myelindisorders.org myelindisorders.org

MYELINDISORDERS.ORG

MDBP

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Provide second opinions for patients with unsolved white matter disease ( Virtual Second Opinion Program. And rapid access to clinical experts and researchers in leukodystrophies ( Centers of Excellence in Leukodystrophy and Leukoencephalopathy (CELLs). Provide Connections to Education and Resources. The Le...

http://www.myelindisorders.org/

WEBSITE DETAILS
SEO
PAGES
SIMILAR SITES

TRAFFIC RANK FOR MYELINDISORDERS.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

June

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Friday

TRAFFIC BY CITY

CUSTOMER REVIEWS

Average Rating: 3.3 out of 5 with 9 reviews
5 star
1
4 star
3
3 star
4
2 star
0
1 star
1

Hey there! Start your review of myelindisorders.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

Desktop Preview Tablet Preview Mobile Preview

LOAD TIME

CONTACTS AT MYELINDISORDERS.ORG

Children's Research Institute

Joseph Lin

111 Mich●●●●●●●●enue, NW

Was●●●ton , DC, 20010

US

1.20●●●●3244
1.20●●●●6014
jl●●@cnmcresearch.org

View this contact

Children's Research Institute

Joseph Lin

111 Mich●●●●●●●●enue, NW

Was●●●ton , DC, 20010

US

1.20●●●●3244
1.20●●●●6014
jl●●@cnmcresearch.org

View this contact

Children's Research Institute

Joseph Lin

111 Mich●●●●●●●●enue, NW

Was●●●ton , DC, 20010

US

1.20●●●●3244
1.20●●●●6014
jl●●@cnmcresearch.org

View this contact

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

DOMAIN REGISTRATION INFORMATION

REGISTERED
n/a
UPDATED
2013 August 26
EXPIRATION
EXPIRED REGISTER THIS DOMAIN

BUY YOUR DOMAIN

Network Solutions®

NAME SERVERS

1
ns1.nameresolve.com
2
ns2.nameresolve.com
3
ns3.nameresolve.com
4
ns4.nameresolve.com

REGISTRAR

Domain.com, LLC (R1915-LROR)

Domain.com, LLC (R1915-LROR)

WHOIS : whois.publicinterestregistry.net

REFERRED :

CONTENT

SCORE

6.2

PAGE TITLE
MDBP | myelindisorders.org Reviews
<META>
DESCRIPTION
Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Provide second opinions for patients with unsolved white matter disease ( Virtual Second Opinion Program. And rapid access to clinical experts and researchers in leukodystrophies ( Centers of Excellence in Leukodystrophy and Leukoencephalopathy (CELLs). Provide Connections to Education and Resources. The Le...
<META>
KEYWORDS
1 myelin disorders
2 virtual 2nd opinions
3 cells
4 sample shipping
5 education/resources
6 leukodystrophy profile
7 investigator forum
8 glossary
9 medical providers
10 goals
CONTENT
Page content here
KEYWORDS ON
PAGE
myelin disorders,virtual 2nd opinions,cells,sample shipping,education/resources,leukodystrophy profile,investigator forum,glossary,medical providers,goals,and leukoencephalopathy,education resources,myelin disorders program,terms of use
SERVER
Apache
POWERED BY
PHP/5.1.6
CONTENT-TYPE
utf-8
GOOGLE PREVIEW

MDBP | myelindisorders.org Reviews

https://myelindisorders.org

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Provide second opinions for patients with unsolved white matter disease ( Virtual Second Opinion Program. And rapid access to clinical experts and researchers in leukodystrophies ( Centers of Excellence in Leukodystrophy and Leukoencephalopathy (CELLs). Provide Connections to Education and Resources. The Le...

INTERNAL PAGES

myelindisorders.org myelindisorders.org
1

MDBP-Virtual 2nd Opinions

http://www.myelindisorders.org/v2opinion.aspx

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Virtual Second Opinion Program. The Virtual Second Opinion Program. Provides patients, their caregivers and medical providers with second opinions via a web based interface that shares medical records and neuroimaging (MRI or CT) with experts in leukodystrophy. If you do not participate you may still seek c...

2

MDBP - Investigator Forum

http://www.myelindisorders.org/forum.aspx

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Access to the Investigator Forum. Section is restricted to accepted members of the Myelin Disorders Bioregistry Project (MDBP). For information on joining the MDBP, please contact us at myelin@cnmc.org. Please enter login name. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org.

