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Perfectly, Imperfect

Follow me on Instagram. Follow Me on Twitter. Tuesday, July 28, 2015. So, that happened! This is the first post of the year! So sorry it's been so long.). I have some pretty exciting news. So a couple months ago…. I got the opportunity to bring one of the songs I have written to life. I am so thankful for everyone that made it happen. It was an amazing experience and loved every second of it. Heres a sneak peak! Let me know what y'all think! Full version coming soon to an audio player. Https:/ www.yo...

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Perfectly, Imperfect | mylifemystorybysam.blogspot.com Reviews

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Follow me on Instagram. Follow Me on Twitter. Tuesday, July 28, 2015. So, that happened! This is the first post of the year! So sorry it's been so long.). I have some pretty exciting news. So a couple months ago…. I got the opportunity to bring one of the songs I have written to life. I am so thankful for everyone that made it happen. It was an amazing experience and loved every second of it. Heres a sneak peak! Let me know what y'all think! Full version coming soon to an audio player. Https:/ www.yo...

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Perfectly, Imperfect | mylifemystorybysam.blogspot.com Reviews

https://mylifemystorybysam.blogspot.com

Follow me on Instagram. Follow Me on Twitter. Tuesday, July 28, 2015. So, that happened! This is the first post of the year! So sorry it's been so long.). I have some pretty exciting news. So a couple months ago…. I got the opportunity to bring one of the songs I have written to life. I am so thankful for everyone that made it happen. It was an amazing experience and loved every second of it. Heres a sneak peak! Let me know what y'all think! Full version coming soon to an audio player. Https:/ www.yo...

INTERNAL PAGES

mylifemystorybysam.blogspot.com

1

Perfectly, Imperfect: So, that happened!!

http://mylifemystorybysam.blogspot.com/2015/07/so-that-happened.html

Follow Me on Twitter. Tuesday, July 28, 2015. So, that happened! This is the first post of the year! So sorry it's been so long.). I have some pretty exciting news. So a couple months ago…. I got the opportunity to bring one of the songs I have written to life. I am so thankful for everyone that made it happen. It was an amazing experience and loved every second of it. Heres a sneak peak! Let me know what y'all think! Full version coming soon to an audio player. July 28, 2015 at 4:56 AM. We have a talker!

2

Perfectly, Imperfect: The Sunshine State

http://mylifemystorybysam.blogspot.com/2014/03/the-sunshine-state.html

Follow Me on Twitter. Tuesday, March 25, 2014. So i figured i would write something. lol. I am doing well. I am not [thank you Jesus] running fevers anymore. Prayer works. Thank you. Everyone knock on wood [literally]. My spring break 2014 was spent in Florida and it was awesome! I go to see my best friend since kindergarten, see Rena, visited with my aunt, visited with my grandpa, made it down for the 5k at UCF [Thank you Kristen], and I went to the beach. And guess what? Chillin', breezin',.

3

Perfectly, Imperfect: February 2014

http://mylifemystorybysam.blogspot.com/2014_02_01_archive.html

Follow Me on Twitter. Friday, February 21, 2014. A Key to My Heart. It's been a while. Well, I am 19 now so thats cool I guess. I feel so old lol. Im doing pretty good but this post is going to focus on a request I got. A few people requested that I write about my hopes, dreams, fears, what my plans are as far as working/school, thoughts on love and life. So here goes nothing. I have big dreams. They don't scare me so maybe they're not big enough? Over thinking will be the death of me! Would I not exist?

4

Perfectly, Imperfect: December 2013

http://mylifemystorybysam.blogspot.com/2013_12_01_archive.html

Follow Me on Twitter. Sunday, December 29, 2013. You Know What They Say… 3 Times a Charm…haha NOT! Well, the test results came back and they weren't good. I also started running fevers since Friday night. I got directly admitted to Vanderbuilt on Saturday. This is my third time admitted in the last two months. This is cray cray! Seriously, they did not hit me hard enough with antibiotics the first time or the second time I was here, so maybe this time they will. They better! There is power in prayer.

