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Little E's Journeybaby with Escobar syndrome/ Multiple pterygium syndrome. short stature, vertebral defects, multiple joints in a fixed position, poorly lungs .
http://mum-tolittlee.blogspot.com/
baby with Escobar syndrome/ Multiple pterygium syndrome. short stature, vertebral defects, multiple joints in a fixed position, poorly lungs .
http://mum-tolittlee.blogspot.com/
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Little E's Journey | mum-tolittlee.blogspot.com Reviews
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baby with Escobar syndrome/ Multiple pterygium syndrome. short stature, vertebral defects, multiple joints in a fixed position, poorly lungs .
mum-tolittlee.blogspot.com
Little E's Journey: Door buzzers and hand gel!
http://mum-tolittlee.blogspot.com/2012/02/door-buzzers-and-hand-gel.html
My daughter was recently diagnosed with Escobar Syndrome (Multiple pteryrium syndrome), I am writing this blog in the hope of meeting other families who have been or are going through a similar situation. CHRNG gene, Escobar syndrome, joint contractures, multiple pterygium, polyhydramnios, poorly lungs, rare genetic syndromes, translocation Location: Essex, UK. Wednesday, 1 February 2012. Door buzzers and hand gel! Starting this blog has unleashed my emotions and basically now I'm an emotional wreck!
Little E's Journey: January 2012
http://mum-tolittlee.blogspot.com/2012_01_01_archive.html
My daughter was recently diagnosed with Escobar Syndrome (Multiple pteryrium syndrome), I am writing this blog in the hope of meeting other families who have been or are going through a similar situation. CHRNG gene, Escobar syndrome, joint contractures, multiple pterygium, polyhydramnios, poorly lungs, rare genetic syndromes, translocation Location: Essex, UK. Tuesday, 31 January 2012. And inform people and hopefully meet other people with similar stories. She decided to come 5 weeks early and when she ...
Little E's Journey: November 2013
http://mum-tolittlee.blogspot.com/2013_11_01_archive.html
My daughter was recently diagnosed with Escobar Syndrome (Multiple pteryrium syndrome), I am writing this blog in the hope of meeting other families who have been or are going through a similar situation. CHRNG gene, Escobar syndrome, joint contractures, multiple pterygium, polyhydramnios, poorly lungs, rare genetic syndromes, translocation Location: Essex, UK. Friday, 1 November 2013. The time to make a decision is coming. And I keep thinking how will I cope? They all sound braver than me. I got asked t...
Little E's Journey: We had a cup of tea and talked about her being asleep.
http://mum-tolittlee.blogspot.com/2012/03/we-had-cup-of-tea-and-talked-about-her.html
My daughter was recently diagnosed with Escobar Syndrome (Multiple pteryrium syndrome), I am writing this blog in the hope of meeting other families who have been or are going through a similar situation. CHRNG gene, Escobar syndrome, joint contractures, multiple pterygium, polyhydramnios, poorly lungs, rare genetic syndromes, translocation Location: Essex, UK. Wednesday, 14 March 2012. We had a cup of tea and talked about her being asleep. Little E slept for four hours this morning! She was still asleep?
Little E's Journey: July 2012
http://mum-tolittlee.blogspot.com/2012_07_01_archive.html
My daughter was recently diagnosed with Escobar Syndrome (Multiple pteryrium syndrome), I am writing this blog in the hope of meeting other families who have been or are going through a similar situation. CHRNG gene, Escobar syndrome, joint contractures, multiple pterygium, polyhydramnios, poorly lungs, rare genetic syndromes, translocation Location: Essex, UK. Saturday, 14 July 2012. When the doctors managed to get little E off of oxygen we were over the moon. So is her feisty toddlerisms(? I hate holdi...
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Be Strong in the Lord: August 2014
http://beth-barham.blogspot.com/2014_08_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Saturday, August 23, 2014. Here We Go Again. I'm not going to lie. First grade has been more upsetting for me than kindergarten. I think maybe it's because he's become more mature. I'm trying to soak it all in. He's all I'll ever have. Here's hoping he still has that attitude come Friday morning. Bilateral ve...
