The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with Osteogenesis Imperfecta (OI). The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands.
http://www.oife.org/
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OIFE - Osteogenesis Imperfecta Federation Europe | oife.org Reviews
https://oife.org
The Osteogenesis Imperfecta Federation Europe (OIFE) is an umbrella association. Its membership consists of national and sub-national organisations which, in one way or another, support people living with Osteogenesis Imperfecta (OI). The OIFE was established in 1993 by six founding OI societies as a non-profit organisation and is registered as a charity in the Netherlands.
In English | Suomen Osteogenesis Imperfecta -yhdistys
http://oi-yhdistys.fi/in-english
Osteogenesis Imperfecta (OI) is a rare heritable disorder of the connective tissue. The most prominent feature of OI is bone fragility. The number of fractures can vary from a few to over a hundred. Other possible symptoms include:. Extreme laxity of the joints. A person with OI may show several but usually not all of these symptoms. OI expresses itself very individually. It does not affect intellectual development. The Finnish Osteogenesis Imperfecta Association. The Association has two meetings a year,...
ABOI: Março 2005
http://cristaleira-aboi.blogspot.com/2005_03_01_archive.html
CRISTALEIRA - JORNAL DA ABOI é o blog de Notícias da Associação Brasileira de Osteogenesis Imperfecta, a disfunção dos "Ossos de Cristal". Encontro Nacional de Apoio a Portadores de Doenças Genéticas. Dias 2 E 3 ABRIL de 2005. Informações e inscrições: (11) 6096-5311. Portadores de doenças genéticas, familiares, profissionais da área, sociedade civil, empresas do setor e representantes do governo. ABC da Genética Clínica. Prof Dr Décio Brunoni. Profª Dra Íscia Lopes Cendes. Profa Dra. Mayana Zatz. Centro...
ABOI: Maio 2005
http://cristaleira-aboi.blogspot.com/2005_05_01_archive.html
CRISTALEIRA - JORNAL DA ABOI é o blog de Notícias da Associação Brasileira de Osteogenesis Imperfecta, a disfunção dos "Ossos de Cristal". Bone Healing in Children With Osteogenesis Imperfecta Treated With Bisphosphonates. Pizones J., Plotkin H. Alvarez P., Gutierrez P., Bueno A., Fernandez-Arroyo A. Journal of Pediatric Orthopedics. PMID: 15832149 [PubMed - as supplied by publisher]. Postado por Rita Amaral. Links para esta postagem. Rede OI de blogs. Apofisite do Calcaneo - Doença de Sever.
ABOI: Aboi em 2011
http://cristaleira-aboi.blogspot.com/2010/12/aboi-em-2011.html
CRISTALEIRA - JORNAL DA ABOI é o blog de Notícias da Associação Brasileira de Osteogenesis Imperfecta, a disfunção dos "Ossos de Cristal". Depois de dez anos trabalhando na/para a Aboi, no dia 11/12/2010 foi eleito um novo quadro dirigente da entidade, do qual eu sou a presidente. Com isso a Associação certamente passará por mudanças a fim de tornar-se mais visível junto ao poder público, à sociedade brasileira e internacionalmente. O e-mail da Aboi é aboi@aboi.org.br. Postado por Rita Amaral.
OI:sta yleisesti | Suomen Osteogenesis Imperfecta -yhdistys
http://oi-yhdistys.fi/mika-on-oi
Osteogenesis Imperfecta eli synnynäinen luustohaurastumistauti on perinnöllinen sairaus, joka johtuu kollageenin, elimistön sidekudoksessa olevan valkuaisaineen, perintötekijöiden säätelemän rakenteen virheestä. Diagnoosi on johdettu sanoista osteogenese eli luun synty ja imperfect eli epätäydellinen. Oireet ja vammaisuutta aiheuttavat tekijät. Murtumien hoito ja ehkäisy.
Historia | Suomen Osteogenesis Imperfecta -yhdistys
http://oi-yhdistys.fi/oi-yhdistys
Ajatus oman yhdistyksen perustamisesta sai alkunsa eräästä OI:ta sairastavasta pojasta kertoneen lehtiartikkelin myötä, sillä artikkelin nähtyään useat OI-lasten vanhemmat ja OI sairastavat aikuiset ottivat yhteyttä pojan perheeseen. Yhdistyksen perustavaan kokoukseen 25. marraskuuta 1979 Nuutajärvelle osallistui 50 asiasta innostunutta ihmistä eri puolelta Suomea. Nuorin perustava jäsen oli kolmen kuukauden ikäinen. Perustavassa kokouksessa monet OI-aikuiset ja OI-tautia sairastavien lasten vanhemmat ta...
