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About | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/about
Advocate for neurofibromatosis research updates and action items. The NF Coalition is a group of neurofibromatosis organizations that are dedicated and working together to raise federal funding for NF research and to increase NF awareness by advocating for more federal research dollars. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out.
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nfmidwest | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/author/nfmidwest
Advocate for neurofibromatosis research updates and action items. Acting4NF – Stepping Forward on Capitol Hill. February 9, 2012. In the weeks ahead, the. Of organizations supporting this effort will be pushing for everyone who cares about NF research to contact their members of Congress and their Senators urging their support. Please, be ready to take Action4NF! To help support this cause, please donate. Or if you are interested in becoming an Advocate4NF, please contact your local NF organization.
nfadvocacy.wordpress.com
Write Your Representative by May 11th! And have EVERYONE you know do it too! | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/2011/05/02/write-your-representative-by-may-11th-and-have-everyone-you-know-do-it-too
Advocate for neurofibromatosis research updates and action items. Larr; Look Who Showed Support for NF Research. Write Your Representative by May 11th! And have EVERYONE you know do it too! May 2, 2011. We need EVERYONE in the NF Community, plus ALL your friends, neighbors, co-workers and just about anyone you can think of to write their Representative in the House immediately about neurofibromatosis research NOW! The letter below then find your Congressman at www.house.gov/writerep. The Department of De...
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January | 2012 | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/2012/01
Advocate for neurofibromatosis research updates and action items. January 26, 2012. You have often heard us talk about the CDRMP. This stands for Congressionally Directed Medical Research Programs. For NF, this program has been a major lifeline. Funding for the CDRMP has ranged from $8 million to a high of $25 million; current 2012 funding was just under $12.8 million. Key current initiatives include:. Study complications of NF with high mortality such as neoplasms and cerebrovascular abnormalities.
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October | 2011 | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/2011/10
Advocate for neurofibromatosis research updates and action items. NF Could Lose Millions in Federal Funding! October 18, 2011. In July, the House of Representatives passed their FY2012 Defense Appropriations Bill which included $12.8 million for the Army’s NF Research. As is usually the custom, the Senate’s bill did not include specific funding for the NF Research Program. This means this $12.8 million is now up for negotiation. Find the spot to email them and paste (CTRL V). After the “sincerely&#...
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Act Now! Write Your Senators By June 2! | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/2011/05/27/act-now-write-your-senators-by-june-2
Advocate for neurofibromatosis research updates and action items. Larr; There’s Now More Time to Contact Your Senators! Deadline extended to June 17th! Look Who Showed Support for NF Research. Write Your Senators By June 2! May 27, 2011. We need you and EVERYONE YOU KNOW to specifically ask both their Senators to sign onto the letter. The letter below then find one of your Senators at senate.gov or use the direct link here: http:/ www.senate.gov/general/contact information/senators cfm.cfm. The Departmen...
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May | 2011 | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/2011/05
Advocate for neurofibromatosis research updates and action items. Write Your Senators By June 2! May 27, 2011. Currently a “Dear Colleague” letter from from Senator Tom Harkin is circulating the Senate asking members of Congress to sign onto his letter supporting the Army’s Neurofibromatosis Research Program by requesting that $16 million be included for it in the Fiscal Year 2012 Department of Defense Appropriations bill. Find the spot to email them and paste (CTRL V). The Department of Defense fills a ...
nfadvocacy.wordpress.com
What is CDMRP? | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/2012/01/26/what-is-cdmrp
Advocate for neurofibromatosis research updates and action items. Larr; Acting4NF – Stepping Forward on Capitol Hill. NF Could Lose Millions in Federal Funding! January 26, 2012. You have often heard us talk about the CDRMP. This stands for Congressionally Directed Medical Research Programs. For NF, this program has been a major lifeline. Funding for the CDRMP has ranged from $8 million to a high of $25 million; current 2012 funding was just under $12.8 million. Key current initiatives include:. Refineme...
nfadvocacy.wordpress.com
Acting4NF – Stepping Forward on Capitol Hill | Neurofibromatosis Advocacy
https://nfadvocacy.wordpress.com/2012/02/09/acting4nf-stepping-forward-on-capitol-hill
Advocate for neurofibromatosis research updates and action items. Acting4NF – Stepping Forward on Capitol Hill. February 9, 2012. In the weeks ahead, the. Of organizations supporting this effort will be pushing for everyone who cares about NF research to contact their members of Congress and their Senators urging their support. Please, be ready to take Action4NF! To help support this cause, please donate. Or if you are interested in becoming an Advocate4NF, please contact your local NF organization.
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