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Living With Netherton Syndrome

Chronicling My Bambino's Medical Odyssey

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Living With Netherton Syndrome | nethertonsyndrome.blogspot.com Reviews
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Chronicling My Bambino&#39;s Medical Odyssey
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KEYWORDS
1 bambino turned 3
2 posted by
3 karen
4 2 comments
5 labels birthday
6 one pound gained
7 never happened
8 5 comments
9 labels calorie intake
10 feeding plan
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bambino turned 3,posted by,karen,2 comments,labels birthday,one pound gained,never happened,5 comments,labels calorie intake,feeding plan,weight,weight gain,i am so,isn't he adorable,i am ecstatic,1 comment,labels clear skin,sleeping well,studio photo
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Living With Netherton Syndrome | nethertonsyndrome.blogspot.com Reviews

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Chronicling My Bambino&#39;s Medical Odyssey

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1

Living With Netherton Syndrome: One Pound Gained!

http://nethertonsyndrome.blogspot.com/2009/08/one-pound-gained.html

Living With Netherton Syndrome. Chronicling My Bambino's Medical Odyssey. Monday, August 24, 2009. I remember a number of instances when I was asked by other Mommies how much my tiny baby weighed and, for almost half a year, my reply never changed. It was always "almost 17 lbs." For the longest time, I've waited impatiently for my Bambino to cross that 17 pound mark. Then exactly a week ago, 9 days after his g-tube placement surgery, he weighed in at a little more than 18lbs! Erika Is A Panda. I found yo...

2

Living With Netherton Syndrome: August 2009

http://nethertonsyndrome.blogspot.com/2009_08_01_archive.html

Living With Netherton Syndrome. Chronicling My Bambino's Medical Odyssey. Monday, August 24, 2009. I remember a number of instances when I was asked by other Mommies how much my tiny baby weighed and, for almost half a year, my reply never changed. It was always "almost 17 lbs." For the longest time, I've waited impatiently for my Bambino to cross that 17 pound mark. Then exactly a week ago, 9 days after his g-tube placement surgery, he weighed in at a little more than 18lbs! Links to this post. It's 10:...

3

Living With Netherton Syndrome: March 2009

http://nethertonsyndrome.blogspot.com/2009_03_01_archive.html

Living With Netherton Syndrome. Chronicling My Bambino's Medical Odyssey. Wednesday, March 25, 2009. On The Road To Recovery. Yesterday was another half day spent at UCLA to see Bambino's Immunologists. He is just bouncing back from one of his worst break out this winter so he was all clear for the doctors. Fortunately, this doctor knows him well by now. He knows the intricacies of his disorder. These are photos from his most recent breakout. It's hard to believe it was just a mere one week ago. We found...

4

Living With Netherton Syndrome: December 2008

http://nethertonsyndrome.blogspot.com/2008_12_01_archive.html

Living With Netherton Syndrome. Chronicling My Bambino's Medical Odyssey. Tuesday, December 30, 2008. Bambino's break-out ended after 21 days. He is a happy camper again. T'was a happy Christmas indeed-o! Kiddo and Bambino in their matching outfits :). Links to this post. Thursday, December 25, 2008. My Babies Make Everything Worthwhile. In high school, i missed several outings, seminars and other school opportunities because I had to care for one of these babies. Merry Christmas to each one of my babies...

5

Living With Netherton Syndrome: The Weaning Plan

http://nethertonsyndrome.blogspot.com/2009/07/weaning-plan.html

Living With Netherton Syndrome. Chronicling My Bambino's Medical Odyssey. Wednesday, July 15, 2009. It has been an eventful couple of weeks. Bambino had a back to back break out, with only a day respite in between. His bowel movement is just now normalizing after a couple of weeks on MiraLax. He was given Align. In conjunction with MiraLax but i'm finding it very tricky to have him take it since it doesn't dissolve in liquid. We called the doctor after a couple of days to let him know that we were taking...

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The Adventures of Super Panda: Father's Day gift

http://erikaisapanda.blogspot.com/2011/06/father-day-gift.html

The Adventures of Super Panda. View my complete profile. Tuesday, June 21, 2011. Click here to view this photo book larger. My gaggle of geese. The BFF from High School. The Girl From Junior High and Her Little Kangaroo. John and Kate Plus 2. The MEEN- N(est) of the MEEN girls. M of the MEEN girls. List of the Day. Super Dee Duper Blogs. Peanut Butter and Julie. My Sweet and Saucy. The Repressed Pastry Chef. Conversations With A Cupcake.

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The Adventures of Super Panda: Sunshine comes after the rain

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The Adventures of Super Panda. View my complete profile. Friday, May 6, 2011. Sunshine comes after the rain. Hudson is A LOT better! We struggled with colic and reflux for a while, but he has improved drastically! He started seeing our homeopathic doctor, along with his pediatrician, and with a few formula changes, he is now the picture of a healthy baby boy! My gaggle of geese. The BFF from High School. The Girl From Junior High and Her Little Kangaroo. John and Kate Plus 2. M of the MEEN girls.

