karliegrace.blogspot.com
Karlie Grace: February 2009
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Wednesday, February 11, 2009. A few more pictures. This picture doesn't do justice to the beauty of glistening snow but i love it when the ground looks like it's covered in sparkly glitter! Would you believe that we have frozen goldfish in our little pond beneath all this pretty white stuff? I bet they're ready for a big thaw too! Lolyes they'll start swimming again :). I wonder what she was thinking as she looked at her world covered in white? Emmaleigh LOVES making snow angels! This was day two of our ...
seedsofapumpkin.blogspot.com
Seeds of a Pumpkin: October 2009
http://seedsofapumpkin.blogspot.com/2009_10_01_archive.html
Seeds of a Pumpkin. This is my blog, about our life - our family and my daughter B who has a rare degenerative neurological disorder. Is this blog mean't to be humourous, a venting mechanism or just a diary of events? Friday, 30 October 2009. B meets Simon Cowell. The clues were there when we arrived, lots of X Factor signs and pictures. But was it Simon, Louis, Danni or Cheryl? Other questions included - who did he think would win X Factor, down to a cheeky do you wear boxers or y-fronts! After half an ...
seedsofapumpkin.blogspot.com
Seeds of a Pumpkin: April 2010
http://seedsofapumpkin.blogspot.com/2010_04_01_archive.html
Seeds of a Pumpkin. This is my blog, about our life - our family and my daughter B who has a rare degenerative neurological disorder. Is this blog mean't to be humourous, a venting mechanism or just a diary of events? Monday, 26 April 2010. Sunshine on a rainy day. Links to this post. My little escape from worryland exercise I have been given isn't working very well right now but in case it helps others I will share! Says alot for my driving doesn't it :). Links to this post. Friday, 16 April 2010. I hav...
karliegrace.blogspot.com
Karlie Grace: January 2009
http://karliegrace.blogspot.com/2009_01_01_archive.html
Monday, January 19, 2009. I have so many updates that i hardly know where to begin. I barely blogged about December events and now January is almost over! Where does time go? Lately Karlie has been having a tough time at school. I'm not sure what the problem is other than she just doesn't want to be there! With all the fuss about Karlie, she handles it so well and even tries to educate others. Or is it If we don't know and we don't ask, then Rett and Marfans will just go away? Subscribe to: Posts (Atom).
karliegrace.blogspot.com
Karlie Grace: Rett Syndrome Treatment Study
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Tuesday, February 10, 2009. Rett Syndrome Treatment Study. More information: Partial reversal of Rett syndrome-like symptoms in MeCP2 mutant mice, Proceedings of the National Academy of Sciences, online February 9, 2009. Source: Whitehead Institute for Biomedical Research. Subscribe to: Post Comments (Atom). Please join us on Karlie's Rett Syndrome Journey Until we find a CURE! During Vital Stim Therapy. Want To Follow Karlie's Blog? View my complete profile. Rett Syndrome donations and information.
karliegrace.blogspot.com
Karlie Grace: Potential Pity Party....Beware
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Wednesday, February 11, 2009. Potential Pity Party.Beware. Thanks for checking to see how we’re doing. Not good, not bad sums us up lately. Karlie hasn’t been to school in three weeks. Two weeks were missed because we were snowed and iced in and we've both been sick. She still has quite a bit of mucous, choking on it in the mornings? The worst of the last few months has been the screaming though :( This makes me feel like i’m losing my mind. I can't imagine what Karlie must feel like? Bless her heart - s...
karliegrace.blogspot.com
Karlie Grace: Is my big girl ready for her big girl bed?
http://karliegrace.blogspot.com/2009/03/is-my-big-girl-ready-for-her-big-girl.html
Wednesday, March 18, 2009. Is my big girl ready for her big girl bed? Most nights Karlie sleeps very well in her new "big girl" bed but occasionally we find her in some pretty funny, yet worrisome positions. During the night, we put a gait across her doorway but any unsupervised time can be dangerous even in her bedroom. This is how i found her the first morning after she had slept in her new bed. Lately the weather here has been beautiful and we're very excited that tomorrow is the first day of Spring!
karliegrace.blogspot.com
Karlie Grace: I love her sweet smile!
http://karliegrace.blogspot.com/2009/03/she-makes-me-giggle.html
Saturday, March 21, 2009. I love her sweet smile! Emmaleigh was filming and didn't want her voice recorded so this is just a shot of my sweet girl enjoying the ride with a little music. I wonder what she thinks about. I sooo wish she could tell me! February 13, 2010 at 3:48 AM. Wife to the Rockstar. March 7, 2010 at 2:56 PM. Subscribe to: Post Comments (Atom). Please join us on Karlie's Rett Syndrome Journey Until we find a CURE! During Vital Stim Therapy. Want To Follow Karlie's Blog? Girl Power 2 Cure.
seedsofapumpkin.blogspot.com
Seeds of a Pumpkin: January 2010
http://seedsofapumpkin.blogspot.com/2010_01_01_archive.html
Seeds of a Pumpkin. This is my blog, about our life - our family and my daughter B who has a rare degenerative neurological disorder. Is this blog mean't to be humourous, a venting mechanism or just a diary of events? Thursday, 21 January 2010. As he awaits the results of his tissue biopsy and bone scans to see how bad his cancer is and what the treatment will be. Brave lad.got all your family and friends behind you. Links to this post. Sunday, 3 January 2010. Welcome to the next decade. Life in our House.
