littlejsjourney.blogspot.com
Little J's Journey: Crossing All of Our Fingers and Toes
http://littlejsjourney.blogspot.com/2014/10/crossing-all-of-our-fingers-and-toes.html
Wednesday, October 8, 2014. Crossing All of Our Fingers and Toes. I'm not very good at being patient. I'm not very good at dealing with things that are out of my control. I kind of obsess about it and freak out. And I've currently gone off my anxiety meds. Bad idea! So whatever your beliefs, please pray with us, hope with us. We need a miracle, and we know with your love and support God can provide us with one, again. We love you and thank you for all of your love and support. October 9, 2014 at 9:35 PM.
isthisbug.blogspot.com
This Bug's Life: First, Do No What?
http://isthisbug.blogspot.com/2015/06/first-do-no-what.html
Seizure Facts and Myths. First, Do No What? 160;Sunday, June 28, 2015. I was cc'd on an email thread today and felt the need to respond. Only because I believe the spin on this issue needs to stop, and stop NOW before it gets embarrassing. The email had this statement highlighted in it:. Possibly of most concern is that some families are now opting out of proven treatments, such as surgery or the ketogenic diet, or newer antiseizure medications because they have put all their hope in CBD oils. Parents wa...
littlejsjourney.blogspot.com
Little J's Journey: Genetics!!!!
http://littlejsjourney.blogspot.com/2014/09/genetics.html
Tuesday, September 9, 2014. Today, I was a mess. I was literally shaking with anxiety. I hate that so much can ride on one person and one appointment. We get ONE hour every 12-18 months to come up with a testing plan towards finding a diagnosis. What if the doc is having a bad day? What if he's running late? What if technology is down? What if I piss him off? Soo much can make an appointment turn badly, and there is little to do but wait for the next one.18 months down the road. I seriously thought about...
littlejsjourney.blogspot.com
Little J's Journey: Life is a Rollercoaster
http://littlejsjourney.blogspot.com/2015/04/life-is-rollercoaster.html
Monday, April 27, 2015. Life is a Rollercoaster. Life is a Rollercoaster. I'm trying to hold on; sometimes I hold my breath and close my eyes, but I'm trying to enjoy the ride. Sometimes the scariest part is the incline, knowing what is coming and the anticipating the fear of falling. Sometimes the worst part is the fall. It's inevitable. You lack control. The pit in your stomach can feel like a thrill or it can make you want to vomit. I'm finally riding those small hills right now, and it feels great.
isthisbug.blogspot.com
This Bug's Life: May 2015
http://isthisbug.blogspot.com/2015_05_01_archive.html
Seizure Facts and Myths. Little more than nothing. 160;Sunday, May 17, 2015. Do you ever feel like no matter what you do, life has other plans? No matter how much diligence, effort, study and action you engage in, it means nothing to the universe? Yea, me too. 160;Links to this post. What's a little recess among friends? 160;Monday, May 4, 2015. Maybe it's the moon, maybe it's the weather, but Bug's seizures have picked up a little. Still, not horrible but 4 yesterday and sitting at only 1 today. That ma...
littlejsjourney.blogspot.com
Little J's Journey: October 2014
http://littlejsjourney.blogspot.com/2014_10_01_archive.html
Thursday, October 30, 2014. Too Much Brain to Contain. But the battle isn't over. There is still not enough room. His brain stem is still tight, but the doctors don't think they could do any better if they went back in. Jayson is just very small back in his brain stem area. But the brain stem is no longer the only issue. Jayson's head circumference is just barely over 45 centimeters. That's small, folks. That is off the charts small, and it has been 45 centimeters since he was about 8 months old. Or is i...
littlejsjourney.blogspot.com
Little J's Journey: May 2015
http://littlejsjourney.blogspot.com/2015_05_01_archive.html
Tuesday, May 19, 2015. We've been on quite the journey. And within that journey are dozens of other journeys. Including our genetic testing journey. The journey for answers. Our journey for a diagnosis. Unfortunately, my optimism was crushed in this post. My husband soon returned home from work and brought in the mail. I noticed the return address from Primary Children's Hospital and KNEW it was the letter from our geneticist. I was ecstatic. It was three pages long! And I wish it were only the medical s...
isthisbug.blogspot.com
This Bug's Life: Longest. Week. Ever.
http://isthisbug.blogspot.com/2015/06/longest-week-ever.html
Seizure Facts and Myths. Longest. Week. Ever. 160;Tuesday, June 9, 2015. We received a phone call today, then an email, then a call to the EAU office. I had been busy getting stuff ready for membership meeting and got to returning the call later than I had intended. Although we know there is something genetically amiss with the Bugster, the thought of there actually being something found is foreign. That call led to this:. We need to verify the findings before we tell you what we are looking at. I can do...
isthisbug.blogspot.com
This Bug's Life: January 2015
http://isthisbug.blogspot.com/2015_01_01_archive.html
Seizure Facts and Myths. It's all about the eyes. 160;Saturday, January 31, 2015. The eyes may be the window to the soul, but with Autism, they are next to EVERYTHING *and* the soul. You can see what isn't there and as much as you can see what is. That was almost 3 years ago. Each year gets better and better and then came the CBD. Since starting that 4 months ago, he doesn't just look at us, he seeks us out. He WANTS us to look at him. 160;Links to this post. 160;Tuesday, January 27, 2015. He is seizing ...
