL.

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Medical Advisory Board

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The Carol Ann Foundation Medical Advisory Board. Group picture at Nemours/AIDHC. Starting from the left is Angela Duker, Dr. Michael Bober, Dr. Tomatsu, Dr. William Mackenzie and Colleen Ditro. Dr Shunji Tomatsu M.D. Ph.D. Principal Research Scientist, Orthopedics. Director of the Skeletal Dysplasia Lab. 1600 Rockland Rd.,Wilmington, DE. 19899-0269. Cell: 314-691-0430, Office Tel: 314-691-0430. DrWilliam Mackenzie Alfred I. duPont Hospital for Children. PO Box 269 Wilmington, DE 19899. Tel 55 51 33598011.

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stories page

http://www.morquio.com/stories2.php

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Carol Ann Foundation Main Page

http://www.morquio.com/index.php

Morquio Symposium 2015 Pictures. The Carol Ann Foundation is a 501c3 non-profit organization dedicated to seek out people who have Morquio in order to provide a mutual aid network; act as an advocate between patients, physicians and scientists; compile medical information into a database; and pursue funding for education, families and research. Our Medical Advisor and Clinical researcher, Dr. Shunji Tomatsu. Is currently working on a treatment to help with the bone problem.

5

About Page

http://www.morquio.com/about.php

We have been working with Dr. Tomatsu now for over 18 years now. Dr. Tomatsu, Ph. D Professor. Is our chief Medical Advisor at The Carol Ann Foundation as well as conducting research for the 2nd Generation of drug for the treatment of Morquio A on the bone. She keeps busy that’s for sure. Being the parent of a child with morquio is not a death sentence. Life is different with more challenges no doubt. But all the people I’ve meet over the years have helped me grow to accept this life. I...

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iamsander.org

I am Sander – Morquio links

http://www.iamsander.org/morquio-links

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Zumba con Soy Sander. Tienes libros infantiles para donar? Se busca consumidores de zumo de naranja! Ayuda comprando entradas para Expo BSB. Book hotel and be solidary. Medicine for Morquio syndrome.

iamsander.org

I am Sander – Cart

http://www.iamsander.org/cart

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Your basket is currently empty. Zumba con Soy Sander. Tienes libros infantiles para donar? Se busca consumidores de zumo de naranja! Ayuda comprando entradas para Expo BSB. Book hotel and be solidary.

iamsander.org

I am Sander – soy sander

http://www.iamsander.org/tag/soy-sander

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Zumba con Soy Sander. Zumba con Soy Sander. July 17th, 2015. For English see under). Estamos organizando un súper evento de zumba en Western Water Park el día 26/7-2015. Zumba con Soy Sander.

iamsander.org

I am Sander – western water park

http://www.iamsander.org/tag/western-water-park

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Zumba con Soy Sander. Zumba con Soy Sander. July 17th, 2015. For English see under). Estamos organizando un súper evento de zumba en Western Water Park el día 26/7-2015. Zumba con Soy Sander.

iamsander.org

I am Sander – Limited edition “Blue” UNIQUE Braclet (adult)

http://www.iamsander.org/product/braclet-blue-adult

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Limited edition “Blue” UNIQUE Braclet (adult). Thank you for supporting our battle against Morquio illness. In each bracelet there is one, unique bread in other color. This bread symbolizes the m...

biomarin.com

Vimizim® (elosulfase alfa) for Morquio A Syndrome (MPS IVA) : BioMarin

http://www.biomarin.com/products/vimizim.php

A Message from the Chairman and CEO. Dr Henry J. Fuchs. Joshua A. Grass. Eduardo E. Von Pervieux. Corporate and Social Responsibility. Pegvaliase (BMN 165) for PKU. Vosoritide (BMN 111) for Achondroplasia. Cerliponase Alfa (BMN 190) for CLN2 disease. BMN 270 for Hemophilia A. BMN 250 for MPS IIIB (Sanfilippo Syndrome B). MPS IIIB (Sanfilippo B Syndrome). Morquio A (MPS IVA). Medical Information Request Form. Funding & Support. Guidelines for Requesting Grants and Charitable Contributions. Weakness in the...

iamsander.org

I am Sander – Donate

http://www.iamsander.org/donate

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). If you want to help us and support our work by donating money, please use PayPal or bank transfer. Bank transfer – Banco Sabadell. Account Number with IBAN: ES05 0081 1421 0900 0109 3917.

iamsander.org

I am Sander – Taller de Pulseras

http://www.iamsander.org/taller-de-pulseras

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Aqui puedes apuntarte para el taller de pulseras:. Click “View and sign-up” para apuntarte). Hay 10 plazas cada media hora, entre 11.00 – 18.00, para apuntarse. Current Volunteer Sign-up Sheets.

iamsander.org

I am Sander – Products

http://www.iamsander.org/shop

I am Sander / Soy Sander. Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Sander s story – about our work. Dr Tomatsu s publications. The 5 highest-priced drugs. Sander in newspaper (German). Vimizim en España (ES). Welcome to our web shop! Amigos de Sander contra el síndrome de Morquio (Soy Sander I am Sander) is a non-profit association funded by Sanders friends and family. Thank you for caring. Sander y yo qu...

ntsad.org

NTSAD - Allied Diseases

https://www.ntsad.org/index.php/the-diseases/chart-of-allied-diseases

Leading the Fight to treat and cure. Tay-Sachs, Canavan, Sandhoff, GM1 and related diseases. Chart of Allied Diseases. Last Updated: Friday, 24 April 2015 10:25. If this table width does not fit on your device, you may download the .pdf version of Chart of Allied Diseases. A LYSOSOMAL STORAGE DISORDERS. 1) Disorders of lipid and sphingolipid degradation. B-Hexosaminidases A and B. GM2 Gangliodisosis, AB variant. Gaucher Disease, Type 1. Gaucher Disease, Type II. Gaucher Disease, Type III. Glycogen storag...

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Carol Ann Foundation Main Page

Morquio Symposium 2015 Pictures. The Carol Ann Foundation is a 501c3 non-profit organization dedicated to seek out people who have Morquio in order to provide a mutual aid network; act as an advocate between patients, physicians and scientists; compile medical information into a database; and pursue funding for education, families and research. Our Medical Advisor and Clinical researcher, Dr. Shunji Tomatsu. Is currently working on a treatment to help with the bone problem.

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Morquio A Causes, Incidence & Risk Factors | MorquioAnswers.com

The information contained in this section of the site is intended for Healthcare Professionals only. Are you a Healthcare Professional? GET THE LATEST from MorCAP. The largest Morquio A. For the patient site, visit morquiosity.com. How do you see. Long perceived as an orthopedic condition, Morquio A. Is a progressive disease that impacts major organ systems. What are the key considerations in the surgical management of Morquio A patients? Progressive. Life threatening. Elizabeth Braunlin, MD, PhD. Magnif...

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