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My Life Can't Wait

My Life Can't Wait is a campaign to raise awareness of Morquio A and highlight the importance of publicly-funded access to VIMIZIM, the only Health Canada approved treatment option for individuals living with this debilitating, progressive and life-limiting disease.

http://www.mylifecantwait.ca/

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My Life Can't Wait | mylifecantwait.ca Reviews
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My Life Can't Wait is a campaign to raise awareness of Morquio A and highlight the importance of publicly-funded access to VIMIZIM, the only Health Canada approved treatment option for individuals living with this debilitating, progressive and life-limiting disease.
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2 treatment options
3 my morquio hero
4 nominate your hero
5 the partnership
6 video diaries
7 advocate
8 my meeting update
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My Life Can't Wait | mylifecantwait.ca Reviews

https://mylifecantwait.ca

My Life Can't Wait is a campaign to raise awareness of Morquio A and highlight the importance of publicly-funded access to VIMIZIM, the only Health Canada approved treatment option for individuals living with this debilitating, progressive and life-limiting disease.

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mylifecantwait.ca mylifecantwait.ca
1

Loïc | Communauté Morquio du Québec

http://www.mylifecantwait.ca/loic

Le syndrome de Morquio. Ma vie n’attend pas. Les Héros du Morquio. Calendrier des activités 2015 2016. Écrire à votre premier ministre et à votre ministre de la Santé. Envoyez un courriel à votre premier. Ministre et à votre ministre de la Santé. Envoyez un tweet aux décideurs. Partagez avec vos amis sur Facebook. Envoyez un tweet aux décideurs. Drgbarrette Patients atteints du #MorquioA demandent remboursement et accès universel au seul et unique traitement #RAMQ #polqc #assnat. Santé Canada vient tout ...

2

Carnet de rencontres | Communauté Morquio du Québec

http://www.mylifecantwait.ca/mobilisation/carnet-de-rencontres

Le syndrome de Morquio. Ma vie n’attend pas. Les Héros du Morquio. Calendrier des activités 2015 2016. Écrire à votre premier ministre et à votre ministre de la Santé. Si vous avez récemment rencontré votre député, veuillez complétez ce formulaire. Votre nom (et celui de ceux qui vous ont accompagné). Date de la rencontre. Nom du député rencontré. Expliquez, en quelques mots, votre lien avec le Morquio de type A (patient, aidant naturel, parent, ami). Quelle a été la durée de votre rencontre? Cliquez sur...

3

Laurie | Communauté Morquio du Québec

http://www.mylifecantwait.ca/laurie

Le syndrome de Morquio. Ma vie n’attend pas. Les Héros du Morquio. Calendrier des activités 2015 2016. Écrire à votre premier ministre et à votre ministre de la Santé. Envoyez un courriel à votre premier. Ministre et à votre ministre de la Santé. Envoyez un tweet aux décideurs. Partagez avec vos amis sur Facebook. Envoyez un tweet aux décideurs. Drgbarrette Patients atteints du #MorquioA demandent remboursement et accès universel au seul et unique traitement #RAMQ #polqc #assnat. C’est en 2012 que j’ai c...

4

Écrire à votre premier ministre et à votre ministre de la Santé | Communauté Morquio du Québec

http://www.mylifecantwait.ca/mobilisation/ecrire-a-votre-premier-ministre-et-a-votre-ministre-de-la-sante

Le syndrome de Morquio. Ma vie n’attend pas. Les Héros du Morquio. Calendrier des activités 2015 2016. Écrire à votre premier ministre et à votre ministre de la Santé. Écrire à votre premier ministre et à votre ministre de la Santé. Envoyez un courriel à votre premier ministre et au ministre de la Santé et des Services sociaux. Les personnes qui vivent avec le syndrome de Morquio de type IV A doivent avoir accès à VIMIZIM. Accessible grâce au régime public d’assurance médicaments (RAMQ). Envoyez un tweet...

5

Antony | Communauté Morquio du Québec

http://www.mylifecantwait.ca/antony

Le syndrome de Morquio. Ma vie n’attend pas. Les Héros du Morquio. Calendrier des activités 2015 2016. Écrire à votre premier ministre et à votre ministre de la Santé. Envoyez un courriel à votre premier. Ministre et à votre ministre de la Santé. Envoyez un tweet aux décideurs. Partagez avec vos amis sur Facebook. Envoyez un tweet aux décideurs. Drgbarrette Patients atteints du #MorquioA demandent remboursement et accès universel au seul et unique traitement #RAMQ #polqc #assnat. Aujourd’hui, Antony épro...

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My Life Can't Wait

My Life Can’t Wait. Who is a Morquio Hero? Email Your Premier & Health Minister. Email your Premier and Health Minister. Tweet to funding decision makers. Share with your network on Facebook. Tweet to funding decision makers. Click on one of the Tweets below to contact your Premier or Health Minister (you must be logged in/ log in to Twitter. Drgbarrette #MorquioA patients need publicly funded access to the first and only available treatment for their disease #RAMQ #polqc #assnat. Loïk & Louka. Our story...

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This site is marked private by its owner. If you would like to view it, you’ll need two things:. A WordPress.com account. Don’t have an account? All you need is an email address and password register here! Permission from the site owner. Once you've created an account, log in and revisit this screen to request an invite. If you already have both of these, great! Larr; Back to WordPress.com.

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