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NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY

A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love.

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NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY | nalahsmith.blogspot.com Reviews
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A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love.
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NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY | nalahsmith.blogspot.com Reviews

https://nalahsmith.blogspot.com

A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love.

INTERNAL PAGES

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1

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY: April 2012

http://nalahsmith.blogspot.com/2012_04_01_archive.html

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY. A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love. A POEM FOR NALAH. A butterfly lights beside us like a sunbeam. For a brief moment it's glory and beauty belong to our world. But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it. Wednesday, April 4, 2012. Good Night, Sweet Pea. Tuesday, April 3, 2012.

2

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY: October 2012

http://nalahsmith.blogspot.com/2012_10_01_archive.html

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY. A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love. A POEM FOR NALAH. A butterfly lights beside us like a sunbeam. For a brief moment it's glory and beauty belong to our world. But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it. Thursday, October 4, 2012. Subscribe to: Posts (Atom). First Day of 1s...

3

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY: September 2012

http://nalahsmith.blogspot.com/2012_09_01_archive.html

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY. A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love. A POEM FOR NALAH. A butterfly lights beside us like a sunbeam. For a brief moment it's glory and beauty belong to our world. But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it. Sunday, September 16, 2012. Sunset Butterfly for Nalah. You are an inc...

4

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY: NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY: How I remember Nalah, always attentive to her fami...

http://nalahsmith.blogspot.com/2014/06/nalah-mari-friesen-smith-trisomy-18.html

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY. A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love. A POEM FOR NALAH. A butterfly lights beside us like a sunbeam. For a brief moment it's glory and beauty belong to our world. But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it. Saturday, June 21, 2014. Subscribe to: Post Comments (Atom). Yes, I do...

5

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY

http://nalahsmith.blogspot.com/2014/06/join-my-skip-latter-honour-child.html

NALAH MARI FRIESEN SMITH - A TRISOMY 18 JOURNEY. A tribute to our brave and precious little girl Nalah, who lived valiantly with Full Trisomy 18. Nalah is an inspiration, a blessing, and our greatest love. A POEM FOR NALAH. A butterfly lights beside us like a sunbeam. For a brief moment it's glory and beauty belong to our world. But then it flies on again, and though we wish it could have stayed, we feel so lucky just to have seen it. Friday, June 27, 2014. Subscribe to: Post Comments (Atom). We can all ...

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compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Time to Throw in the Towel

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day

http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: We Just Don't Know...

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Supports for Families Facing a Trisomy Diagnosis

http://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Supports for Families Facing a Trisomy Diagnosis. Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012. Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/. Https:/ www.facebook.com/groups/T18Mommies/. Living with Trisomy 13 Group Page. Https:/ www.facebook.com/groups/Trisomy13/. Trisomy 4 (and 9p deletion.

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: For My Angel Mommy Friends

http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: The "Go" Bag

http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Medical History Template

http://compatiblewithjoy-trisomy18.blogspot.com/p/medical-history-template.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.

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Compatible With Joy-Trisomy18: What Is Trisomy 18?

http://compatiblewithjoy-trisomy18.blogspot.com/p/what-is-trisomy-18.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Happy 11 Months!

http://compatiblewithjoy-trisomy18.blogspot.com/2011/05/happy-11-months.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...

compatiblewithjoy-trisomy18.blogspot.com compatiblewithjoy-trisomy18.blogspot.com

Compatible With Joy-Trisomy18: Pertinent Medical History

http://compatiblewithjoy-trisomy18.blogspot.com/p/pertinent-medical-history.html

What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. This is by no means exhaustive. It can be used to help others who want to know what can be done for our little ones. Aaron is a 25 month old male with full Trisomy 18 diagnosed prenatally. He was born via C-section at 37 weeks, 2 days due to persistent heart decelerations with delayed recovery. He was not breathing at birth. Intubation ...

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