myjuliepie.blogspot.com

Cystic.

Thursday, December 23, 2010. I've lost track of the weeks. I just wish that in the midst of all this holiday cheer and thanksgiving, I could tell my donor's family how much they have given me. I'm so sorry for their loss, and that they are celebrating without their loved one. I hope that despite it all, they can be thankful as well, knowing that they have allowed me and the other organ recipients a new chance at life. It really is a very merry christmas. Tuesday, November 16, 2010. We missed the first sn...

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Cystic. | myjuliepie.blogspot.com Reviews

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Thursday, December 23, 2010. I've lost track of the weeks. I just wish that in the midst of all this holiday cheer and thanksgiving, I could tell my donor's family how much they have given me. I'm so sorry for their loss, and that they are celebrating without their loved one. I hope that despite it all, they can be thankful as well, knowing that they have allowed me and the other organ recipients a new chance at life. It really is a very merry christmas. Tuesday, November 16, 2010. We missed the first sn...

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1 posted by j

2 1 comment

3 labels bronch

4 holiday

5 post tx

6 prograf

7 10 week update

8 without being tired

9 no comments

10 labels beth

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posted by j,1 comment,labels bronch,holiday,post tx,prograf,10 week update,without being tired,no comments,labels beth,grad school,greg,haley,road trip,much needed,vacation,denial,labels greg,steroids,6 weeks,that's it,insulin,sleep,labels flute,cystic

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Cystic. | myjuliepie.blogspot.com Reviews

https://myjuliepie.blogspot.com

Thursday, December 23, 2010. I've lost track of the weeks. I just wish that in the midst of all this holiday cheer and thanksgiving, I could tell my donor's family how much they have given me. I'm so sorry for their loss, and that they are celebrating without their loved one. I hope that despite it all, they can be thankful as well, knowing that they have allowed me and the other organ recipients a new chance at life. It really is a very merry christmas. Tuesday, November 16, 2010. We missed the first sn...

INTERNAL PAGES

myjuliepie.blogspot.com

1

Cystic.: 6 weeks? that's it?

http://myjuliepie.blogspot.com/2010/10/6-weeks-thats-it.html

Thursday, October 21, 2010. I had my last visiting nurse appointment this afternoon :). STILL CANT DRIVE AND IT MAKES ME ANGRY. THESE ARE ANGRY WORDS. They told me to have a sleep study done. not, oh here, we'll do something to help you. nope, "we know you can't sleep and sleep is important but we aren't going to do anything. go have a sleep study done. bye." aaaaaaaargh. Haley is up and walking and sending texts and all that good stuff! They are hoping to move her out of the ICU tomorrow!

2

Cystic.: clear the roads, i can drive :)

http://myjuliepie.blogspot.com/2010/11/clear-roads-i-can-drive.html

Tuesday, November 2, 2010. Clear the roads, i can drive :). 8 weeks ago I had my transplant. Finally, after all this time, I can drive again! I called the clinic to see if they had any openings for tomorrow (well, later today ha ha) but they were full. so I called Ellen back and asked if I could drive because it has been the full 8 weeks, and she said YES. I was ready to put up a fight, but it was not an issue :). Haley was discharged from the hospital :) 16 days for her! How awesome is this?

3

Cystic.: October 2010

http://myjuliepie.blogspot.com/2010_10_01_archive.html

Friday, October 29, 2010. Hmmm summery for the past week or so: spent last weekend in Newport. So much fun! We had good weather and were able to see some mansions and do the cliff walk and goat island and some park that I forgot the name of. It was nice. Hit another prednisone lowering- down to 17.5! With that came normal blood sugars! I did need a unit last night after dinner, but I also had a margarita. :). Went to trivia last night and my team won! I was supposed to see my psychiatrist this past Monda...

4

Cystic.: 10 week update

http://myjuliepie.blogspot.com/2010/11/10-week-update.html

Tuesday, November 16, 2010. I meet with ID next week to see if i have to keep taking voriconazole for the aspergillus i cultured before tx, and to see how much longer they want me on the valtrex since both the donor and I were CMV- negative. The Dr. also suggested that I can start thinking about getting my port removed in a month or two! Last weekend Greg and I drove to Virginia to visit Beth and Kyle! Kyle commented on my wimpy cough. it's true! I cough like one of those people I used to make fun of!

5

Cystic.: so much good news

http://myjuliepie.blogspot.com/2010/10/so-much-good-news.html

Saturday, October 16, 2010. So much good news. I'm reposting this picture in honor of my friend haley (the girl on the right), who is at the moment in the middle of getting her very own new set of lungs! Dr camp has seriously been busy this year! The list is whipping along, and i told Haley that just the other day when I talked to her. I applied for the spring semester of grad school (for chemistry, focus in biochem) and have 3 professors (including the chair of the chem department, who was my research a...

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Cystic.

Thursday, December 23, 2010. I've lost track of the weeks. I just wish that in the midst of all this holiday cheer and thanksgiving, I could tell my donor's family how much they have given me. I'm so sorry for their loss, and that they are celebrating without their loved one. I hope that despite it all, they can be thankful as well, knowing that they have allowed me and the other organ recipients a new chance at life. It really is a very merry christmas. Tuesday, November 16, 2010. We missed the first sn...

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