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Living with Landau-Kleffner Syndrome

Friday, June 21, 2013. Long time, no blog, but much to write about.enjoy! I have so much to say.why do I wait so long to blog? Life doesn't slow down, especially when it comes to Dray! Where do I start? He is now on 12.5 mg clobazam at night, 10 mg Revlamid every other day (a drug that is supposed to have similar effects as steroids, but with out the nasty side effects), and a lot of depakote (can't remember exactly how much). Who knows.and I shouldn't bother thinking about it. Sowe will go back to Sacra...

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Living with Landau-Kleffner Syndrome | mydraybear.blogspot.com Reviews
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Friday, June 21, 2013. Long time, no blog, but much to write about.enjoy! I have so much to say.why do I wait so long to blog? Life doesn't slow down, especially when it comes to Dray! Where do I start? He is now on 12.5 mg clobazam at night, 10 mg Revlamid every other day (a drug that is supposed to have similar effects as steroids, but with out the nasty side effects), and a lot of depakote (can't remember exactly how much). Who knows.and I shouldn't bother thinking about it. Sowe will go back to Sacra...
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Living with Landau-Kleffner Syndrome | mydraybear.blogspot.com Reviews

https://mydraybear.blogspot.com

Friday, June 21, 2013. Long time, no blog, but much to write about.enjoy! I have so much to say.why do I wait so long to blog? Life doesn't slow down, especially when it comes to Dray! Where do I start? He is now on 12.5 mg clobazam at night, 10 mg Revlamid every other day (a drug that is supposed to have similar effects as steroids, but with out the nasty side effects), and a lot of depakote (can't remember exactly how much). Who knows.and I shouldn't bother thinking about it. Sowe will go back to Sacra...

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mydraybear.blogspot.com mydraybear.blogspot.com
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Living with Landau-Kleffner Syndrome: IVIG News and Details...

http://www.mydraybear.blogspot.com/2010/01/ivig-news-and-details.html

Friday, January 1, 2010. IVIG News and Details. January 1, 2010 at 8:14 PM. Thank you so much for the detailed update. I so hope that this procedure will make a difference for Dray. Hes my hero.truly. Love you guys. January 2, 2010 at 10:26 PM. Why does an innocent little child have to go through this? And why do you and Todd have to go through this too? But its so sweet to read how well Dray does and how brave he is. January 15, 2010 at 12:24 PM. Subscribe to: Post Comments (Atom). I signed up for Italy!

2

Living with Landau-Kleffner Syndrome: Dray's Birthday!

http://www.mydraybear.blogspot.com/2011/08/drays-birthday.html

Saturday, August 13, 2011. He loves his dad! Only problem is that he now thinks he is old enough to do everything. he says, "I'm 6 now, I can stay home by myself, or I can light fireworks." Oh dear! What a sweet little boy. can you tell we love him so much? He is constantly amazing us, and we can't wait for more! August 29, 2011 at 3:40 AM. Elise van Keulen (from The Hague, Holland). October 18, 2011 at 9:24 PM. February 8, 2012 at 11:08 PM. Subscribe to: Post Comments (Atom). When you're going to have a...

3

Living with Landau-Kleffner Syndrome: Little bit of good news... again...

http://www.mydraybear.blogspot.com/2010/10/little-bit-of-good-news-again.html

Wednesday, October 20, 2010. Little bit of good news. again. I mailed the EEG to Dr. Chez immediately. I was just informed a minute ago that my assessment was right on. Anyway, Dr. Chez wanted to start tapering a little. So, we'll start tapering down a bit. Hopefully that will relieve him a little of some of these nasty side effects. I love steroids and I hate them. I have difficult feelings to reconcile with on this medication. Scared mom from cali. October 25, 2010 at 8:22 AM. Hola mi nombre es Lorena,...

4

Living with Landau-Kleffner Syndrome: Small update, but much more to come....I know you are all excited!!

http://www.mydraybear.blogspot.com/2013/01/small-update-but-much-more-to-comei.html

Friday, January 18, 2013. Small update, but much more to come.I know you are all excited! Dr Chez found a seizure spike starting up again in the right temporal lobe. He called it benign, but are there benign seizures? His teachers know that he has learning problems, but they also praised him for the progress that he has made. He went from getting 1 or 2 out of 20 spelling words correct to only missing 3 or 4. These spelling words are not easy words either.I was blown away. His writing and...We still have...

5

Living with Landau-Kleffner Syndrome: June 2013

http://www.mydraybear.blogspot.com/2013_06_01_archive.html

Friday, June 21, 2013. Long time, no blog, but much to write about.enjoy! I have so much to say.why do I wait so long to blog? Life doesn't slow down, especially when it comes to Dray! Where do I start? He is now on 12.5 mg clobazam at night, 10 mg Revlamid every other day (a drug that is supposed to have similar effects as steroids, but with out the nasty side effects), and a lot of depakote (can't remember exactly how much). Who knows.and I shouldn't bother thinking about it. Sowe will go back to Sacra...

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VDB Family: Long Island, NY

http://sharkvdb.blogspot.com/2015/07/long-island-ny.html

Thursday, July 2, 2015. Long Island, NY. So once again I'm WAYYYY behind on blogging and journaling what we have been up to lately. So in an effort to remember what we've done, a few quick pics and posts about the last few months. We took a three day weekend trip to Long Island, NY to visit Clark's sister Diane. Connor was unbelievably sick the whole weekend. The car ride out there was miserable. He was crying pretty much the 5 hour trip, he was so feverish and just miserable, poor kid. Long Island, NY.

sharkvdb.blogspot.com sharkvdb.blogspot.com

VDB Family: May 2014

http://sharkvdb.blogspot.com/2014_05_01_archive.html

Thursday, May 15, 2014. Found a huge refrigerator box in our trash room. decided to turn it into a car. why I think I'm crafty, I'm not sure, because they never turn out like the ones I see on Pinterest (my sister Shannon got me hooked on this website). By the end of the day, the wheels were off, the paper ripped off and the back of the car gone :) Guess it was fun while it lasted. Shelly Van Den Berghe. This picture is absolutely adorable. I love everything about it. Shelly Van Den Berghe.

