nystagmus.co.uk

nystagmus.co.uk | The facts and personal experiences combined.

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. Nystagmus Open Day in Manchester. October 6, 2012. The Nystagmus Network (NN). Are holding their annual open day in just a couple of weeks! Saturday 20th October 2012. 10:00 – 16:00. This always proves to be quite a fun event and unites people with nystagmus from around the country. Infact, this unique event usually attracts people from Europe. Hopefully, I’ll see some of you there! September 12, 2012.

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The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. Nystagmus Open Day in Manchester. October 6, 2012. The Nystagmus Network (NN). Are holding their annual open day in just a couple of weeks! Saturday 20th October 2012. 10:00 – 16:00. This always proves to be quite a fun event and unites people with nystagmus from around the country. Infact, this unique event usually attracts people from Europe. Hopefully, I’ll see some of you there! September 12, 2012.

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nystagmus.co.uk | The facts and personal experiences combined. | nystagmus.co.uk Reviews

https://nystagmus.co.uk

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. Nystagmus Open Day in Manchester. October 6, 2012. The Nystagmus Network (NN). Are holding their annual open day in just a couple of weeks! Saturday 20th October 2012. 10:00 – 16:00. This always proves to be quite a fun event and unites people with nystagmus from around the country. Infact, this unique event usually attracts people from Europe. Hopefully, I’ll see some of you there! September 12, 2012.

INTERNAL PAGES

nystagmus.co.uk

1

Paper Rounds | nystagmus.co.uk

http://www.nystagmus.co.uk/teen-perspective/paper-rounds

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. When I first started a paper round I found it difficult to read the house numbers from the road especially if the house was set back from the road or if the number was small. Because of this, I went round beforehand, which helped me to remember where each house was. Like us on Facebook. Search nystagmus.co.uk:. Nystagmus Open Day in Manchester. Walking 15 miles for nystagmus research.

2

Exams | nystagmus.co.uk

http://www.nystagmus.co.uk/teen-perspective/at-school/exams

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. Like us on Facebook. Search nystagmus.co.uk:. Nystagmus Open Day in Manchester. Walking 15 miles for nystagmus research. How blind fans sensed Swansea’s success. Top Gear – why I wasn’t a fan. Proudly powered by WordPress.

3

Physical Education | nystagmus.co.uk

http://www.nystagmus.co.uk/teen-perspective/at-school/physical-education

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. I don’t just find ball games hard but also athletics, such as running; I often find it difficult to stay within my lane because the lines of the lane appear to be moving. My balance also seems to be affected as I find it immensely hard to walk along a beam without falling off. Somehow, I manage to return a small black squash ball. Like us on Facebook. Search nystagmus.co.uk:. Proudly powered by WordPress.

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nystagmus.co.uk | The facts and personal experiences combined. | Page 2

http://www.nystagmus.co.uk/page/2

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. Newer posts →. Nystagmus Network Open Day 2011. October 15, 2011. Annual Open Day has come around again – it’s next Saturday (22nd October). Each year, the UK based charity hosts an open day where they bring together people with a stake in nystagmus, from around the country. In some years, people have even flown to the UK for the weekend from distant parts of Europe. February 2, 2011. For those that don&#8...

5

Fishing | nystagmus.co.uk

http://www.nystagmus.co.uk/teen-perspective/fishing

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. A small orange float can be very difficult to see. Like us on Facebook. Search nystagmus.co.uk:. Nystagmus Open Day in Manchester. Walking 15 miles for nystagmus research. How blind fans sensed Swansea’s success. Top Gear – why I wasn’t a fan. Proudly powered by WordPress.

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nystagmusandcones.blogspot.com

Life in detail: Child Views

https://nystagmusandcones.blogspot.com/2013/12/child-views.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 6 December 2013. I have to share this. It is an transcript of interview with Charlotte where she has been asked her opinion about school. I can just imagine this conversation unfolding and. Her answers are so adorable! What I feel about my class. I like it because it is higher and closer to Year 1.". I like them because they are fun and they play games with me.". I can do this .

nystagmusandcones.blogspot.com

Life in detail: White Cane Assessment

https://nystagmusandcones.blogspot.com/2014/09/white-cane-assessment.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Wednesday, 17 September 2014. Charlotte has had an evaluation for a white cane. I set it up because I want her to have access to all the tools that she might need but I think I was also hoping that the verdict would be: "She's fine, she doesn't need a cane.". Not so, she does qualify. Will this make her less physically adventurous? What about riding a bike, or going for a run? But it was...