5

Perfectly, Imperfect: March 2014

http://mylifemystorybysam.blogspot.com/2014_03_01_archive.html

Follow Me on Twitter. Tuesday, March 25, 2014. So i figured i would write something. lol. I am doing well. I am not [thank you Jesus] running fevers anymore. Prayer works. Thank you. Everyone knock on wood [literally]. My spring break 2014 was spent in Florida and it was awesome! I go to see my best friend since kindergarten, see Rena, visited with my aunt, visited with my grandpa, made it down for the 5k at UCF [Thank you Kristen], and I went to the beach. And guess what? Chillin', breezin',.

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biancasnewadventures.com

Bianca's Adventures: February 2015

http://www.biancasnewadventures.com/2015_02_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Saturday, February 28, 2015. Rare Disease Day - What Does A Rare Disease Look Like? Behind my daughter's gorgeous smile we have a monster lurking. Periodically it rears it's ugly head and tries to defeat us. However, it cannot break us down or apart! What does a rare disease look like? Like a happy go lucky tween who loves to sing, draw and act! Check out EB Research Partnership: www.ebresearchpartnership.org.

biancasnewadventures.com

Bianca's Adventures: March 2014

http://www.biancasnewadventures.com/2014_03_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Thursday, March 13, 2014. Knowing When It’s Time for an Esophagus Dilatation. Our symptoms have been the following:. Constant running to the bathroom to spit out food. Esophageal spasms that last anywhere from ½ an hour to an hour. Saliva accumulating to the point where it thickens and can’t be swallowed. Waking up with a drenched pillow. This go around I observed several things:. I will admit it – I was in denial for...

biancasnewadventures.com

Bianca's Adventures: November 2013

http://www.biancasnewadventures.com/2013_11_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Monday, November 18, 2013. It’s A Bloody Battle Every Single Day. (SLIGHTLY GRAPHIC). Even if they're already asleep! She is proof enough that in this world we must continue to push forward without a second thought of looking back. We’ve been blessed so many times over by her presence – there is nothing I would do differently in my life if ever given the chance…NOTHING AT ALL! The Remnants Of Today's Battle.

biancasnewadventures.com

Bianca's Adventures: October 2013

http://www.biancasnewadventures.com/2013_10_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Monday, October 28, 2013. Little Things Just Little Things. It's EB Awareness Week! In the name of creating awareness about the condition my beautiful daughter deals with on a daily basis I'm just doing a real quick blog regarding a few items around the house that buys us more quality time. Some might seem so minuet while others are crucial to our every day lives.okay ready.set.here we go. Why It's Funny: I'm not sure about...

biancasnewadventures.com

Bianca's Adventures: Rare Disease Day - What Does A Rare Disease Look Like?

http://www.biancasnewadventures.com/2015/02/rare-disease-day-what-does-rare-disease.html

The dance of life must go on, no matter how much the tune of the music changes.". Saturday, February 28, 2015. Rare Disease Day - What Does A Rare Disease Look Like? Behind my daughter's gorgeous smile we have a monster lurking. Periodically it rears it's ugly head and tries to defeat us. However, it cannot break us down or apart! What does a rare disease look like? Like a happy go lucky tween who loves to sing, draw and act! Check out EB Research Partnership: www.ebresearchpartnership.org. 169; Material...

biancasnewadventures.com

Bianca's Adventures: EB Awareness Week 2014 ~ Day 1 ~ Good Morning Sunshine...

http://www.biancasnewadventures.com/2014/10/eb-awareness-week-2014-day-1-good.html

The dance of life must go on, no matter how much the tune of the music changes.". Saturday, October 25, 2014. EB Awareness Week 2014 Day 1 Good Morning Sunshine. It’s the start of EB Awareness Week! And it’s time to Cause The Wave! For the start of the week on EB Awareness let me fill you in to some of the comments, statements or conversations you will only hear in a household that deals with EB – specifically RDEB (Recessive Dystrophic Epidermolysis Bullosa). 8221; - Me. 8220;I hope so! 8220;Bianca the ...

