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Nathan's Journey

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Monday, October 6, 2008. Thanks be to God. The whole team at Cheo is amazing to say the least, they made our lives a little brighter during this difficult time. They will always hold a special place in our hearts. Day two in ICU - One less machine. First visit with his big brother and sister. His first smile after surgery was at their visit. He was very happy to see them. Wednesday, October 1, 2008. Nathan is fast ...

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Nathan's Journey | nathan-martinsjourney.blogspot.com Reviews
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A family's journey from the very beginning of living with Heart disease and Down Syndrome. Monday, October 6, 2008. Thanks be to God. The whole team at Cheo is amazing to say the least, they made our lives a little brighter during this difficult time. They will always hold a special place in our hearts. Day two in ICU - One less machine. First visit with his big brother and sister. His first smile after surgery was at their visit. He was very happy to see them. Wednesday, October 1, 2008. Nathan is fast ...
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Nathan's Journey | nathan-martinsjourney.blogspot.com Reviews

https://nathan-martinsjourney.blogspot.com

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Monday, October 6, 2008. Thanks be to God. The whole team at Cheo is amazing to say the least, they made our lives a little brighter during this difficult time. They will always hold a special place in our hearts. Day two in ICU - One less machine. First visit with his big brother and sister. His first smile after surgery was at their visit. He was very happy to see them. Wednesday, October 1, 2008. Nathan is fast ...

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1

Nathan's Journey: We have a surgery date..

http://www.nathan-martinsjourney.blogspot.com/2008/08/we-have-surgery-date.html

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Thursday, August 21, 2008. We have a surgery date. Thanks for the update! I want you to know that im praying for your little guy.Congrats on the surgery date and being a match.GOD bless you and Nathan,Lisa. August 24, 2008 at 1:52 PM. Subscribe to: Post Comments (Atom). Hearing test - Mon. Sept. 8th. Sedated Echo - Wed. Sept. 10th. We have a surgery date. He has started to laugh! View my complete profile.

2

Nathan's Journey: Pre-op coming up..

http://www.nathan-martinsjourney.blogspot.com/2008/09/pre-op-coming-up.html

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Thursday, September 18, 2008. Hearing test - Well now his left ear passed, yea! Shortly after he fell fast asleep. They got the picutes of his heart they wanted, his EKG. We got the stickers off without him crying, thanks to the patience of his nurse Kim! God i love my kids. Lyn I will be thinking about you and Nathan tomarrow! Sending prayers your way,Lisa. September 29, 2008 at 8:36 PM. View my complete profile.

3

Nathan's Journey: Thanks be to God..

http://www.nathan-martinsjourney.blogspot.com/2008/10/thanks-be-to-god.html

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Monday, October 6, 2008. Thanks be to God. The whole team at Cheo is amazing to say the least, they made our lives a little brighter during this difficult time. They will always hold a special place in our hearts. Day two in ICU - One less machine. First visit with his big brother and sister. His first smile after surgery was at their visit. He was very happy to see them. Congratulations little Nathan and to you an...

4

Nathan's Journey: May 2008

http://www.nathan-martinsjourney.blogspot.com/2008_05_01_archive.html

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Friday, May 30, 2008. What is Down syndrome? There are several characteristics that are more common for babies with Down syndrome. They may include: low muscle tone, eyes that appear to slant upward, a flat nose bridge, relatively small nose and ears, and a single horizontal crease on either palm. Newborns with Down syndrome look like babies who do not have Down syndrome. Many children with Down syndrome are perfor...

5

Nathan's Journey: July 2008

http://www.nathan-martinsjourney.blogspot.com/2008_07_01_archive.html

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Friday, July 18, 2008. Wow, didn't think we would be there that long. Nathan and I spent a total of 6 hours at Cheo the other day. Many tears, many tests and too many minutes to count. I am very thankful that Kristopher and Mykaela were lucky enough to spend the day with friends. They had very eventful and fun filled day, and I am glad. Your going to prick my baby where? Tomorrow we head out to a truck show. Go...

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Mom of a TGA Survivor: CHAPTER 11 : A Happy Ending Part 2

http://momofatgasurvivor.blogspot.com/2008/10/chapter-11-happy-ending-part-2.html

Mom of a TGA Survivor. Saturday, October 25, 2008. CHAPTER 11 : A Happy Ending Part 2. I'm happy to report that things have gone well since Joshua's last discharge from hospital. Life was pretty busy for the first 2 1/2 months or so following his discharge for a few reasons:. Follow-up appointments. It wasn't uncommon for us to be at CHEO 1-2 times per week for an appointment of some sort. By December it had settled down a bit to one visit every 2 weeks. And it was your skill and expertise that mended ou...

momofatgasurvivor.blogspot.com momofatgasurvivor.blogspot.com

Mom of a TGA Survivor: Surgery Went Well

http://momofatgasurvivor.blogspot.com/2010/06/surgery-went-well.html

Mom of a TGA Survivor. Friday, June 18, 2010. They gave him a pre-op sedative about a half hour before they took him to the OR and let me tell you.it worked! He was so calm and relaxed. There were no tears; no screaming. Just an easy going kid enjoying the ride to the OR. I was able to accompany Josh in to the OR and I was able to give him a kiss on the cheek as he fell asleep. I really couldn't have asked for a more stress-free experience. To which he replied, 'No, go park! Thanks for checking in! Chapt...

