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MPNforum Magazine | International MPN News, Science & Opinion

  On Jakafi, SCT and mutations...a Confession Special Report: Jakafi and the evolution of deadly mutation      Deep South in Deep Freeze ASH Atlanta buried in snow and ice. Rising from the Ashes...  fedratinib is back! Four years after blowing up at ASH, Sanofi's alternative to Jakafi roars back to life at ASH.  Fedratinib back in the hands…

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MPNforum Magazine | International MPN News, Science & Opinion | mpnforum.com Reviews
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  On Jakafi, SCT and mutations...a Confession Special Report: Jakafi and the evolution of deadly mutation      Deep South in Deep Freeze ASH Atlanta buried in snow and ice. Rising from the Ashes...  fedratinib is back! Four years after blowing up at ASH, Sanofi's alternative to Jakafi roars back to life at ASH.  Fedratinib back in the hands…
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1 mpnforum magazine
2 crispr madness
3 about mpnforum
4 special report
5 deadly mutation
6 dr john hood
7 dr catriona jamieson
8 the skype interviews
9 cure magazine
10 the charming gardeners
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MPNforum Magazine | International MPN News, Science & Opinion | mpnforum.com Reviews

https://mpnforum.com

  On Jakafi, SCT and mutations...a Confession Special Report: Jakafi and the evolution of deadly mutation      Deep South in Deep Freeze ASH Atlanta buried in snow and ice. Rising from the Ashes...  fedratinib is back! Four years after blowing up at ASH, Sanofi's alternative to Jakafi roars back to life at ASH.  Fedratinib back in the hands…

INTERNAL PAGES

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1

Six Clinics — The Index Project | MPNforum Magazine

https://mpnforum.com/six-clinics-index

A day at the office — MPNRF. International MPN News, Science and Opinion. Six Clinics — The Index Project. 302 answers to 141 questions. In the past year, in six historic MPN Clinics, nine of the world’s foremost MPN specialists assembled. In these clinics, these world renowned specialist provided 302 answers to 141 questions posted by patients, caregivers and healthcare providers. Taken together, this rich treasure of information is 88 pages long, 41,818 words. We need more terms to be indexed. Meantime...

2

ET Pajama Party | MPNforum Magazine

https://mpnforum.com/et-pajama-party

A day at the office — MPNRF. International MPN News, Science and Opinion. Terri Libenson —. Living a living a life out loudwith humor, comic panels and talk balloons. Jill Kaplan has ET. And two daughters. So does Terri Libenson. Have so much in common you could be forgiven for thinking Terri, the creator of the popular comic strip. Is Jill, her creation. And where Jill is dominating and her comic husband Rob quiet, in real life Terri is a bit introverted and her husband outgoing. In a daily strip and we...

3

Catalog of MPNforum Articles | MPNforum Magazine

https://mpnforum.com/building-tables

A day at the office — MPNRF. International MPN News, Science and Opinion. Catalog of MPNforum Articles. This is a work in progress. While nearly complete to the best of our knowledge, our early days were chaotic as we wrestled pages from test sites to the. Pages trying to figure things out. It’s likely an article or two is missing from this Table, but it’s a beginning. While we are still missing some. Articles and Columns, you can still find all your favorites by using the Search box on most. Beyond rese...

4

When the experts are wrong | MPNforum Magazine

https://mpnforum.com/when-the-experts-are-wrong

A day at the office — MPNRF. International MPN News, Science and Opinion. When the experts are wrong. Re-evaluating your MPN Diagnosis. Mary Cotter had a problem. No one seemed to understand her strange blood counts. We’ve known for more than 40 years that diagnosis of polycythemia vera is a little, well. slipshod. Now with the publication of. 8220;Evaluation of WHO criteria for diagnosis of polycythemia vera”. Silver, et al.) we have a much better idea of just how wacky it has been. The hematocrit (HCT)...

5

About MPNforum | MPNforum Magazine

https://mpnforum.com/about-mpnforum

A day at the office — MPNRF. International MPN News, Science and Opinion. Founded in 2011, MPNforum. Are open source publications entirely managed and staffed by patients and caregivers with the volunteer participation of scientists, hematologists and healthcare providers. With 12,000 monthly readers ,. Is the most widely followed independent international on-line monthly magazine focused on myeloproliferative neoplasm patients and caregivers. And provide an e-mail address. Dr Srdan Verstovsek,. Created ...

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Zhaohui | MPN Genetics

http://www.mpngenetics.com/zhaohui

Board of Scientific & Clinical Advisors. Making Medical History: For gene editing, for MPN patients. Zhaohui Ye had a problem. A very little problem. He was hunting for a small target. It was a single gene, a few micronanometers of DNA, that had mutated and was blighting an MPN patient’s life. The gene was located somewhere on a six foot long DNA strand, nestled among 3 billion look-alike base pairs glittering on a double helix skeleton of sugar and phosphate. Having the exact address is an advantage&#46...

mpdrc.org mpdrc.org

MPD-RC

http://www.mpdrc.org/weblinks.php?cat_id=3

Web Links: Patients Support Groups. Have questions about your blood disease? Support and information is given to all who have or care for blood diseases. Support Group, based in Seattle. For patients living with Myeloproliferative Disorders (MPDs) and their family and friends. The MEJ Thrombocythaemia discussion forum. Support group for patients with chronic blood disease and for their family, relatives and friends. MPD Myeloproliferative disease support. We are an International email MPD/MPN Support gro...

