captcurt.blogspot.com
Curt's Corner: Button Button, Who Has A Button?
http://captcurt.blogspot.com/2012/10/button-button-who-has-button.html
What is Leigh's Syndrone? Thursday, October 4, 2012. Button Button, Who Has A Button? Remember this story, right. August 21st is when I received this interesting "thing" added to my belly. The tummy tube was put in, and while it has made it easier to take my meds, it has been a nuisance. A 9-inch tube, with the last few inches being wider to intake the meds. It sometimes gets caught and sometimes accidently pulled - and either way it can hurt. So today that changes! Until the update . . . Do you see dots?
captcurt.blogspot.com
Curt's Corner: October 2012
http://captcurt.blogspot.com/2012_10_01_archive.html
What is Leigh's Syndrone? Thursday, October 25, 2012. Oad Trip, R. Oad Trip, and R. Eport Cards . . . The road trips were actually doctor's visits, but a two hour drive there and back makes it a road trip. But before anything about that, first quarter report cards came out. A couple 100’s. A couple 99’s; a 97; a 96; and a 95. How ‘bout them grades? Now for the Doctor visits. Our second trip was to the other Doctor. I gained 5 pounds! I can line drive a whiffle ball! Posted by Capt Curt. Below are a coupl...
captcurt.blogspot.com
Curt's Corner: I Had a BIRTHDAY!
http://captcurt.blogspot.com/2012/11/i-had-birthday.html
What is Leigh's Syndrone? Monday, November 19, 2012. I Had a BIRTHDAY! Bet you can't guess where? Cheesing for the camera. And so was Nannie behind her camera. My friends celebrated with me. Games and Pizza and Strawberry Cake! And of course, GAMES! My daddy is the ultimate game buddy and that is my Annie watching us meet the challenge. More friends . . . More cheesing Chuck E. Cheese! A long time ago, when I was kid (because, you know I am seven now, right? And this was the. Posted by Capt Curt.
captcurt.blogspot.com
Curt's Corner: G-Tube
http://captcurt.blogspot.com/2012/09/g-tube.html
What is Leigh's Syndrone? Sunday, September 16, 2012. On August 21st I had surgery and I now have a G-tube. A bear with a button from my mommy's friend in Seattle. A blanket from the hospital. Another bear and blanket from children visiting from their church. And visting friends and family.kinda like a party. And more goodies (and there was a whoopie cushion too! Two days later I went in to surgery. I can eat ice cream or chicken fingers or whipped cream, but NO MORE TASTING THAT NASTY VITAMIN COCKTAIL!
captcurt.blogspot.com
Curt's Corner: Song Writers In The Round
http://captcurt.blogspot.com/2012/10/song-writers-in-round.html
What is Leigh's Syndrone? Thursday, October 11, 2012. Song Writers In The Round. We live in a wonderful community! The next fundraiser is October 25th. Local Artists are coming together to play the songs they have written. What a group of amazing talent. Below are a couple clips of a few of the songwriters that will be singing on the 25th:. That was Jodi Mann. She has a fun song about a beach in the backyard too! Evan Barber and the Bo Henry Band:. Posted by Capt Curt. Subscribe to: Post Comments (Atom).
captcurt.blogspot.com
Curt's Corner: Sunny With A Chance Of Pancakes!!
http://captcurt.blogspot.com/2012/10/sunny-with-chance-of-pancakes.html
What is Leigh's Syndrone? Sunday, October 7, 2012. Sunny With A Chance Of Pancakes! Today was the Pancake Breakfast Fundraiser that Annie and Pappy's Sunday School Class hosted for me. Lots of flapjacks were flipped and lots of love and smiles too! The griddle is hot! And the batter must be good). Did someone say Bacon? Waiting for the first wave of pancake eaters . . . Thank you Mr. Dan . . . Our many many friends! That pancake holds the butter and the syrup all in the center! Sweet friends - the Dilts.
captcurt.blogspot.com
Curt's Corner: Whose Got the Button? I've Got The Button
http://captcurt.blogspot.com/2012/10/whose-got-button-ive-got-button.html
What is Leigh's Syndrone? Thursday, October 4, 2012. Whose Got the Button? I've Got The Button. We made our round trip to Children's Hospital Outpatient Services (CHOP). 105 miles round trip. But I got the button! And I was excited! The PA said is wasn't going to hurt. But it seems she was a little wrong. That smile above disappeared. Prayers for our Journey. The site of the button will heal with speed (no silver nitrate). Acceptance to the Drug Program/Trials. Day's full of laughter and joy.
captcurt.blogspot.com
Curt's Corner: Song Writers in the Round
http://captcurt.blogspot.com/2012/11/song-writers-in-round.html
What is Leigh's Syndrone? Tuesday, November 13, 2012. Song Writers in the Round. Fundraisers sure can have a lot of people! Pappy said about 400 came out to hear the local songwriters sing. I think he is right! Sure were a lot of happy woman shopping the silent auction, and a few guys for the hunts that were offered. And on top of all the grown up stuff for auction, someone sent along a surprise donation for the silent auction. A little white bundle of fur! I enjoyed the songs,. My family is loved by a g...
captcurt.blogspot.com
Curt's Corner: September 2012
http://captcurt.blogspot.com/2012_09_01_archive.html
What is Leigh's Syndrone? Sunday, September 30, 2012. In Hopes of a Cure. The story of our fight with mitochondria, and hope for a cure, was featured on one of our local news stations tonight . . . WALB.com, Albany News, Weather, Sports. The interview was about 45 minutes, they cut alot. But here is a Mitochondria " did you know". Thank you to the UMDF for the info above. To learn more go to their website umdf.org. It took us five months to get a diagnosis. It takes some even longer! Posted by Capt Curt.
captcurt.blogspot.com
Curt's Corner: The Three R's
http://captcurt.blogspot.com/2012/10/the-three-rs.html
What is Leigh's Syndrone? Thursday, October 25, 2012. Oad Trip, R. Oad Trip, and R. Eport Cards . . . The road trips were actually doctor's visits, but a two hour drive there and back makes it a road trip. But before anything about that, first quarter report cards came out. A couple 100’s. A couple 99’s; a 97; a 96; and a 95. How ‘bout them grades? Now for the Doctor visits. Our second trip was to the other Doctor. I gained 5 pounds! I can line drive a whiffle ball! Posted by Capt Curt. Our lives Nina an...