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My PKU Life | My life, my PKU, my storyMy life, my PKU, my story
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My life, my PKU, my story
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My life, my PKU, my story
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My PKU Life | My life, my PKU, my story | Page 2
https://mypkulife.wordpress.com/page/2
My life, my PKU, my story. My Journey to Motherhood. Of course I can’t be normal. I have been silent for a long time now. I was struggling to come up with a topic to write about and it took a lot for me to decide to actually write about this topic. There are people that, with high PHE levels experience:. Visible white matter abnormalities on MRI brain scans. They are out there. I have heard from them. And I am one of them. People ask me what it feels like to be off diet and to have high levels, and I don...
May | 2014 | My PKU Life
https://mypkulife.wordpress.com/2014/05
My life, my PKU, my story. My Journey to Motherhood. Diet vs. Addiction. PKU awareness month Throwback post #2. I don’t think that there is one straight and simple reason that I am not on diet. I have a whole list of pros and cons and while I haven’t taken the time to look over them and weigh them properly the decision of not being on diet seems like it is sticking with me. I’m not hurting anyone but myself! I need/deserve a break”. If you had my problems, you would drink/use drugs too. This is who I am.
January | 2014 | My PKU Life
https://mypkulife.wordpress.com/2014/01
My life, my PKU, my story. My Journey to Motherhood. New year. New plan. I lie actually. I don’t have a plan. I am not making a resolution to post in my blog every day, or even every week. The truth is my year was very up and down. There were a handful of days that I made and drank formula. Never more than 2 in a row. I rarely made conscious food decisions though I never ate meat. I will report back on how I like it. This entry was posted on January 5, 2014, in Uncategorized. Here’s an excerpt:. Click he...
April | 2013 | My PKU Life
https://mypkulife.wordpress.com/2013/04
My life, my PKU, my story. My Journey to Motherhood. Maternal PKU Mentor program. There is a program at work in the US by the NAPKUA where clinics are going to be able to help pair up maternal PKU patients (pregnant, trying to become pregnant or thinking about it) with PKU women who are now successful mothers. I asked her if she was going to New Orleans and she said yes but not to count on her that she was in the right place either. She then asked me what I was going to New Orleans for. To avoid ...We sw...
What does it FEEL like? | My PKU Life
https://mypkulife.wordpress.com/2015/01/21/what-does-it-feel-like-2
My life, my PKU, my story. My Journey to Motherhood. What does it FEEL like? When I was a teenager, if you asked me, I would have said that I had been on diet diligently for my entire life. It wasnt until I was about 21, when I experienced something of a PKU ‘awakening’ (this event is actually described in detail in the novel My PKU Life). That I realized that what I believed and what I had been living were 2 different things. What does it FEEL like? Its easier. It is easier to not care about what or...
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My PKU Life | My life, my PKU, my story
My life, my PKU, my story. My Journey to Motherhood. The Tragic Hip – The count down is on! My brain goes into overdrive and I have barely slept as I am constantly thinking of all the things that I need to do before surgery, our puppy needs to be fixed, my family needs eye appointments, L needs an orthodontics appointment. Just when I think that is all my phone starts ringing off the hook: pre-op CT scan, pre-op appointment. Right now I am on pain meds pretty much constantly daily. I don’t use ...So now ...
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