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The Adventures of Super Panda: May 2011

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The Adventures of Super Panda. View my complete profile. Sunday, May 8, 2011. I had a terrible night last night with the Hud. Not sure if it was because we didn't stick to his bedtime routine due the Pacquiao fight, or if he's going through his 3 month growth spurt. Yep, that's right, 3 months. How time flies! Anyhow, I got very little sleep last night. but this morning, the hubby gave me the sweetest card, along with 2 dozen roses. Hudson gave me a cute card as well :). Oh, well. It is what it is. I am ...

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The Adventures of Super Panda: On A Side Note

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The Adventures of Super Panda. View my complete profile. Friday, May 6, 2011. On A Side Note. 2 postings in one day. Wow! A rare occasion indeed! Anyhow, I really miss my old body. I miss fitting into my old clothes, shoes. I miss my non chubby face. My gaggle of geese. The BFF from High School. The Girl From Junior High and Her Little Kangaroo. John and Kate Plus 2. The MEEN- N(est) of the MEEN girls. M of the MEEN girls. List of the Day. On A Side Note. Sunshine comes after the rain. My Sweet and Saucy.

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The Adventures of Super Panda: Oh, how I wish I could take it all away and make it all better!

http://erikaisapanda.blogspot.com/2011/03/oh-how-i-wish-i-could-take-it-all-away.html

The Adventures of Super Panda. View my complete profile. Monday, March 28, 2011. Oh, how I wish I could take it all away and make it all better! Because of the Reflux. Written by IRD Member - Jen. Sunday, 20 March 2005 23:19. Because of the reflux every single day is a struggle. Because of the reflux I dread feeding time. Because of the reflux I find myself resenting my helpless/faultless infant and then feeling immense guilt over these feelings. Because of the reflux I cry every single day. Because of t...

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The Adventures of Super Panda: August 2009

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The Adventures of Super Panda. View my complete profile. Sunday, August 30, 2009. Yes, my blog has been neglected. I am a student now and have a full time job. Needless to say that my time is extremely limited. I will try to post more as I get used to the new sched but that probably won't be for a while. Wednesday, August 26, 2009. A week and a half into my new job. I am now a Kindergarten Aide 2 days a week, along with my receptionist/ substitute duties. I will have my own classroom soon enough. Up unti...

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The Adventures of Super Panda: June 2011

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The Adventures of Super Panda. View my complete profile. Tuesday, June 21, 2011. Click here to view this photo book larger. My gaggle of geese. The BFF from High School. The Girl From Junior High and Her Little Kangaroo. John and Kate Plus 2. The MEEN- N(est) of the MEEN girls. M of the MEEN girls. List of the Day. Super Dee Duper Blogs. Peanut Butter and Julie. My Sweet and Saucy. The Repressed Pastry Chef. Conversations With A Cupcake.

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The Adventures of Super Panda: June 2009

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The Adventures of Super Panda. View my complete profile. Tuesday, June 30, 2009. June's almost over. For some reason, I'm excited about what the new month will possibly bring. I am expecting a lot of things. cause I know God will provide. Wednesday, June 24, 2009. To my therapist, Marjorie. She has helped me in so many ways. Today was our last session since my life is going in a new direction and def need to save. Not that therapy was a luxury, ok, it kinda is. You've given me so much more than you know.

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The Adventures of Super Panda: September 2011

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The Adventures of Super Panda. View my complete profile. Thursday, September 29, 2011. My Oh So, Neglected Blog. Clearly the combination of motherhood, work, and school is not a great mix. It leads to lack of time for frivolous things, such as this blog. So here's my lame attempt to update it. Hudson is now 7 1/2 months. I can't believe it! I'm also glad we found an awesome nanny. She's been so good with him, and I feel so comfortable leaving him with her. It makes going to work that much easier.

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The Adventures of Super Panda: July 2009

http://erikaisapanda.blogspot.com/2009_07_01_archive.html

The Adventures of Super Panda. View my complete profile. Thursday, July 30, 2009. Dear God, Give Me A Sign. I need to know that the job that was partially offered to me is still there waiting for me. And if it isn't, please let me know that something else is on the horizon. Wednesday, July 29, 2009. I am not a fan of good bye's. Never have been, and probably never will be. I get too sentimental. Too attached. Some may say I care too much. Perhaps all of the above are true. No longer of use. Which is why ...

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Living With Netherton Syndrome. Chronicling My Bambino's Medical Odyssey. Friday, December 17, 2010. I haven't updated this site in a long time and I feel the need to go back to blogging because through this site, I have met a lot of wonderful families who are going through similar experiences as ours. So to start off, I'm posting a photo from the Little One's 3rd birthday. So much to write about, I don't know where to start! Links to this post. Monday, August 24, 2009. In addition to weight gain, he's a...

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