Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months--no more. He has managed to defy the odds placed against him. Zane is now ten.
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MY LIFE WITH ZANE | mylifewithzane.blogspot.com Reviews
https://mylifewithzane.blogspot.com
Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months--no more. He has managed to defy the odds placed against him. Zane is now ten.
mylifewithzane.blogspot.com
MY LIFE WITH ZANE: Going for a Record
http://mylifewithzane.blogspot.com/2015/02/going-for-record.html
MY LIFE WITH ZANE. Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months- no more. He has managed to defy the odds placed against him. Zane is now nine. 8220;Every day is a journey,. And the journey itself is home.”. 9829;♥♥. Enter your email address:. Zane in the News. East Valley Tribune Photo. Susan Oloier, Author. Our Life on the Road. So Crazy Broken-Hearted After All These Years. Love and a Leap of Faith. Susan Oloier, Author. As it stands r...
MY LIFE WITH ZANE: August 2014
http://mylifewithzane.blogspot.com/2014_08_01_archive.html
MY LIFE WITH ZANE. Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months- no more. He has managed to defy the odds placed against him. Zane is now nine. 8220;Every day is a journey,. And the journey itself is home.”. 9829;♥♥. Enter your email address:. Zane in the News. East Valley Tribune Photo. Susan Oloier, Author. Our Life on the Road. So Crazy Broken-Hearted After All These Years. Love and a Leap of Faith. Susan Oloier, Author. 8220;Red,̶...
MY LIFE WITH ZANE: October 2013
http://mylifewithzane.blogspot.com/2013_10_01_archive.html
MY LIFE WITH ZANE. Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months- no more. He has managed to defy the odds placed against him. Zane is now nine. 8220;Every day is a journey,. And the journey itself is home.”. 9829;♥♥. Enter your email address:. Zane in the News. East Valley Tribune Photo. Susan Oloier, Author. Our Life on the Road. So Crazy Broken-Hearted After All These Years. Love and a Leap of Faith. Susan Oloier, Author. One of Zane...
MY LIFE WITH ZANE: December 2014
http://mylifewithzane.blogspot.com/2014_12_01_archive.html
MY LIFE WITH ZANE. Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months- no more. He has managed to defy the odds placed against him. Zane is now nine. 8220;Every day is a journey,. And the journey itself is home.”. 9829;♥♥. Enter your email address:. Zane in the News. East Valley Tribune Photo. Susan Oloier, Author. Our Life on the Road. So Crazy Broken-Hearted After All These Years. Love and a Leap of Faith. Susan Oloier, Author. We all smile w...
MY LIFE WITH ZANE: Steady Stream of Appointments
http://mylifewithzane.blogspot.com/2015/04/steady-stream-of-appointments.html
MY LIFE WITH ZANE. Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months- no more. He has managed to defy the odds placed against him. Zane is now nine. 8220;Every day is a journey,. And the journey itself is home.”. 9829;♥♥. Enter your email address:. Zane in the News. East Valley Tribune Photo. Susan Oloier, Author. Our Life on the Road. So Crazy Broken-Hearted After All These Years. Love and a Leap of Faith. Susan Oloier, Author. Zane is finall...
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compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Time to Throw in the Towel
http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day
http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: We Just Don't Know...
http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Supports for Families Facing a Trisomy Diagnosis
http://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Supports for Families Facing a Trisomy Diagnosis. Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012. Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/. Https:/ www.facebook.com/groups/T18Mommies/. Living with Trisomy 13 Group Page. Https:/ www.facebook.com/groups/Trisomy13/. Trisomy 4 (and 9p deletion.
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: For My Angel Mommy Friends
http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: The "Go" Bag
http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Medical History Template
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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: What Is Trisomy 18?
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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Happy 11 Months!
http://compatiblewithjoy-trisomy18.blogspot.com/2011/05/happy-11-months.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Pertinent Medical History
http://compatiblewithjoy-trisomy18.blogspot.com/p/pertinent-medical-history.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...
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mylifewithyouharrystyles.blogspot.com
My Life With You
A Zene az életet fejezi ki, hisz elmondhatod vele a szerelmet és az elmúlást. 2014 június 18., szerda. Remélem tetszettek az eddigi fejezetek :) Próbálok színvonalas részeket írni és úgy tűnik, hogy néhány embernek tetszik az, amit csinálok :) El sem hiszitek, hogy ez mekkora boldogsággal tölt el, szóval IMÁDLAK BENNETEKET! 333 Nem is húzom tovább a szót, jó olvasását a 8. fejezethez! Dobtam felé egy párnát, amiért megijesztett. Adtál kulcsot, nem emlékszel? Húztam fel a szemöldököm, mire elnevette magát.
