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My MSA Journey

Multiple System Atrophy: I Have This Disease - It Doesn't Have Me

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My MSA Journey | msajourney.blogspot.com Reviews
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Multiple System Atrophy: I Have This Disease - It Doesn&#39;t Have Me
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My MSA Journey | msajourney.blogspot.com Reviews

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Multiple System Atrophy: I Have This Disease - It Doesn&#39;t Have Me

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1

My MSA Journey: Post 78 - STEVE STEIDEL 1944-2014

http://msajourney.blogspot.com/2014/07/post-78-steve-steidel-1944-2014.html

Multiple System Atrophy: I Have This Disease - It Doesn't Have Me. Sunday, July 6, 2014. Post 78 - STEVE STEIDEL 1944-2014. I'm so sad. We lost Steve on June 28. He was doing ok. We were managing all his symptoms and problems. We quietly celebrated our 49th anniversary on June 12. Then, the following week he started with a low fever. It climbed to 102.8 even though he was being given a strong antibiotic through an IV. Will I continue the posts? I am including the link to his obituary and a slide show for...

2

My MSA Journey: Post 77 - New Month, New Message

http://msajourney.blogspot.com/2014/06/post-77-new-month-new-message.html

Multiple System Atrophy: I Have This Disease - It Doesn't Have Me. Sunday, June 1, 2014. Post 77 - New Month, New Message. I'm glad to say that things are going along pretty well. I am irrigating Steve's catheter every morning and that seems to be keeping the sediment buildup in check. Meanwhile I have contracted with a home health agency to come in several mornings a week to help with Steve's personal needs. That starts tomorrow. So, yes, I am happy that Steve has not reached that stage. We are looking ...

3

My MSA Journey: August 2013

http://msajourney.blogspot.com/2013_08_01_archive.html

Multiple System Atrophy: I Have This Disease - It Doesn't Have Me. Thursday, August 8, 2013. Post 67 – What Next? By now you’re probably sick of hearing about the trials and tribulations I’ve experienced while adjusting to my supra-pubic catheter which was surgically implanted on May 10. Just one more cautionary tale – one about something I didn’t see coming! Each week I have a visiting nurse stop by to check my vital signs and inspect the operation site. Little did I know! Come over as soon as possible.

4

My MSA Journey: July 2014

http://msajourney.blogspot.com/2014_07_01_archive.html

Multiple System Atrophy: I Have This Disease - It Doesn't Have Me. Sunday, July 6, 2014. Post 78 - STEVE STEIDEL 1944-2014. I'm so sad. We lost Steve on June 28. He was doing ok. We were managing all his symptoms and problems. We quietly celebrated our 49th anniversary on June 12. Then, the following week he started with a low fever. It climbed to 102.8 even though he was being given a strong antibiotic through an IV. Will I continue the posts? I am including the link to his obituary and a slide show for...

5

My MSA Journey: The Diagnosis

http://msajourney.blogspot.com/2015/02/the-diagnosis.html

Multiple System Atrophy: I Have This Disease - It Doesn't Have Me. Sunday, February 1, 2015. Hi, this is Steve’s daughter Deb writing. It was very important to my dad to donate his brain for research. He also wanted us to have a definitive diagnosis – MSA is not typically hereditary, unlike some very similar diseases. He would have been relieved to know that the brain autopsy results indicated a definite diagnosis of MSA. Here is the statement we received from the University of Miami Brain Endowment Bank:.

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Watch this, Mom!: 3/8/15 - 3/15/15

http://bubblecheese.blogspot.com/2015_03_08_archive.html

Watch this, Mom! Sunday, March 8, 2015. Chef Lily: One Pot Pasta. Subscribe to: Posts (Atom). Inquiring about her soccer game opponents: "Who are we versusing today? Dad's Blog: MSA Journey. I Only Press the Button (Karen). Kate b draws things. Kate b. hard as nails. Cyndi Lauper dances funny. What's wrong with her? Guest Quote, from Ellie: "I wish I was a dog. Then I wouldn't have to flush the toilet or wash my hands.". Euuuuwww, come smell these farts! I know this song! Daddy: "Only at a sand bar!

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Watch this, Mom!: 11/23/14 - 11/30/14

http://bubblecheese.blogspot.com/2014_11_23_archive.html

Watch this, Mom! Saturday, November 29, 2014. Ecuador: More Quilotoa Photos. See all the photos here. This hill is known as Gorilla Back Mountain. See it? One of the highlights of the trip was an unplanned stop at a rose farm. Friday, November 28, 2014. Lily made the dessert! Sunday, November 23, 2014. Girls on the Run 5K. Subscribe to: Posts (Atom). Inquiring about her soccer game opponents: "Who are we versusing today? Dad's Blog: MSA Journey. I Only Press the Button (Karen). Kate b draws things. Guest...

