updesigns.com
News
http://www.updesigns.com/news.htm
Occasionally Microprocessor Designs is mentioned in the news. Follow the links to the respective press releases:. 1/25/2010 - Microprocessor Designs featured in the Burlington Free Press Business Monday. December 2009 - Revolutionizing Prosthetics Showcased in National Geographic. 4/28/06 - FDA Approves Genzyme's Myozyme. For All Patients with Pompe Disease. 3/31/2006 - Quantitative Muscle Test System Discussed on Jim Lehrer's News Hour. 9/8/2003 - Simbex announces the Head Impact Telemetry System (HITS).
rachelhaspompe.blogspot.com
My life with Pompe: I hope you dance
http://rachelhaspompe.blogspot.com/2009/05/i-hope-you-dance.html
Saturday, May 16, 2009. I hope you dance. It has been a long day. We just got home at around 1045pm. Courtney was sooo freaking adorable and did such a good job. I will post a pic or two once I find my camera cord. Tim was the best man and did such a wonderfull job. I was so proud of him. He did very well on the speech and ad libed really well. Everyone seemed to enjoy it. When It was time to head to the reception, it was POURING! You never know what the future holds and when you may not have the option.
rachelhaspompe.blogspot.com
My life with Pompe: July 2009
http://rachelhaspompe.blogspot.com/2009_07_01_archive.html
Saturday, July 18, 2009. Man, its been almost a month since I last posted! Tim got into Djibouti. Freaking relived he made it ok. We got to talk with him on Skype. This morning and he looks great. You would never know that he just got in from a 40 hour trip! He says its very hot, but not humid. This is pretty much what his trip was like. 2 hours to New York. 12 hour layover in JFK. 7 hour flight to Paris. 13 hour layover there. And then a 6 hour flight to Djibouti. Those of you who have FB. People ask me...
rachelhaspompe.blogspot.com
My life with Pompe: It Wedding Day!
http://rachelhaspompe.blogspot.com/2009/05/it-wedding-day.html
Saturday, May 16, 2009. Not mine obviously. Our good friends Wayne and Erica. Tim is the bestman and Courtney is the flower girl! I really hope she does well. I know she is only 2.5 and you can only expect but so much from a child her age, but I hope she does well. I also hope that her hair cooperates! It can be awfully crazy sometimes. I will post again tonight or tomorrow and let everyone know how it went. Subscribe to: Post Comments (Atom). Enter your email address:. Norfolk, Virginia, United States.
unitedpompe.com
United Pompe Foundation
http://www.unitedpompe.com/magazine.cfm
EP Magazine Article Living with Pompe Disease. EP Magazine Article Living With Pompe Disease. Exceptional Parent Magazine Sept. 2003. Living With Pompe's Disease. By Julia Steele Reid. What is Pompe's Disease? What Signaled a Problem? David and Kathy Hamlin knew that their son, Eric, had started walking a bit late (just before age two) and walked a bit oddly. Still, they didn't think much of it until one day when David took Eric with him to a doctor's appointment. Eric was three years old then. At the ne...
unitedpompe.com
United Pompe Foundation
http://www.unitedpompe.com/events.cfm
EP Magazine Article Living with Pompe Disease. 4th Annual Duke Pompe patient meeting. 2016 UPF/DUKE INFANTILE MEETING. 4th ANNUAL UPF/DUKE ADULT POMPE PATIENT MEEETING. POMPE MARATHON:My name is Paul McIntosh. I am 24 years old and I am a second year medical student at the University of North Carolina School of Medicine. Two years ago I was diagnosed with late onset Pompe disease. United States Pompe Community Update - October 17, 2014. UNITED STATES POMPE COMMUNITY UPDATE, AUGUST 1, 2014. AMICUS POMPE C...
unitedpompe.com
United Pompe Foundation
http://www.unitedpompe.com/jayden.cfm
EP Magazine Article Living with Pompe Disease. If you would like to make a donation in memory of JAYDEN TERRENCE JOHNSON, please specify Jaydens name on the donation. Please click here to make the donation. Jayden would have been 11 years old on April 10, 2014. He is one of oldest and longest treated Infantile Pompe patients in the world. And he began infusion treatments at Phoebe Sumter Hospital, so he could be closer to his home in Americus, GA. Like most all the children in the United States with Pomp...
unitedpompe.com
United Pompe Foundation
http://www.unitedpompe.com/articles2.cfm?Article_Selected=355
EP Magazine Article Living with Pompe Disease. The Team Behind the Treatment. By Marsha A. Green. But now, because of Myozyme - a treatment that people at Duke spent more than a decade shepherding from the molecular biologist's bench to the patient's bloodstream - Yamila has a future. The baby, suffering from Pompe disease, was weak and fragile. The family, desperate to save the child, turned to their community and raised money for a $250,000 bone marrow transplant. Their desperate hope that the ...I wen...
unitedpompe.com
United Pompe Foundation
http://www.unitedpompe.com/videospick.cfm
EP Magazine Article Living with Pompe Disease. Video name: ESH Gait trainer. Please select your connection speed. Video name: ESH Aqua Therapy. Please select your connection speed. Video name: ERIC BASEBALL AUGUST 2007. Please select your connection speed. Video name: AUGUST 2007 EXERCISE. Please select your connection speed. Video name: MARCH 2007 EXERCISE. Please select your connection speed. Video name: Video update on Stacy June 06. Please select your connection speed. Video name: ESH Truck Nov.06.