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mystripylife.blogspot.com
My Invisible Illness Story - Be Kind. Always. - My Stripy Life
http://mystripylife.blogspot.com/2015/09/be-kind-parking-invisible-illness-EDS-CMT.html
Wednesday, September 30, 2015. My Invisible Illness Story - Be Kind. Always. Invisible illness is part of the package in our house, where Charcot Marie Tooth Disease, Ehlers Danlos Syndrome as well as the lovely symptoms of dysautinomia are part of life for us on a daily basis. It's just how things are, it's part of our back story. Parking with a valid disabled parking permit that is. Photo credit Mayur Gala. Perhaps I am underselling that mum a little and her strength may be the ability to see into the ...
Raising EDS Kids - My Stripy Life
http://mystripylife.blogspot.com/2016/11/raising-eds-kids.html
Monday, November 21, 2016. Having a chronic illness or two is one thing but raising children with Ehlers-Danlos syndrome is another completely. I want to give you a little window into our lives so that you can see what goes on behind the scenes so to speak. To orchestrate a semblance of normality to the outside world. In our house, the picture is a little different. When I wake my third child I am thankful that he only has a cough to contend with. We still make it to school on time. I also need to rememb...
Life Swaps - Managing Chronic Illness - My Stripy Life
http://mystripylife.blogspot.com/2016/11/life-swaps-managing-chronic-illness.html
Wednesday, November 9, 2016. Life Swaps - Managing Chronic Illness. So, you've been diagnosed with a rare disease,. Has been a powerful healing tool, for both my mind and body. Here are some of my swaps in recreation, fitness, work and life. CMT and EDS have left it virtually impossible for me to write more than few sentences so I type everything now. I use an iPad, it's light,. Microsoft Windows Speech Recognition,. Or the ever popular, Dragon. The boys are very keen to get a Swegway (self balancing boa...
Hello Forty! - My Stripy Life
http://mystripylife.blogspot.com/2016/10/hello-forty-40-EDS-CMT-top-tips.html
Tuesday, October 4, 2016. Somebody once told me that the 40's were the best years of their lives. This was way back when I couldn't imagine being that old! It seems like only yesterday that I kissed my husband for the first time when in fact I was just 19 and that was over half my life ago. It clearly wasn't yesterday, not even close. Then out of no where, while I have been busy being a wife, a mother, an auntie, a daughter, an educator, an advocate, a grown up (scary). I turned forty. 7 No one is perfect.
Childhood Pain - My Stripy Life
http://mystripylife.blogspot.com/2016/10/childhood-pain-EDS-CMT-invisible-illness.html
Monday, October 17, 2016. My kids have pain. It's real. One of the hardest things for me as a mother is to see them in pain and not be able to magic it better. By the time we get to school she can't control her sobs. We drop off her brother and I tell her that I will take her home and make her a bed on the sofa and we'll try mummy's wheat bag. Her sobs resonate louder at the thought of missing school. I try every trick in the book when I get home; distraction, hot pack, rest and relaxation,. Emotionally ...
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51 Tips for Parents of Children Newly Diagnosed with Ehlers-Danlos syndrome (EDS) - Kendra Neilsen Myles
http://kendraneilsenmyles.com/2016/05/02/51-tips-parents-children-newly-diagnosed-ehlers-danlos-syndrome-eds
Speaker Author Health Educator Medical Writer EDS Advocate Movement Mindfulness Nutrition. The Ehlers-Danlos Society (previously EDNF). Health & Wellness Coaching. Natural Movement & Restorative Exercise. EDS Wellness, Inc. Sisters Media, LLC. Mediterina Medical Solutions, LLC. Invisible Strength – Stronger 2 Gether. Moving Naturally with Hypermobility seminars. EDS Ride for a Cause. Never Bet Against Occam: Mast Cell Activation Disease and The Modern Epidemics of Chronic Illness and Medical Complexity.
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my stripy book
Notes on living a mindful life. Bye bye, my stripy book. The time has finally come to leave this blog and move on. It feels like I’m moving house. 8211; saying farewell to this place, and hello to a shiny, new home, packing up all my old words and pictures while creating new ones, and getting ready to share them in a brand new location. It’s nostalgic and exciting at the same time. I’ve had some great times here and got to know some truly lovely people. Here is the new address:. Just click on this link.
My Stripy Life
Monday, November 21, 2016. Having a chronic illness or two is one thing but raising children with Ehlers-Danlos syndrome is another completely. I want to give you a little window into our lives so that you can see what goes on behind the scenes so to speak. To orchestrate a semblance of normality to the outside world. In our house, the picture is a little different. When I wake my third child I am thankful that he only has a cough to contend with. We still make it to school on time. I also need to rememb...
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