myrovlytistrust.org

Myrovlytis Trust | Seeking cures for rare genetic disorders

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. May 19, 2017. June 15, 2016. January 7, 2016. More news ». We are a medical research charity. We are dedicated to promoting research into. Rare genetic kidney disorders such as BHD syndrome. Get involved ». BHD Symposia ». Our BHD projects ». Other languages ».

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CONTACTS AT MYROVLYTISTRUST.ORG

Myrovlytis Trust

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fao J●●●●●Solly

Lo●●on , SW1X0JP

GB

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Myrovlytis Trust

David Earl

fao J●●●●●Solly

Lo●●on , SW1X0JP

GB

44.2●●●●8921

12●●●●●@renalgenetherapy.org

View this contact

Myrovlytis Trust

David Earl

fao J●●●●●Solly

Lo●●on , SW1X0JP

GB

44.2●●●●8921

12●●●●●@renalgenetherapy.org

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Myrovlytis Trust | Seeking cures for rare genetic disorders | myrovlytistrust.org Reviews

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Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. May 19, 2017. June 15, 2016. January 7, 2016. More news ». We are a medical research charity. We are dedicated to promoting research into. Rare genetic kidney disorders such as BHD syndrome. Get involved ». BHD Symposia ». Our BHD projects ». Other languages ».

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6 advancing education

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Myrovlytis Trust | Seeking cures for rare genetic disorders | myrovlytistrust.org Reviews

https://myrovlytistrust.org

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. May 19, 2017. June 15, 2016. January 7, 2016. More news ». We are a medical research charity. We are dedicated to promoting research into. Rare genetic kidney disorders such as BHD syndrome. Get involved ». BHD Symposia ». Our BHD projects ». Other languages ».

INTERNAL PAGES

myrovlytistrust.org

1

The Amsterdam Patient Charter for Global Kidney Cancer Care | Myrovlytis Trust

https://www.myrovlytistrust.org/news/the-amsterdam-patient-charter-for-global-kidney-cancer-care

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. The Amsterdam Patient Charter for Global Kidney Cancer Care. The Amsterdam Patient Charter for Global Kidney Cancer Care. October 9, 2014. In September, the International Kidney Cancer Consortium (IKCC) published the Amsterdam Patient Charter for Global Kidney Cancer Care in European Urology. Access to medical records, including pathology and imaging reports, if requested;.

2

Paper funded by the Myrovlytis Trust published | Myrovlytis Trust

https://www.myrovlytistrust.org/news/paper-funded-by-the-myrovlytis-trust-published-22

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. Paper funded by the Myrovlytis Trust published. Paper funded by the Myrovlytis Trust published. November 5, 2014. Describe the renal cell carcinoma characteristics of 33 patients with Birt-Hogg-Dubé syndrome. This work was partly funded by the Myrovlytis Trust, through a grant awarded to Professor Stéphane Richard, at the Institute Gustave Roussy in Paris, France.

3

Our Work | Myrovlytis Trust

https://www.myrovlytistrust.org/our-work

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. Since its founding in 2007, the Myrovlytis Trust has focused primarily on BHD syndrome: funding research to better understand and treat BHD as well as supporting the BHD community. As of 2011, the work of the Myrovlytis Trust has expanded to related genetic kidney disorders. We created the BHD Foundation. To continue our BHD work. Promoting Research ». Go to Our Vision.

4

Mission | Myrovlytis Trust

https://www.myrovlytistrust.org/our-vision/mission

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. The mission of the Myrovlytis Trust is two-fold:. 1 To promote research. Into rare genetic disorders; and. 2 To advance education. Of the public in medical and molecular genetics. Read about our Motivation. Learn more about BHD ». Apply for funding ». Other languages ».

5

Charity Officer vacancy | Myrovlytis Trust

https://www.myrovlytistrust.org/news/charity-officer-vacancy-2

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. November 10, 2014. The Myrovlytis Trust currently has a full-time position available for a Charity Officer. The successful candidate will gain experience working in the medical research sector, as well as contributing your ideas at the core of an international research-funding organisation. For the right person, there may be opportunity for the position to develop.