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Watch this, Mom!: 11/2/14 - 11/9/14

http://bubblecheese.blogspot.com/2014_11_02_archive.html

Watch this, Mom! Sunday, November 2, 2014. See the whole album here on flickr. 65279;. Stuart was in charge! Team Wall at the rings. My baby jumped over fire! It takes a village. Team Wall and Dr. Pep. Subscribe to: Posts (Atom). Inquiring about her soccer game opponents: "Who are we versusing today? Dad's Blog: MSA Journey. I Only Press the Button (Karen). Kate b draws things. Kate b. hard as nails. Cyndi Lauper dances funny. What's wrong with her? Euuuuwww, come smell these farts! I know everythi...

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Watch this, Mom!: Belated 50th Birthday to Aunt Claire!

http://bubblecheese.blogspot.com/2015/05/belated-50th-birthday-to-aunt-claire.html

Watch this, Mom! Sunday, May 3, 2015. Belated 50th Birthday to Aunt Claire! Subscribe to: Post Comments (Atom). Inquiring about her soccer game opponents: "Who are we versusing today? Dad's Blog: MSA Journey. I Only Press the Button (Karen). Kate b draws things. Kate b. hard as nails. Cyndi Lauper dances funny. What's wrong with her? Guest Quote, from Ellie: "I wish I was a dog. Then I wouldn't have to flush the toilet or wash my hands.". Euuuuwww, come smell these farts! I know this song! Lily: "Mommy w...

skeetandmsa.blogspot.com skeetandmsa.blogspot.com

Skeet's Journey: November 2009

http://skeetandmsa.blogspot.com/2009_11_01_archive.html

MSA-C and Stem Cell Treatment. Monday, November 30, 2009. Doctor's Visit on Nov. 17, 2009. I realize that I am a little delayed in posting this - perhaps because there was not much to report. Skeet's first doctor's visit was just 13 days after the implantation. Basically the neurologist stated that there were no positive changes ("yet" - my words, not his). It was noted, however, that when Skeet's blood pressure dropped upon standing, it did recover a bit more quickly than previously. I'm sure that I won...

msainfoshare.blogspot.com msainfoshare.blogspot.com

Mariko's MSA InfoShare: Post #2 MSA Diagnosis & History

http://msainfoshare.blogspot.com/2009/11/post-2-msa-diagnosis-history.html

Stem Cell Therapy for neurological degenerative diseases. Friday, November 20, 2009. Post #2 MSA Diagnosis and History. Current symptoms, likely associated with this disease, include:. Gait difficulties and imbalance. Wide-based stance for balance. Use cane when walking or furniture and walls when walking around the house. Right side of body, including right leg "feels" weaker, at least less control. Right-sided cerebellar dysmetria, with intention tremor and past-pointing. Light headed or faint. I'm hop...

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Mariko's MSA InfoShare: Post #6 Results

http://msainfoshare.blogspot.com/2011/02/post-6-results.html

Stem Cell Therapy for neurological degenerative diseases. Sunday, February 13, 2011. I hope the above information hs been helpful, though I realize it may not have been what you were hoping to hear. Please feel free to either write or call if you would like additional information. We are always willing to share whatever information we might have. Subscribe to: Post Comments (Atom). View my complete profile. Stem Cell Clinic: XCell-Center. Stem Cells: Forbes Magazine - May 21, 2009.

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Watch this, Mom!: Seattle

http://bubblecheese.blogspot.com/2015/05/seattle.html

Watch this, Mom! Wednesday, May 6, 2015. Subscribe to: Post Comments (Atom). Inquiring about her soccer game opponents: "Who are we versusing today? Dad's Blog: MSA Journey. I Only Press the Button (Karen). Kate b draws things. Kate b. hard as nails. Cyndi Lauper dances funny. What's wrong with her? Guest Quote, from Ellie: "I wish I was a dog. Then I wouldn't have to flush the toilet or wash my hands.". Euuuuwww, come smell these farts! Guest quote from Grandma Fran: "It hurts when I dangle.". Did you k...

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Multiple System Atrophy: I Have This Disease - It Doesn't Have Me. Sunday, February 1, 2015. Hi, this is Steve’s daughter Deb writing. It was very important to my dad to donate his brain for research. He also wanted us to have a definitive diagnosis – MSA is not typically hereditary, unlike some very similar diseases. He would have been relieved to know that the brain autopsy results indicated a definite diagnosis of MSA. Here is the statement we received from the University of Miami Brain Endowment Bank:.

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