beth-barham.blogspot.com
Be Strong in the Lord: August 2014
http://beth-barham.blogspot.com/2014_08_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Saturday, August 23, 2014. Here We Go Again. I'm not going to lie. First grade has been more upsetting for me than kindergarten. I think maybe it's because he's become more mature. I'm trying to soak it all in. He's all I'll ever have. Here's hoping he still has that attitude come Friday morning. Bilateral ve...
beth-barham.blogspot.com
Be Strong in the Lord: Alas! A Successful Mother Goose Lapsit!!
http://beth-barham.blogspot.com/2009/03/alas-successful-mother-goose-lapsit.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Thursday, March 19, 2009. A Successful Mother Goose Lapsit! Reece made it through Mother Goose at the library without crying! I think I held my breath the entire time just waiting for the screaming to come, but it didn't. The little guy even participated! I'll let you know how everything turns out! For an eve...
beth-barham.blogspot.com
Be Strong in the Lord: Perspective
http://beth-barham.blogspot.com/2015/04/perspective.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Monday, April 6, 2015. It wasn't necessarily what he said, but how he said it. It was like he had been thinking on it for a while. What could I say? Reece: "Yes." Me: "Why? Reece: "God has big plans for me.". From there, we drove over to Barnes and Noble where he bought 3 books. (We are. Really into books the...
beth-barham.blogspot.com
Be Strong in the Lord: May 2014
http://beth-barham.blogspot.com/2014_05_01_archive.html
For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. Psalm 139:13-14. Saturday, May 10, 2014. The Saturday after we got home from Puerto Rico, Reece began his first year of Challenger League baseball. This is a league for children and adults with various disabilities, and it's all about having fun! Everybody wins and you even cheer for the opposing team! We're on tv, I think!
escobarsyndrome.blogspot.com
Escobar Syndrome: September 2010
http://escobarsyndrome.blogspot.com/2010_09_01_archive.html
Wednesday, September 1, 2010. Masha has had several surgeries and has been outfitted with several different titanium devices to straighten her spine and joints, most importantly VEPTR's to correct her scoliosis. We often joke that she is our bionic kid! Despite her physical challenges, however, Masha is a sweet, happy, fun loving child! If you'd like to discuss Masha, adoption, VEPTR, Multiple Pterygium Syndrome (or anything else! George and Suzanne Rudder. Subscribe to: Posts (Atom). Our research study ...
escobarsyndrome.blogspot.com
Escobar Syndrome: August 2012
http://escobarsyndrome.blogspot.com/2012_08_01_archive.html
Tuesday, August 14, 2012. Leonie was born on 6. The pregnancy was terrible, with an original diagnosis of heart failure and fetal hydrops, we were advised to terminate to ‘be kinder on her’ as she only had 24 hours to live. Thankfully we decided that if she was going to hang on, then so were we. After two amniocentesis tests (both of which came back normal) we were told she was getting a little stronger. She was delivered over full term at 42 weeks. All hell broke lose on delivery. Aaliyah was born on 25.
escobarsyndrome.blogspot.com
Escobar Syndrome: Langenstein Family
http://escobarsyndrome.blogspot.com/2010/09/langenstein-family.html
Wednesday, September 1, 2010. Masha has had several surgeries and has been outfitted with several different titanium devices to straighten her spine and joints, most importantly VEPTR's to correct her scoliosis. We often joke that she is our bionic kid! Despite her physical challenges, however, Masha is a sweet, happy, fun loving child! If you'd like to discuss Masha, adoption, VEPTR, Multiple Pterygium Syndrome (or anything else! Subscribe to: Post Comments (Atom). Escobar Syndrome Research Study. Addit...
escobarsyndrome.blogspot.com
Escobar Syndrome: October 2011
http://escobarsyndrome.blogspot.com/2011_10_01_archive.html
Saturday, October 29, 2011. Aaron was born on 19-05-2008 by planned c-section. Doctors had been monitoring Aaron carefully since our 20 week scan showed he had bilateral clubbed feet. The Doctors were pretty sure something else was wrong but did not know what it was, they were worried he was not moving very much and decided they would deliver 2 weeks early. He has had 2 surgeries, tenotomies on both feet and a bilateral inguinal hernia/testes release. A very strong willed individual. Division of Genetics,.
escobarsyndrome.blogspot.com
Escobar Syndrome: Saffy Family
http://escobarsyndrome.blogspot.com/2012/08/griffiths-family.html
Tuesday, August 14, 2012. Leonie was born on 6. The pregnancy was terrible, with an original diagnosis of heart failure and fetal hydrops, we were advised to terminate to ‘be kinder on her’ as she only had 24 hours to live. Thankfully we decided that if she was going to hang on, then so were we. After two amniocentesis tests (both of which came back normal) we were told she was getting a little stronger. She was delivered over full term at 42 weeks. All hell broke lose on delivery. Aaliyah was born on 25.
escobarsyndrome.blogspot.com
Escobar Syndrome: Under Construction - Created 8/30/2010
http://escobarsyndrome.blogspot.com/2010/08/under-construction-created-8302010.html
Monday, August 30, 2010. Under Construction - Created 8/30/2010. Subscribe to: Post Comments (Atom). Escobar Syndrome Research Study. Karen W. Gripp, M.D. Division of Genetics,. Nemours/Alfred I duPont Hospital for Children, Wilmington DE. Our research study “Genotype influences on clinical outcomes in arthrogryposis with webbing – Escobar Syndrome” is recruiting new participants. If any families would like more information or would like to enroll in our study,. State and Local Government. Office of Rare...