funnymama.blogspot.com funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: May 2012

http://funnymama.blogspot.com/2012_05_01_archive.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Monday, May 28, 2012. When Mom's Chemo Brain meets Teenage Brain. May should be named National Stress Month. For adults who live with chronic illness AND have school-age kids in the house, it becomes crazy time. What Exactly is a "Teenage Brain"? Recent neuroscience research shows that the human brain undergoes a massive overhaul between the a...

crt.org crt.org

Blood Cancer Resources - MPN Resources | CR&T

http://www.crt.org/Blood-Cancer-and-MPN-Resources

Blood Cancer and MPN Resources. The Silver MPN Center. Edward P. Ambinder, M.D. Morton Coleman, M.D., FACP. John P. Leonard, M.D. Anne Moore, M.D. Malcolm Moore, D.Phil. Mark Pasmantier, M.D. Shahin Rafii, M.D. Andrew I. Schafer, M.D. David A. Scheinberg, M.D., Ph.D. Richard T. Silver, M.D., FACP. Jerry L. Spivak, M.D. Alexander J. Swistel, M.D. Linda T. Vahdat, M.D. Development of Interferon in MPN Therapy. Identification of Mechanism for Resistance to Ibrutinib in Lymphoma. Hall of Fame Event. Ndash; T...

funnymama.blogspot.com funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: September is the month for Blood Cancer Awareness

http://funnymama.blogspot.com/2013/09/september-is-month-for-blood-cancer.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Tuesday, September 10, 2013. September is the month for Blood Cancer Awareness. By Delete Blood Cancer. Tuesday, September 10, 2013. Subscribe to: Post Comments (Atom). September is the month for Blood Cancer Awareness. Some Life Lessons Take a Lifetime. Marina Needs Us - Donor Registry Drive Volunteers. MPN magazine by and for MPNers.

funnymama.blogspot.com funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: July 2013

http://funnymama.blogspot.com/2013_07_01_archive.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Saturday, July 27, 2013. Stem Cell Transplant Journey. Over the last few weeks, I've focused my stem cell transplant experience through the CaringBridge. Website. I'll continue there as it seems easiest for my extended family to keep up. You are welcome to follow the journey there. Thank you and cheers! Saturday, July 27, 2013.

funnymama.blogspot.com funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: Some Life Lessons Take a Lifetime

http://funnymama.blogspot.com/2013/09/some-life-lessons-take-lifetime.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Monday, September 09, 2013. Some Life Lessons Take a Lifetime. If you let go a little, you will have a little peace. If you let go a lot, you will have a lot of peace. If you let go completely, you will know complete peace and freedom. Your struggles with the world will come to an end. Ajahn Chah, A Still Forest Pool. It took my body more than...

funnymama.blogspot.com funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: June 2013

http://funnymama.blogspot.com/2013_06_01_archive.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Wednesday, June 26, 2013. STEM CELL TRANSPLANT STEP 1: MEDICAL EVALUATION. I learned this week that my life saving blood stem cell donor is a 22 year old man who lives outside the United States. He has agreed to the stem cell collection schedule my doctor proposed. How cool is that? We are ONE MONTH from my Re-birthday! 8:30 am: Meet with Clin...

funnymama.blogspot.com funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: February 2013

http://funnymama.blogspot.com/2013_02_01_archive.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Thursday, February 21, 2013. The Outs and Ins of MPNs. My last phlebotomy was on June 29, 2012. It took about 15 minutes to withdraw 500 ml of that RBC-rich blood from my body. Now, almost eight months later, I'm receiving my first transfusion of packed red blood cells. What a ride this is! When my hemoglobin (hgb) and hematocrit (hct). This g...

funnymama.blogspot.com funnymama.blogspot.com

Laughing All the Way... Through Chronic Illness: November 2011

http://funnymama.blogspot.com/2011_11_01_archive.html

Laughing All the Way. Through Chronic Illness. Just another mid-life crisis with cancer, stem cell transplant, teenagers, and the occasional unexpected speed bump. Tuesday, November 15, 2011. The Traffic Jam Within: A Primer on Blood Clots and Thrombosis. The 6th Annual International MPN Patient Symposium began with Dr. Babette Weksler giving us a fascinating overview on the invisible threat to people living with Polycythemia Vera (PV) and Essential Thrombocythemia (ET): thrombosis. The clotting function...

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A day at the office — MPNRF. International MPN News, Science and Opinion. December, 2017 …The ASH issue. On Jakafi, SCT and mutations…a Confession. Jakafi and the evolution of. Deep South in Deep Freeze. ASH Atlanta buried in snow and ice. Photo: Marina Sampanes Peed. Rising from the Ashes… fedratinib is back! Hood and Jamieson. Fedratinib is in their hands now. Here’s the full story. Dr Richard T. Silver… The Long MPN View. Morphology of the Blood and Marrow in Clinical Practice. 8220;This book is the p...

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MPNforum List of Hematologists. Want to recommend your hematologist? March 15, 2012. This is the site that houses the recommended hematologist pages. Create a free website or blog at WordPress.com. MPNforum List of Hematologists. Create a free website or blog at WordPress.com.

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