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Mom of a TGA Survivor: June 2010

http://momofatgasurvivor.blogspot.com/2010_06_01_archive.html

Mom of a TGA Survivor. Tuesday, June 22, 2010. Just a quick post to update you on how our annual check-up with cardiology went. Since the echo and ECG were already done last week we only had to meet with Josh's cardiologist, Dr. Gow, today for the results. I am thrilled to report that Josh's heart looks great! His ECG was perfect as is his heart function. There are some minor abnormalities present but really nothing too alarming for a heart that has been surgically repaired. Friday, June 18, 2010. He was...

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Mom of a TGA Survivor: 2008 Was a Good Year

http://momofatgasurvivor.blogspot.com/2009/01/2008-was-good-year.html

Mom of a TGA Survivor. Wednesday, January 7, 2009. 2008 Was a Good Year. Robb, Corrie and Josh,. Your Mom and Brian were here earlier today and we heard about your blog, which we just accessed. We thoroughly enjoyed the pictures and your narration. Josh sure has done exceedingly well; we are thankful and delighted. Frankly, the kitty litter treat literally took the cake! Art and Digna Olyslager. January 11, 2009 at 5:30 PM. Subscribe to: Post Comments (Atom). Get your own Family Sticker Maker.

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Mom of a TGA Survivor: Chapter 6: Still Waiting For Surgery

http://momofatgasurvivor.blogspot.com/2008/08/chapter-6-still-waiting-for-surgery_23.html

Mom of a TGA Survivor. Saturday, August 23, 2008. Chapter 6: Still Waiting For Surgery. On day #16 in the ICU (a Tuesday), neurology performed a couple of neurological tests. The first was a VEP (visual evoked potential) where they placed probes on Josh's head and goggles over his eyes. There was flashing lights inside the goggles and the probes would record whether his brain reacted to the stimuli. His brain did react which meant that he was not blind. (Yay! The second neurological test was a SSEP (soma...

momofatgasurvivor.blogspot.com momofatgasurvivor.blogspot.com

Mom of a TGA Survivor: CHAPTER 4: The First Week In The PICU

http://momofatgasurvivor.blogspot.com/2008/08/chapter-4-first-week-in-picu.html

Mom of a TGA Survivor. Friday, August 8, 2008. CHAPTER 4: The First Week In The PICU. When I arrived at the hospital early Tuesday morning - I'm not sure what time it was, maybe 0730 - Josh's condition seemed to have stabilized. Well, at least his vitals were in a good range but I guess not much else had changed. Subscribe to: Post Comments (Atom). Get your own Family Sticker Maker. Chapter 1: So What Is Transposition of the Great Arteries? Chapter 2: Pregnancy and Delivery. Chapter 3: The First 16 Days.

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Mom of a TGA Survivor: CHAPTER 10: Back In Hospital

http://momofatgasurvivor.blogspot.com/2008/10/chapter-10-back-in-hospital.html

Mom of a TGA Survivor. Sunday, October 5, 2008. CHAPTER 10: Back In Hospital. Not much else was done during that visit to emerg. They kept us there for several hours for observation to make sure that he was breastfeeding and keeping most of his intake down. Between 1700 and 2100 I fed Josh three times and he kept two of the three feedings down. And so we were sent home. I was so frustrated! I couldn't find anyone to take my concerns seriously. Oh man, there were no words to express my frustration. I aske...

momofatgasurvivor.blogspot.com momofatgasurvivor.blogspot.com

Mom of a TGA Survivor: Chapter 8: A Happy Ending - Part 1

http://momofatgasurvivor.blogspot.com/2008/09/chapter-8-happy-ending-part-1.html

Mom of a TGA Survivor. Friday, September 5, 2008. Chapter 8: A Happy Ending - Part 1. My mom had picked up a big box of chocolates from Laura Secord to give to the ICU staff to show our thanks and appreciation and I included a thank you card from Josh. I didn't really know what to say - I mean what do you say to the incredible staff that saved your sons life? I decided to write a poem [from Josh's perspective] and it went like this:. I came to the ICU in a really bad state,. Saturday was my mom's last da...

momofatgasurvivor.blogspot.com momofatgasurvivor.blogspot.com

Mom of a TGA Survivor: It's Official....Another Surgery Ahead

http://momofatgasurvivor.blogspot.com/2010/05/it-officialanother-surgery-ahead.html

Mom of a TGA Survivor. Monday, May 3, 2010. Its Official.Another Surgery Ahead. We met with the surgeon this morning at CHEO for our consult regarding josh's possible inguinal hernia. I explained to him that a hernia had been discovered [by general surgery] when Josh was two months old but could not be repaired due to his bowel obstruction and necessary repair. And since his bowel resection the hernia had not returned. Three: His heart is awesome and we've had no cause for concern since his heart was rep...

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Nathan's Journey

A family's journey from the very beginning of living with Heart disease and Down Syndrome. Monday, October 6, 2008. Thanks be to God. The whole team at Cheo is amazing to say the least, they made our lives a little brighter during this difficult time. They will always hold a special place in our hearts. Day two in ICU - One less machine. First visit with his big brother and sister. His first smile after surgery was at their visit. He was very happy to see them. Wednesday, October 1, 2008. Nathan is fast ...

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