nystagmusandcones.blogspot.com

Life in detail: November 2013

https://nystagmusandcones.blogspot.com/2013_11_01_archive.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Sunday, 10 November 2013. I hope all the achromats in England had a good time at Bonfire Night this week. We took Charlotte to her first firework display and it was so gratifying to watch her sweet little face lit up by the fireworks as she looked up and took in the display. Subscribe to: Posts (Atom). London, United Kingdom. View my complete profile. Have you ever done a Disney Cruise?

nystagmusandcones.blogspot.com

Life in detail: July 2013

https://nystagmusandcones.blogspot.com/2013_07_01_archive.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Monday, 1 July 2013. I got the darkest tinted goggles I could find for Charlotte. ( These ones. Location: London, UK. Subscribe to: Posts (Atom). London, United Kingdom. I am the mother of two lovely little girls. We spend our time making, doing, sharing (mostly) and having fun together. View my complete profile. Have you ever done a Disney Cruise? The Shifty Eyes Blog.

nystagmusandcones.blogspot.com

Life in detail: May 2013

https://nystagmusandcones.blogspot.com/2013_05_01_archive.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 24 May 2013. Charlotte has a new teaching assistant assigned to her. She will be there 4 days a week which is what the statement funding will cover. It will be great to see how she makes progress in the classroom with a bit of extra support. On a practical level, I briefed the new teacher by giving her a copy of the incredibly helpful Teachers Guide to Helping a Student with Achr...

nystagmusandcones.blogspot.com

Life in detail: December 2012

https://nystagmusandcones.blogspot.com/2012_12_01_archive.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 7 December 2012. University College London have a page covering their genetic research for retinal diseases. They have updated for Achromatopsia CNGB3 and it looks like they are planning on moving forward with a clinical trial. I am not certain if this is the same one as Moorfields are doing. Subscribe to: Posts (Atom). London, United Kingdom. View my complete profile.

nystagmusandcones.blogspot.com

Life in detail: September 2014

https://nystagmusandcones.blogspot.com/2014_09_01_archive.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Wednesday, 17 September 2014. Charlotte has had an evaluation for a white cane. I set it up because I want her to have access to all the tools that she might need but I think I was also hoping that the verdict would be: "She's fine, she doesn't need a cane.". Not so, she does qualify. Will this make her less physically adventurous? What about riding a bike, or going for a run? But it was...

nystagmusandcones.blogspot.com

Life in detail: January 2013

https://nystagmusandcones.blogspot.com/2013_01_01_archive.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Wednesday, 23 January 2013. I really wanted to go over there and ask him all about his monocular: where he got it, when he started using one, how it helps him, etc. But it would have been inappropriate so I didn't. Subscribe to: Posts (Atom). London, United Kingdom. I am the mother of two lovely little girls. We spend our time making, doing, sharing (mostly) and having fun together.

nystagmusandcones.blogspot.com

Life in detail: Gene Therapy in The Economist

https://nystagmusandcones.blogspot.com/2014/02/gene-therapy-in-economist.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 14 February 2014. Gene Therapy in The Economist. I always find it exciting when I see an article on gene therapy in The Economist. Yes, they like to report on new technology early, but they are also not going to risk their reputation on reporting unpromising studies or research. The article, Gene Therapy: Ingenious, fixing a body's broken genes is becoming possible. Nystagmus&#46...

nystagmusandcones.blogspot.com

Life in detail: First Magnifiers

https://nystagmusandcones.blogspot.com/2013/10/first-magnifiers.html

Achromatopsia Blog - parenting a child with achromatopsia (nystagmus, cone dystrophy, colourblindness and low vision). Friday, 25 October 2013. I'm constantly amazed, and humbled, by the generosity of the NHS. If Charlotte needs it, she gets it. We were back at Great Ormond Street Hospital this week for an appointment for magnification devices and visual aids. I had been expecting that we would purchase these for her, but they were all freely given. Subscribe to: Post Comments (Atom). How exhausting woul...

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nystagmus.co.uk | The facts and personal experiences combined.

The facts and personal experiences combined. A teen’s perspective. Blackboards, whiteboards & OHPs. Nystagmus Open Day in Manchester. October 6, 2012. The Nystagmus Network (NN). Are holding their annual open day in just a couple of weeks! Saturday 20th October 2012. 10:00 – 16:00. This always proves to be quite a fun event and unites people with nystagmus from around the country. Infact, this unique event usually attracts people from Europe. Hopefully, I’ll see some of you there! September 12, 2012.

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