3

MDBP - Leukodystrophy Profile

http://www.myelindisorders.org/profile.aspx

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Allows all persons living with leukodystrophy to join the Myelin Disorders Bioregistry Project. What do I need to do? 1 Please fill out the registry form giving your permission for our staff to contact you.( fill out the form now. 2 Talk to our staff over the phone to give your permission ( consent.

4

Forum - Information for Sending Records and Samples

http://www.myelindisorders.org/sampleShip.aspx

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Information for Sending Records and Samples. Please send all relevant medical records (clinic notes, lab results, genetic testing results), as well as the discs for all MRI/CT scans to:. Children’s National Medical Center. Neurology Department, 4th Floor. 111 Michigan Ave NW. Washington, DC 20010.

5

MDBP - Education-Resources

http://www.myelindisorders.org/resources.aspx

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Enter a link here. Connect to Education and Resources. And get answers to common questions about leukodystrophies. With information on specific disorders and testing. Interested in more information on a leukodystrophy? And sometimes inherited, and can affect more than one person in family. In leukodystrophi...

UPGRADE TO PREMIUM TO VIEW 4 MORE

TOTAL PAGES IN THIS WEBSITE

9

OTHER SITES

myelincommunications.info myelincommunications.info

myelincommunications.info is coming soon

Is a totally awesome idea still being worked on.

myelincommunications.mobi myelincommunications.mobi

myelincommunications.mobi is coming soon

Is a totally awesome idea still being worked on.

myelincommunications.net myelincommunications.net

myelincommunications.net is coming soon

Is a totally awesome idea still being worked on.

myelincommunications.org myelincommunications.org

myelincommunications.org is coming soon

Is a totally awesome idea still being worked on.

myelinconsulting.com myelinconsulting.com

Parked at Loopia

This domain has been purchased and parked by a customer of Loopia. Use LoopiaWHOIS. To view the domain holder's public information. Are you the owner of the domain and want to get started? Login to Loopia Customer zone. And actualize your plan. Register domains at Loopia. Protect your company name, brands and ideas as domains at one of the largest domain providers in Scandinavia. Search available domains at loopia.com. Get full control of your domains with LoopiaDNS. Create your website with WordPress.

myelindisorders.org myelindisorders.org

MDBP

Myelin Disorders Bioregistry Project. Phone: 202-476-6230 Fax: 202-476-2864 E-mail: myelin@cnmc.org. Turn on more accessible mode. Skip to main content. Turn off more accessible mode. Help Us Do More. Provide second opinions for patients with unsolved white matter disease ( Virtual Second Opinion Program. And rapid access to clinical experts and researchers in leukodystrophies ( Centers of Excellence in Leukodystrophy and Leukoencephalopathy (CELLs). Provide Connections to Education and Resources. The Le...

myeline.pro myeline.pro

Myeline | The other way to win

What you will win with us. In a market in constant evolution, the agility necessary companies to distance themselves too often contradicts the need to confront a diversified and ever more aggressive competition. Outsourcing to experts becomes obvious. Myeline provides a comprehensive service offer to accompany effectively your transformation strategy. To answer to complex stakes. Transformation of the intellectual and commercial capital. New cultural zone penetration. From the brain to the terrain.

myelinedu27.skyrock.com myelinedu27.skyrock.com

myelinedu27's blog - Blog de myelinedu27 - Skyrock.com

08/09/2008 at 2:01 AM. 01/04/2012 at 8:45 AM. Subscribe to my blog! Voila Chloé , elle est arrivée le 20 Mars 2012 à 18h34 , la plus belle fleurs du printemps! Don't forget that insults, racism, etc. are forbidden by Skyrock's 'General Terms of Use' and that you can be identified by your IP address (66.160.134.3) if someone makes a complaint. Please enter the sequence of characters in the field below. Posted on Sunday, 01 April 2012 at 8:45 AM. Chloé qui prend une p'tite pause. Don't forget that insults,...

myelinet.fr myelinet.fr

Annonces > Petites annonces

Apache is functioning normally.

myelinhealth.mobi myelinhealth.mobi

Hover

Http:/ www.theweathernetw o. Http:/ www.imdb.com. Hover lets you easily create simple ways to access your digital life.

myelinhealthcare.biz myelinhealthcare.biz

Hover

Http:/ www.theweathern e. Http:/ www.imdb.com. Hover lets you easily create simple ways to access your digital life.