Be Strong in the Lord: Alas! A Successful Mother Goose Lapsit!!
http://beth-barham.blogspot.com/2009/03/alas-successful-mother-goose-lapsit.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Thursday, March 19, 2009. A Successful Mother Goose Lapsit! Reece made it through Mother Goose at the library without crying! I think I held my breath the entire time just waiting for the screaming to come, but it didn't. The little guy even participated! I'll let you know how everything turns out! For an eve...
Be Strong in the Lord: Perspective
http://beth-barham.blogspot.com/2015/04/perspective.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Monday, April 6, 2015. It wasn't necessarily what he said, but how he said it. It was like he had been thinking on it for a while. What could I say? Reece: "Yes." Me: "Why? Reece: "God has big plans for me.". From there, we drove over to Barnes and Noble where he bought 3 books. (We are. Really into books the...
Be Strong in the Lord: May 2014
http://beth-barham.blogspot.com/2014_05_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Saturday, May 10, 2014. The Saturday after we got home from Puerto Rico, Reece began his first year of Challenger League baseball. This is a league for children and adults with various disabilities, and it's all about having fun! Everybody wins and you even cheer for the opposing team! We're on tv, I think!
Be Strong in the Lord: March 2015
http://beth-barham.blogspot.com/2015_03_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Friday, March 20, 2015. Our spring break started a little early due to icy weather. We had the Thursday off before it started on that Friday. Reece was a ok with that. It was on Thursday when his great Uncle Mike gave him a call to let him know what we were going to be doing that weekend. Here come the Grizz!
Be Strong in the Lord: February 2015
http://beth-barham.blogspot.com/2015_02_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Tuesday, February 24, 2015. While I completely understand your concern, I don't think it changes Reece's status quo, or the expected improvement we can get with an operation and. What that could mean to him. Those highlighted words sealed it for me. Now, of course, some would say "The surgeon just w. Everybod...
Be Strong in the Lord: April 2015
http://beth-barham.blogspot.com/2015_04_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Monday, April 6, 2015. It wasn't necessarily what he said, but how he said it. It was like he had been thinking on it for a while. What could I say? Reece: "Yes." Me: "Why? Reece: "God has big plans for me.". From there, we drove over to Barnes and Noble where he bought 3 books. (We are. Really into books the...
Be Strong in the Lord: Moving into May
http://beth-barham.blogspot.com/2015/05/good-riddance-april.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Friday, May 1, 2015. Two weeks ago, we had to deal with a child making fun of Reece at school. One day when I picked up Reece at after school care, I heard the child say to his mother, "Look at him, Mama! Just ask. But don't ask "What's WRONG with him? We are definitely enjoying the warmer weather around here!
Be Strong in the Lord: April 2014
http://beth-barham.blogspot.com/2014_04_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Thursday, April 24, 2014. Our Puerto Rican Adventure. A whole month since I last blogged? I don't know why I'm surprised. My life seems so chaotic at the moment that I can barely find time to eat. Don't worry, I still do. I said "barely." Food is one of my top priorities! This is at the nature reserve where w...
Be Strong in the Lord: Preparing Ourselves
http://beth-barham.blogspot.com/2015/05/preparing-ourselves.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Monday, May 18, 2015. What if I can't throw a football anymore? A surgery that will help my legs to be faster so that I don't run like I do now? If someone tries to kill you, make sure I am right there with you.". In ending this post, I ask for specific prayers as we prepare for Friday. Thank you to everyone ...
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Little E's Journey
My daughter was recently diagnosed with Escobar Syndrome (Multiple pteryrium syndrome), I am writing this blog in the hope of meeting other families who have been or are going through a similar situation. CHRNG gene, Escobar syndrome, joint contractures, multiple pterygium, polyhydramnios, poorly lungs, rare genetic syndromes, translocation Location: Essex, UK. Friday, 1 November 2013. The time to make a decision is coming. And I keep thinking how will I cope? They all sound braver than me. I got asked t...
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A wanna-be jet-setting mum's travel postcard blog. UNESCO World Heritage Sites. US States Map Cards. 5 Breweries You Should Visit In Ireland. Irish beer is renowned for its quality and many of the world’s best-known beer brands originated from Ireland. Beer has a long tradition in Ireland and some of the best-known Irish beer brands include Murphy’s Irish Stout, Smithwick’s Irish Ale, and O’Hara’s Celtic Stout. We’ve prepared a list of top five breweries you should visit while staying in Ireland. A vacat...
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