ryntales.blogspot.com
Ryn Tale's Book of Days:: Life at 11. Purposeful speech and other news.
http://ryntales.blogspot.com/2014/07/life-at-11-purposeful-speech-and-other.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Sunday, July 06, 2014. Life at 11. Purposeful speech and other news. Ellie is firmly into the pre-teen zone of consciousness. She introduces us to popular music on You Tube she finds all on her own. She thinks Katie Perry's Roar. Is pretty great (I agree) and she loves Capital Cities song Safe and Sound. Ellie at 11 and a half. About the initia...
ryntales.blogspot.com
Ryn Tale's Book of Days:: Cha, Cha, Change! or Goodbye Feeding Tube!
http://ryntales.blogspot.com/2014/01/change-change-change-for-better.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, January 31, 2014. Cha, Cha, Change! Or Goodbye Feeding Tube! Ellie having a lavender foot soak on her Winter Break. This last 6 months has been a time of intense change for us all and for the better. On October 22nd of 2013 Ellie got her g-tube OUT (for good if I can be so bold to say that)! Me and Ellie playing her Paper Jamz guitars.
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Ryn Tale's Book of Days:: Happy Twelfth Birthday Princess Ellie!
http://ryntales.blogspot.com/2014/11/happy-twelfth-birthday-princess-ellie.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Monday, November 10, 2014. Happy Twelfth Birthday Princess Ellie! Even toys she has come to love and are essential to her, started this way. This is a picture of her playing with her newly unwrapped toy. She would play with it for a few minutes and then push it away and stare at it. Then she would ask for it again. She did this seve...Today she...
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Ryn Tale's Book of Days:: Surgery Day
http://ryntales.blogspot.com/2015/06/surgery-day.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, June 26, 2015. Ellie got the "Independence" Award at school! She has a long road ahead of her but I believe it's one that leads to better quality of life than what she has now AND ensures that her body will be the healthiest possible so she can have a long life. Their easy sharing of the responsibility did not leave them as exhausted as...
ryntales.blogspot.com
Ryn Tale's Book of Days:: Abilities Expo Boston! 9/20-22
http://ryntales.blogspot.com/2013/09/abilities-expo-boston.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Saturday, September 21, 2013. Amazing stuff happening here at the Abilities Expo in Boston. They have these expos in major cities all across the US. Here is the link: http:/ www.abilitiesexpo.com/boston/. And of course we are interested in seeing this. Wheelchair Dancing! Subscribe to: Post Comments (Atom). You can write me at:. Surgery. I ...
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Ryn Tale's Book of Days:: Nic Nac, Paddy Whack, Get Ellie Atop a Horse!
http://ryntales.blogspot.com/2010/07/nic-nac-paddy-wack-get-ellie-atop-horse.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, July 09, 2010. Nic Nac, Paddy Whack, Get Ellie Atop a Horse! Nic Nac is a painted pony. He is recovering from obesity and in need of exercise because his rider outgrew him. Ellie is a seven year old girl who needs: to loosen up her hips, weight bearing exercise, and therapeutic riding for gait training in the hopes she will one day walk.
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Ryn Tale's Book of Days:: PERC Lenthening and Posterior Tibial Tendon Recession, Oh my.
http://ryntales.blogspot.com/2007/10/perc-lenthening-and-post-tibial-tendon.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Monday, October 29, 2007. PERC Lenthening and Posterior Tibial Tendon Recession, Oh my. I HATE that word especially when it applies to my baby. Ok - she's five, but she will always be my baby. Here's the why of it that I hope one day Ellie will understand:. Dave said, "Oh, do you want to go in your Pony and do walking? And you know what, I dare...
ryntales.blogspot.com
Ryn Tale's Book of Days:: Pharrell's "Happy" in ASL by Deaf Film Camp at CM7
http://ryntales.blogspot.com/2014/09/pharrells-happy-in-asl-by-deaf-film.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Monday, September 01, 2014. Pharrell's "Happy" in ASL by Deaf Film Camp at CM7. Subscribe to: Post Comments (Atom). You can write me at:. Ryntales at gmail dot com. Ellie, My Warrior Princess. Mama and Fairy Child. Your Words for Ellie. Boston, United States. View my complete profile. Mobility and Traveling with a Quadriplegic Child. Awakenings...
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Ryn Tale's Book of Days:: Awakenings and Weaning Off Depakote
http://ryntales.blogspot.com/2009/07/awakenings-and-weaning-off-depakote.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Friday, July 03, 2009. Awakenings and Weaning Off Depakote. I am weaning Ellie off Depakote against doctor's orders. The question that is torturing me is why didn't I do that as soon as it started making her sick? So I must be crazy right? No you should not try another drug, because Depakote has the least side effects. . Get her off that crap!
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Ryn Tale's Book of Days:: *Ten Ways To Diss a Differently Abled Person
http://ryntales.blogspot.com/2013/08/ten-ways-to-piss-off-parent-of.html
Ryn Tale's Book of Days:. Sometimes in the heart of a lion you find a tale or two. This is the story of life with my beautiful 27-weeker preemie warrior princess. Sunday, August 04, 2013. Ten Ways To Diss a Differently Abled Person. 1 Make sure to leave your empty shopping carts in the special needs parking space. Hey, no one was using it anyway. 2 Always park in the special needs space and if that is not available park as close as you possibly can to it. 7 Turn around and frown at the differently abled ...