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VDB Family: Connor has an annoucement...

http://sharkvdb.blogspot.com/2015/07/connor-has-annoucement.html

Thursday, July 2, 2015. Connor has an annoucement. Baby #2 Van Den Berghe is expected to arrive early October. We've excited. What do we want? Hard to say. With Connor, I wanted a boy 100%, but I'm really fine with whatever this time around. For Connor's sake, I want a boy, but we'd be perfectly happy with a girl too. So this post I guess was supposed to have uploaded months ago.so I'll keep what I wrote and update from here. We are having a girl! Shelly Van Den Berghe. Subscribe to: Post Comments (Atom).

sharkvdb.blogspot.com sharkvdb.blogspot.com

VDB Family: Connor's Farm

http://sharkvdb.blogspot.com/2015/07/connors-farm.html

Wednesday, July 22, 2015. Last weekend we headed to Connor's farm in Danvers, MA. They were having a blueberry/raspberry festival. It was suppose to rain (thankfully it didn't), but the cloud cover was much appreciated. Once those disappeared in the afternoon, it got way to hot, thus we left. Overall it was a great time. And Connor passed out as soon as we got back in the car :). He was in tractor/car/truck heaven. Our attempt at a family photo. Shelly Van Den Berghe. Subscribe to: Post Comments (Atom).

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VDB Family: May 2015

http://sharkvdb.blogspot.com/2015_05_01_archive.html

Tuesday, May 12, 2015. The BEST. Worst. Day ever. I decided I was going to be brave and take Connor to the beach by myself. I had invited a few people, but nobody could go, so I packed the car and off we went. It was beautiful. 70s and a little breeze. We practically had the whole beach to ourselves. I was trying so hard to just be fun and let him be a kid. We were running around playing beach soccer, running up as close to the waves as possible, and then running away before they got us. So then I spent ...

byulife.blogspot.com byulife.blogspot.com

A New Beginning: April 2010

http://byulife.blogspot.com/2010_04_01_archive.html

Saturday, April 24, 2010. NBA Playoffs: Bulls vs Cavs. Clark got us tickets to the game. It was way fun and a really good game. The bulls actually won, 108-105. A typical Saturday in Chicago. Then we walked around for a bit before meeting up with some friends for dinner. Wings and sandwiches. Delicious. This restaurant was actually on tv: Man vs Food. We decided to check it out. The wings were great, the sandwich just ok. We used the money mom gave us for Christmas to help pay for the night!

byulife.blogspot.com byulife.blogspot.com

A New Beginning: Christmas in a Nut Shell

http://byulife.blogspot.com/2010/01/christmas-in-nut-shell.html

Friday, January 15, 2010. Christmas in a Nut Shell. Looks like we had a lot of fun, sad everyone else missed it! I love the pic of you, mom, and mckenna. so cute! January 25, 2010 at 3:36 PM. Subscribe to: Post Comments (Atom).

byulife.blogspot.com byulife.blogspot.com

A New Beginning: One Crazy, Busy Week

http://byulife.blogspot.com/2010/04/one-crazy-busy-week.html

Saturday, April 24, 2010. One Crazy, Busy Week. Monday: Thank-a-thon for Clark's school. Thanking people for donating money to Northwestern. I love when I volunteer: I get free food and a $20 gift certificate to Barnes and Noble. You can't beat that. Tuesday: Can't remember :). Wednesday: White Sox game (I forgot my camera). Blogger is not letting me upload my video right now. Clark did a magic trick and I convinced him to do a musical cup routine with me. Subscribe to: Post Comments (Atom).

byulife.blogspot.com byulife.blogspot.com

A New Beginning: NBA Playoffs: Bulls vs Cavs

http://byulife.blogspot.com/2010/04/nba-playoffs-bulls-vs-cavs.html

Saturday, April 24, 2010. NBA Playoffs: Bulls vs Cavs. Clark got us tickets to the game. It was way fun and a really good game. The bulls actually won, 108-105. You two are such a good looking couple. Congrats! Its been so long, how are you? Email me sometime: bebedulcemobiles@gmail.com. June 13, 2010 at 10:16 PM. Subscribe to: Post Comments (Atom).

byulife.blogspot.com byulife.blogspot.com

A New Beginning: Carrot Cake is so Yummy

http://byulife.blogspot.com/2010/01/carrot-cake-is-so-yummy.html

Friday, January 15, 2010. Carrot Cake is so Yummy. Hmmm Hey I miss you! I think we need to chit chat. Nothing in particular, just need to catch up! January 19, 2010 at 10:22 PM. I am the ONLY one in my house that loves it - so of course it is never welcome- Dang it! Come over and well share some sometime. :) Cute picture btw! February 5, 2010 at 1:48 PM. Subscribe to: Post Comments (Atom).

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Living with Landau-Kleffner Syndrome

Friday, June 21, 2013. Long time, no blog, but much to write about.enjoy! I have so much to say.why do I wait so long to blog? Life doesn't slow down, especially when it comes to Dray! Where do I start? He is now on 12.5 mg clobazam at night, 10 mg Revlamid every other day (a drug that is supposed to have similar effects as steroids, but with out the nasty side effects), and a lot of depakote (can't remember exactly how much). Who knows.and I shouldn't bother thinking about it. Sowe will go back to Sacra...

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