mpngenetics.com
Zhaohui | MPN Genetics
http://www.mpngenetics.com/zhaohui
Board of Scientific & Clinical Advisors. Making Medical History: For gene editing, for MPN patients. Zhaohui Ye had a problem. A very little problem. He was hunting for a small target. It was a single gene, a few micronanometers of DNA, that had mutated and was blighting an MPN patient’s life. The gene was located somewhere on a six foot long DNA strand, nestled among 3 billion look-alike base pairs glittering on a double helix skeleton of sugar and phosphate. Having the exact address is an advantage....
mpdrc.org
MPD-RC
http://www.mpdrc.org/weblinks.php?cat_id=3
Web Links: Patients Support Groups. Have questions about your blood disease? Support and information is given to all who have or care for blood diseases. Support Group, based in Seattle. For patients living with Myeloproliferative Disorders (MPDs) and their family and friends. The MEJ Thrombocythaemia discussion forum. Support group for patients with chronic blood disease and for their family, relatives and friends. MPD Myeloproliferative disease support. We are an International email MPD/MPN Support gro...
funnymama.blogspot.com
Laughing All the Way... Through Chronic Illness: May 2012
http://funnymama.blogspot.com/2012_05_01_archive.html
Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Monday, May 28, 2012. When Mom's Chemo Brain meets Teenage Brain. May should be named National Stress Month. For adults who live with chronic illness AND have school-age kids in the house, it becomes crazy time. What Exactly is a "Teenage Brain"? Recent neuroscience research shows that the human brain undergoes a massive overhaul between the a...
crt.org
Blood Cancer Resources - MPN Resources | CR&T
http://www.crt.org/Blood-Cancer-and-MPN-Resources
Blood Cancer and MPN Resources. The Silver MPN Center. Edward P. Ambinder, M.D. Morton Coleman, M.D., FACP. John P. Leonard, M.D. Anne Moore, M.D. Malcolm Moore, D.Phil. Mark Pasmantier, M.D. Shahin Rafii, M.D. Andrew I. Schafer, M.D. David A. Scheinberg, M.D., Ph.D. Richard T. Silver, M.D., FACP. Jerry L. Spivak, M.D. Alexander J. Swistel, M.D. Linda T. Vahdat, M.D. Development of Interferon in MPN Therapy. Identification of Mechanism for Resistance to Ibrutinib in Lymphoma. Hall of Fame Event. Ndash; T...
funnymama.blogspot.com
Laughing All the Way... Through Chronic Illness: September is the month for Blood Cancer Awareness
http://funnymama.blogspot.com/2013/09/september-is-month-for-blood-cancer.html
Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Tuesday, September 10, 2013. September is the month for Blood Cancer Awareness. By Delete Blood Cancer. Tuesday, September 10, 2013. Subscribe to: Post Comments (Atom). September is the month for Blood Cancer Awareness. Some Life Lessons Take a Lifetime. Marina Needs Us - Donor Registry Drive Volunteers. MPN magazine by and for MPNers.
funnymama.blogspot.com
Laughing All the Way... Through Chronic Illness: July 2013
http://funnymama.blogspot.com/2013_07_01_archive.html
Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Saturday, July 27, 2013. Stem Cell Transplant Journey. Over the last few weeks, I've focused my stem cell transplant experience through the CaringBridge. Website. I'll continue there as it seems easiest for my extended family to keep up. You are welcome to follow the journey there. Thank you and cheers! Saturday, July 27, 2013.
funnymama.blogspot.com
Laughing All the Way... Through Chronic Illness: Some Life Lessons Take a Lifetime
http://funnymama.blogspot.com/2013/09/some-life-lessons-take-lifetime.html
Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Monday, September 09, 2013. Some Life Lessons Take a Lifetime. If you let go a little, you will have a little peace. If you let go a lot, you will have a lot of peace. If you let go completely, you will know complete peace and freedom. Your struggles with the world will come to an end. Ajahn Chah, A Still Forest Pool. It took my body more than...
funnymama.blogspot.com
Laughing All the Way... Through Chronic Illness: June 2013
http://funnymama.blogspot.com/2013_06_01_archive.html
Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Wednesday, June 26, 2013. STEM CELL TRANSPLANT STEP 1: MEDICAL EVALUATION. I learned this week that my life saving blood stem cell donor is a 22 year old man who lives outside the United States. He has agreed to the stem cell collection schedule my doctor proposed. How cool is that? We are ONE MONTH from my Re-birthday! 8:30 am: Meet with Clin...
funnymama.blogspot.com
Laughing All the Way... Through Chronic Illness: February 2013
http://funnymama.blogspot.com/2013_02_01_archive.html
Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Thursday, February 21, 2013. The Outs and Ins of MPNs. My last phlebotomy was on June 29, 2012. It took about 15 minutes to withdraw 500 ml of that RBC-rich blood from my body. Now, almost eight months later, I'm receiving my first transfusion of packed red blood cells. What a ride this is! When my hemoglobin (hgb) and hematocrit (hct). This g...
funnymama.blogspot.com
Laughing All the Way... Through Chronic Illness: November 2011
http://funnymama.blogspot.com/2011_11_01_archive.html
Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Tuesday, November 15, 2011. The Traffic Jam Within: A Primer on Blood Clots and Thrombosis. The 6th Annual International MPN Patient Symposium began with Dr. Babette Weksler giving us a fascinating overview on the invisible threat to people living with Polycythemia Vera (PV) and Essential Thrombocythemia (ET): thrombosis. The clotting function...