mpdchat.com

mpdrc.org

MPD-RC

http://www.mpdrc.org/weblinks.php?cat_id=3

Web Links: Patients Support Groups. Have questions about your blood disease? Support and information is given to all who have or care for blood diseases. Support Group, based in Seattle. For patients living with Myeloproliferative Disorders (MPDs) and their family and friends. The MEJ Thrombocythaemia discussion forum. Support group for patients with chronic blood disease and for their family, relatives and friends. MPD Myeloproliferative disease support. We are an International email MPD/MPN Support gro...

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: May 2012

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Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Monday, May 28, 2012. When Mom's Chemo Brain meets Teenage Brain. May should be named National Stress Month. For adults who live with chronic illness AND have school-age kids in the house, it becomes crazy time. What Exactly is a "Teenage Brain"? Recent neuroscience research shows that the human brain undergoes a massive overhaul between the a...

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: September is the month for Blood Cancer Awareness

http://funnymama.blogspot.com/2013/09/september-is-month-for-blood-cancer.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Tuesday, September 10, 2013. September is the month for Blood Cancer Awareness. By Delete Blood Cancer. Tuesday, September 10, 2013. Subscribe to: Post Comments (Atom). September is the month for Blood Cancer Awareness. Some Life Lessons Take a Lifetime. Marina Needs Us - Donor Registry Drive Volunteers. MPN magazine by and for MPNers.

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: July 2013

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Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Saturday, July 27, 2013. Stem Cell Transplant Journey. Over the last few weeks, I've focused my stem cell transplant experience through the CaringBridge. Website. I'll continue there as it seems easiest for my extended family to keep up. You are welcome to follow the journey there. Thank you and cheers! Saturday, July 27, 2013.

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: Some Life Lessons Take a Lifetime

http://funnymama.blogspot.com/2013/09/some-life-lessons-take-lifetime.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Monday, September 09, 2013. Some Life Lessons Take a Lifetime. If you let go a little, you will have a little peace. If you let go a lot, you will have a lot of peace. If you let go completely, you will know complete peace and freedom. Your struggles with the world will come to an end. Ajahn Chah, A Still Forest Pool. It took my body more than...

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: June 2013

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Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Wednesday, June 26, 2013. STEM CELL TRANSPLANT STEP 1: MEDICAL EVALUATION. I learned this week that my life saving blood stem cell donor is a 22 year old man who lives outside the United States. He has agreed to the stem cell collection schedule my doctor proposed. How cool is that? We are ONE MONTH from my Re-birthday! 8:30 am: Meet with Clin...

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: February 2013

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Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Thursday, February 21, 2013. The Outs and Ins of MPNs. My last phlebotomy was on June 29, 2012. It took about 15 minutes to withdraw 500 ml of that RBC-rich blood from my body. Now, almost eight months later, I'm receiving my first transfusion of packed red blood cells. What a ride this is! When my hemoglobin (hgb) and hematocrit (hct). This g...

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: November 2011

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Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Tuesday, November 15, 2011. The Traffic Jam Within: A Primer on Blood Clots and Thrombosis. The 6th Annual International MPN Patient Symposium began with Dr. Babette Weksler giving us a fascinating overview on the invisible threat to people living with Polycythemia Vera (PV) and Essential Thrombocythemia (ET): thrombosis. The clotting function...

funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: Life Saving Eagle Scout Project: Building the Marrow Donor Registry

http://funnymama.blogspot.com/2013/08/life-saving-eagle-scout-project.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Saturday, August 31, 2013. Life Saving Eagle Scout Project: Building the Marrow Donor Registry. Patrick worked with DKMS Delete Blood Cancer. The nonprofit registry that provided the swab kits and educational materials. Was coming up, he contacted race officials and asked if he could run the swab drive during the race. They readily agreed.