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The Most Common Syndrome You've Never Heard Of: February 2013

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The Most Common Rare Syndrome You've Never Heard Of. Friday, February 1, 2013. Christa Flanagan- Baby Eden. I found out I was pregnant with my second child around my son’s fourth birthday. It was not a happy event. I did not know what I was going to do. I made an appointment with my doctor for early January, 2012. Until that time, I decided to wait and see what Mother Nature had planned for me. Perhaps this would not be a ‘sticky baby’. We decided to proceed with an amniocentesis. It was difficult wa...

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The Most Common Syndrome You've Never Heard Of: To Compare is to Devalue--Heather Cole and Harmony Harkema (SILs)

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The Most Common Rare Syndrome You've Never Heard Of. Saturday, May 31, 2014. To Compare is to Devalue- Heather Cole and Harmony Harkema (SILs). Heather and Harmony and Lili. 8220;I’m pregnant.”. The words came without warning. She simply dropped them into a lull in the conversation as though she were making an everyday observation. She might have said it was supposed to rain the next morning. Her tone was light and perfectly calm, her expression serious. 8220;You’re . . . joking? She shook her head.

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The Most Common Syndrome You've Never Heard Of: November 2014

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The Most Common Rare Syndrome You've Never Heard Of. Sunday, November 2, 2014. My Son George-Sarah Eastaugh. Hi, my name is Sarah and I am from Essex, England. My sons name is George. He was born 3. The pregnancy was uncomplicated, though I did find out at 34 weeks I had gestational diabetes. Our time in NICU was hard. George is my first child- it wasn’t the start of parenthood that I had expected. Being at home with my son was amazing. Like many new-borns he slept a lot, and. When George was 4/5 months ...

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The Most Common Syndrome You've Never Heard Of: March 2013

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The Most Common Rare Syndrome You've Never Heard Of. Friday, March 1, 2013. Cari Jack- Baby Judah. Lessons I learned from God, my husband Brian, my daughter Blair and my son, Judah. Usually you learn life lessons at the end of a story. I am going to tell you what I learned from the very beginning. Life lesson #1: Things always happen when you least expect them to. Life lesson #2: God will bring you true love if you let Him. Never go to any doctor’s appointment alone, even if you think it is routine.

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The Most Common Syndrome You've Never Heard Of: October 2014

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The Most Common Rare Syndrome You've Never Heard Of. Wednesday, October 8, 2014. If Only For a Moment- Heather Cole. As I lay in bed last night thinking about the past three years, beginning October 17. 2011, I saw a picture of myself in front of that ex-pat store. And I realized how much that symbolized where we are today, and where we will always be. Jon works for a local manufacturing company. This blog is provided for moral support purposes only. This blog is not a substitute in any way for medic...

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The Most Common Syndrome You've Never Heard Of: March 2015

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The Most Common Rare Syndrome You've Never Heard Of. Friday, March 27, 2015. Twins- and Then Colton by Amanda Brown. I am a critical care nurse, so I like to think that I have it together about the human body. But when this guy was born I was oblivious to the problems. The day after he was born the pediatrician noticed he had low set ears, a wide nasal fold, wide nipples,one undescended testical. And a heart murmur. She told me she thought he had this genetic disorder called Noonans Syndrome. So they wil...

teamnoonanblog.blogspot.com

The Most Common Syndrome You've Never Heard Of: February 2014

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The Most Common Rare Syndrome You've Never Heard Of. Saturday, February 1, 2014. Lina Windheim- Overcoming the Odds. I'm Lina and I come from Malmoe, which is the third capital of Sweden. I’m 27 years old and I have an amazing family: my parents, Ingrid and Sune and my two sisters, Boel (34 years old) and Ellen (29 years old). I have a little niece, Michaela and she was born on the 1st January 2014. My parents knew I wanted to survive, and not leave my family. My parents and I met a specialist and he imm...

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The Most Common Syndrome You've Never Heard Of: March 2014

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The Most Common Rare Syndrome You've Never Heard Of. Wednesday, March 12, 2014. Lee Robinson- Growing Up with a Soldier. This is a short story on what growing up with a brother with noonan syndrome is like from my point of view. When I was no longer in school with Connor he was bullied by both teachers and other students and I was no longer there to protect him. He did not tell us he was being bullied until he left school because he was scared of how I would react. Dad left when Connor was born, and was ...

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The Most Common Syndrome You've Never Heard Of: Twins--and Then Colton by Amanda Brown

http://teamnoonanblog.blogspot.com/2015/03/we-were-done.html

The Most Common Rare Syndrome You've Never Heard Of. Friday, March 27, 2015. Twins- and Then Colton by Amanda Brown. I am a critical care nurse, so I like to think that I have it together about the human body. But when this guy was born I was oblivious to the problems. The day after he was born the pediatrician noticed he had low set ears, a wide nasal fold, wide nipples,one undescended testical. And a heart murmur. She told me she thought he had this genetic disorder called Noonans Syndrome. So they wil...