biancasnewadventures.com

Bianca's Adventures: EB Awareness Week 2014 ~ Day 3 ~ Some Wounds Don’t Always Heal With Time...(GRAPHIC PICTURES)

http://www.biancasnewadventures.com/2014/10/eb-awareness-week-day-3-some-wounds.html

The dance of life must go on, no matter how much the tune of the music changes.". Monday, October 27, 2014. EB Awareness Week 2014 Day 3 Some Wounds Don’t Always Heal With Time.(GRAPHIC PICTURES). It takes thinking outside of your comfort zone! Some wounds don’t always heal as quickly as they should and some wounds don’t ever heal at all! Or like Velcro missing the rough hooks on one side that does not adhere to the soft loops on the other. It’s important to remember that EB is RARE…is NOT CO...FRIENDS a...

biancasnewadventures.com

Bianca's Adventures: October 2014

http://www.biancasnewadventures.com/2014_10_01_archive.html

The dance of life must go on, no matter how much the tune of the music changes.". Monday, October 27, 2014. EB Awareness Week 2014 Day 3 Some Wounds Don’t Always Heal With Time.(GRAPHIC PICTURES). It takes thinking outside of your comfort zone! Some wounds don’t always heal as quickly as they should and some wounds don’t ever heal at all! Or like Velcro missing the rough hooks on one side that does not adhere to the soft loops on the other. It’s important to remember that EB is RARE…is NOT CO...FRIENDS a...

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About ME weee i love my life that God gave me. i dun care what ppl say about me. and i like the way just i am.this is definitely me.kakaka XD i love to SMILE a lot this is because i want everyone around me to be happpie *no fake smiles*. Like Everything that is important to me! And i love all of it. Family is my priority in my LIFE. Hate Seeing my family and friends get hurt or fighting. I HATE THAT! Well that is ME i guess. Now playing:. music code here. Friday, October 29, 2010. But at night did not we...

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mylifemystory83 | "Be, strong, be beautiful be women be you"

Be, strong, be beautiful be women be you. 29 december, 2014. Det var lääääännnge sen, nu hänger jag på instagram istället. Idag fick även vi lite snö, så vi passade på att åka pulka i trädgården. I år firade vi jul först med sambos släkt sen med min. Det var mysigt , men skönt att det är över. Alltid lika mycket stress, men roligt för barnen. Lillasyster är snart 6 månader tiden går alldeles för fort. Tyvärr är storebror fortfarande jätte svartsjuk, vi måste ha koll på honom hela tiden. Jag passar på och...

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My Life My Story. Do your children and grandchildren know your story? This packrat has learned that what the next generation will value most is not what we owned, but the evidence of who we were and the tales of how we loved. In the end, it's the family stories that are worth the storage.". Who do you want to remember? What do you want to be remembered for? If we don't take the time to record the things that are important to us they will be forgotten with time. DON'T WAIT TO PRESERVE YOUR LIFE STORY!

mylifemystorybysam.blogspot.com

Perfectly, Imperfect

Follow me on Instagram. Follow Me on Twitter. Tuesday, July 28, 2015. So, that happened! This is the first post of the year! So sorry it's been so long.). I have some pretty exciting news. So a couple months ago…. I got the opportunity to bring one of the songs I have written to life. I am so thankful for everyone that made it happen. It was an amazing experience and loved every second of it. Heres a sneak peak! Let me know what y'all think! Full version coming soon to an audio player. Https:/ www.yo...

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-Obiecujesz? -Obiecuję.

Środa, 13 lutego 2013. Coś późno ci się o mnie przypomniało". Z Mads robiłyśmy sobie zdjęcia i niektóre z nich były naprawdę śliczne. Wrzuciłyśmy jedno na facebooka i po chwili posypały się komentarze i lajki. Jeden chłopak z naszej szkoły, Mike Pierce, napisał mi: "Lexi, ale ty się zmieniłaś! Ślicznie, dziewczyny :D". A kim był Mike Pierce? Jeśli do mnie zaraz zadzwoni to nie wiem co zrobię- stwierdziłam. Zawsze po jakimś długim czasie milczenia dzwonił do mnie i błagał o drugą szansę. ZAWSZE. Wytrzeszc...