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I promise... I will never forget you [Justin Bieber Fanfiction]
Sophia elvesztette szerelmét egy autóbalesetben. Azóta minden este ír neki egy levelet, melyben elmeséli a fiúnak, hogy mi történt vele, s mennyire hiányzik neki. Ahogy az idő telik, a lány élete is felfordul, s mi történik akkor mikor belép életébe egy srác. egy srác, aki mindent megváltoztathat. Az írás nemcsak egy gondolat kifejezése, hanem az eltöprengés minden egyes szó jelentésén. Egyszerű sablon. Üzemeltető: Blogger.
MY LIFE WITH ZANE
MY LIFE WITH ZANE. Our son was diagnosed with Trisomy 18 five days after birth. We were told he probably would live for two months- no more. He has managed to defy the odds placed against him. Zane is now ten. 8220;Every day is a journey,. And the journey itself is home.”. 9829;♥♥. Enter your email address:. Zane in the News. East Valley Tribune Photo. Susan Oloier, Author. Our Life on the Road. Love and a Leap of Faith. Rock of the Family. Dancing in the Rain. T18 Awareness Day 2017. Susan Oloier, Author.
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My Life with Zhineng Qi Gong@ Tmn Desa / OUG - 学习智能之旅
My Life with Zhineng Qi Gong@ Tmn Desa / OUG - 学习智能之旅. Living and enjoying the greatness and benefits of Zhineng Qi Gong is what I think a blessing from my good karma. I spend my free time exploring and learning the treasured knowledge discovered and developed by Master Phang Ming and appreciating the great wisdom found in the art of Zhineng. I feel the joy to share what I have learned with friends who have the same interest as me. Friday, November 4, 2011. Zhineng Qigong For A Healthy Lifestyle. Ratio o...
mylifewithzoe | My journey through childraising, love and enlightenment
My journey through childraising, love and enlightenment. August 27, 2016. Do you think the only people who are people, are the people who look and think like you? What is it about our perception of reality that causes us to judge others based on a limited amount of information that they provide us with, through how they choose to act, think, and live their lives? Why is it that some of us feel drawn to be constantly watching or finding out what others are doing? How could I love such a person! If you fin...
زندگیم بدون من
یه روزی،یه جایی،یه جوری،یه کسی،یه چیزی. صبر داشته باش.صبرداشته باش. نوشته شده در جمعه بیستم خرداد ۱۳۹۰ساعت 11:38 توسط رها. دل که می بندی یادت باشد محکم نبندی او میرود تو می مانی و یک گره کور. نوشته شده در سه شنبه چهارم بهمن ۱۳۹۰ساعت 17:42 توسط رها. خروش و خشم توفان است و، دریا،. به هم می كوبد امواج رها را . دلی از سنگ می خواهد، نشستن،. تماشای هلاك موج ها را! نوشته شده در دوشنبه بیست و یکم شهریور ۱۳۹۰ساعت 18:47 توسط رها. شب ها كه دریا، می كوفت سر را. بر سنگ ساحل، چون سوگواران. تنهاتر از ماه، بر شاخساران.
My life with Multiple Sclerosis
My life with Multiple Sclerosis. The trials, hardships, successes and the need to persevere on with MS. Wednesday, January 1, 2014. January 2014 New year! First happy new year to everyone! My goal is to get back to an interventional radiologist to have a follow up ultrasound and see where I am at with my CCSVI surgery. 3 year anniversary coming up in February! So MRI on the 16th. With and without contrast as always. It appears 1:45 minutes in the tube with my hannibal head gear! Once that is complete I w...
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MY LITTLE LIFE
时间 滴答滴答的 过了两年 我也休息够了. 再见啦 以前的我 把自己给 更新. 继续我下一个旅程 开心的 独立的走完我的梦想！=）. Links to this post. 有时 不开心是也得 弯起嘴角 大笑. 有时 我总觉得 笨到 如此. 有时 我当他人是 好友 他们却当我是小丑. 有时 我要做得最好 却被没信心 打破了念头. 有时 我想得太开 却原谅了 身边的小人. 有时 我会笨到如此 相信曾经 在背后伤害过我的 人. 我很懦弱！几时才让我摆脱这一切！我真的真的真的很想大哭！我真的很想自己一个人的旅行去！ 我真的想把小人们给赶走！我真的真的很想 =（. 谁可以了解我？谁真的可以真心的对待我？谁谁谁？ Links to this post. 人生中最失望的不是家庭 不是爱情 不是学业 不是任何事. 幼稚的家伙！死远点！你误会我就别乱在其他人面前插我一刀！ 我对交朋友这东西 越来越不了解了 越来越失望了！ Links to this post. JJ Lin 林俊傑 - 學不會 ( OS 完整版 ). 一次爭吵 一個心結 累積著改變. 不是學不會 只是覺得愛太美 值得去沉醉 流淚.