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europepmc.org

Funders - About - Europe PMC

http://europepmc.org/Funders

Or create an account. Help using Europe PMC. Search worldwide, life-sciences literature. Eg "breast cancer" HER2 Smith J. Europe PMC has 27 research funders, across Europe. The Europe PMC funders expect:. Research outputs arising from research that we fund to be made freely and readily available;. For further information, please refer to each funder's individual open access policy using the links below. Academy of Medical Sciences. Full text in Europe PMC. Feed of latest full text (last 30 days). Feed of...

chromophobe.info

About | Chromophobe.info

https://www.chromophobe.info/about

The information on this site is taken from BHDSyndrome.org. The primary online resource for anyone interested in BHD syndrome. All sources for the information can also be found on BHDSyndrome.org, in the For Families: Symptoms. And For Families: Diagnosis/Treatment. This information is produced by the Myrovlytis Trust. Other languages ». Neither the Myrovlytis Trust nor this website provides medical advice, diagnosis or treatment. Proudly powered by WordPress.

chromophobe.info

Other languages | Chromophobe.info

https://www.chromophobe.info/other-languages

Other languages ». Neither the Myrovlytis Trust nor this website provides medical advice, diagnosis or treatment. Proudly powered by WordPress.

chromophobe.info

Chromophobe RCC treatments | Chromophobe.info

https://www.chromophobe.info/chromophobe/treatments

BHD kidney tumours are slow growing, and often do not spread as long as they are smaller than 4 cm. BHD experts recommend having regular kidney scans, and removing any tumours when they reach 3 cm. In most cases, BHD patients who develop kidney cancer will only need one surgery in their lifetime to remove tumours. There are a number of treatments available such as tyrosine kinase inhibitors, mTOR inhibitors, and immunotherapy. More detailed information about treatment can be found here:.

test.europepmc.org

Funders - About - Europe PMC

http://test.europepmc.org/Funders

Or create an account. Help using Europe PMC. Search worldwide, life-sciences literature. Eg "breast cancer" HER2 Smith J. Europe PMC has 27 research funders, across Europe. The Europe PMC funders expect:. Research outputs arising from research that we fund to be made freely and readily available;. For further information, please refer to each funder's individual open access policy using the links below. Academy of Medical Sciences. Full text in Europe PMC. Feed of latest full text (last 30 days). Feed of...

europeanbhdconsortium.eu

Members « European BHD Consortium

https://www.europeanbhdconsortium.eu/members

Members are clinicians and researchers, drawn from several European countries, who are actively engaged in BHD syndrome research. Professor Sir Tom Blundell. Dept of Clinical Biochemistry, The Bioinformatics Centre. University of Copenhagen, Denmark). Hospital Clínic, Universidad de Barcelona, Barcelona, Spain). Laboratoire de Génétique,. Hôpital Edouard Herriot, Lyon, France). Birmingham University Medical School. Medical Genetics, Department of Pediatrics, University of Catania. Dr Maurice van Steensel.

europeanbhdconsortium.eu

Links « European BHD Consortium

https://www.europeanbhdconsortium.eu/links

Promotes research into rare genetic disorders, including but not limited to Birt-Hogg-Dubé syndrome, and advances education of the public in medical and molecular genetics. The Trust is focusing initially on Birt-Hogg-Dubé syndrome. The first online point of reference for anyone interested in BHD syndrome. Locus-specific database for mutations in the folliculin (FLCN) gene: a mutation database is now. Et al, 2009. Hum Mutat. Oct 2. Locus-specific database for FLCN sequence variation.

fibrofolliculoma.info

About | Fibrofolliculoma.info

https://www.fibrofolliculoma.info/about

The information on this site is taken from BHDSyndrome.org. The primary online resource for anyone interested in BHD syndrome. All sources for the information can also be found on BHDSyndrome.org, in the For Families: Symptoms. And For Families: Diagnosis/Treatment. This information is produced by the Myrovlytis Trust. Other languages ». Neither the Myrovlytis Trust nor this website provides medical advice, diagnosis or treatment. Proudly powered by WordPress.

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Myrovlytis Trust | Seeking cures for rare genetic disorders

Case studies: what can be achieved? Our work: Promoting research. Related kidney disorder research. Our work: Advancing education. May 19, 2017. June 15, 2016. January 7, 2016. More news ». We are a medical research charity. We are dedicated to promoting research into. Rare genetic kidney disorders such as BHD syndrome. Get involved ». BHD Symposia ». Our BHD projects ». Other languages ».

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