Classificazione O.I. | As.It.O.I.
http://www.asitoi.it/cose-loi/classificazione
Associazione Italiana Osteogenesi Imperfetta. Cos’è l’OI? Ricerche e studi medici. NOI & Voi. Storie di O.I. Cultura e O.I. Notiziario N.O.I. L’osteogenesi imperfetta (O.I.) è una malattia ereditaria che provoca accentuata fragilità delle ossa. Le persone affette da OI subiscono fratture apparentemente spontanee, o in seguito a traumi lievi, e le loro ossa possono subire delle deformazioni. Classificazione della Osteogenesi Imperfetta nei vari tipi:. Severità Clinica: Lieve non deformante. Caratteristich...
Dove si cura? | As.It.O.I.
http://www.asitoi.it/cose-loi/dove-si-cura
Associazione Italiana Osteogenesi Imperfetta. Cos’è l’OI? Ricerche e studi medici. NOI & Voi. Storie di O.I. Cultura e O.I. Notiziario N.O.I. Numeri utili in caso di emergenza. Centro di riferimento per le malattie scheletriche dell’infanzia. Reparto Pediatria Verona. Lasciate un messaggio e verrete richiamati. Traumatologia pediatrica di Brescia. Patologie rare metabolismo osseo. Policlinico Umberto I Roma. Lasciate un messaggio e verrete richiamati. CONTATTI CENTRI DI RIFERIMENTO. Via Taramelli 3/B 271...
Eventi e incontri | As.It.O.I.
http://www.asitoi.it/noi-voi/eventi-e-incontri
Associazione Italiana Osteogenesi Imperfetta. Cos’è l’OI? Ricerche e studi medici. NOI & Voi. Storie di O.I. Cultura e O.I. Notiziario N.O.I. Vacanza a ruota libera. Cell 346 0866660 - Codice Fiscale 92 01 98 00 280. Il nostro sito web utilizza i cookie per assicurarti la migliore esperienza di navigazione. Se desideri maggiori informazioni sui cookie accedi alla nostra Cookie Policy.
FAQ – domande/risposte | As.It.O.I.
http://www.asitoi.it/cose-loi/faq
Associazione Italiana Osteogenesi Imperfetta. Cos’è l’OI? Ricerche e studi medici. NOI & Voi. Storie di O.I. Cultura e O.I. Notiziario N.O.I. FAQ – domande/risposte. La terapia con bisfosfonati (o difosfonati) può essere utilizzata indistintamente in tutte le forme di O.I. sia lievi sia gravi, oppure è necessaria la valutazione preliminare di uno specialista? Prof Antoniazzi – Verona). In età pediatrica, una volta iniziata la terapia, è necessario sospenderla nel caso in cui il bambino si fratturi? In et...
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OIFE - Osteogenesis Imperfecta Federation Europe
Osteogenesis Imperfecta Federation Europe. Osteogenesis Imperfecta Federation Europe. Edition nr. 2-2018 of OIFE Magazine can now be downloaded as a PDF. It is a special extended edition about research, but also includes news from ERN-BOND and the OI-community, artist interview, travel report from India and more. White Paper on OI. On February 28th OIFE attended an ERN-BOND event at the EU Parliament. The. China Dolls new OIFE-member. OIFE 2018 ● DONATE HERE.
Programma #OIF Ede | Fikket
Innovatie moet je delen! Daarom opent ook gemeente Ede haar deuren op 29 en 30 november. Kom naar het Open innovatiefestival aan de Bergstraat 4 in Ede en ontmoet op onze innovatiemarkt organisaties die het anders doen! Wil jij zelf morgen anders denken, ontmoeten, vergaderen, communiceren en samenwerken. Kom naar een van de 14 workshops. Van sociale media en innovatie tot innovatief koken! Http:/ oifede.wordpress.com/. Deel de overheid en innoveer met ons mee! Van 28 november t/m 2 december.
Programma #OIF Ede | Fikket
Innovatie moet je delen! Daarom opent ook gemeente Ede haar deuren op 29 en 30 november. Kom naar het Open innovatiefestival aan de Bergstraat 4 in Ede en ontmoet op onze innovatiemarkt organisaties die het anders doen! Wil jij zelf morgen anders denken, ontmoeten, vergaderen, communiceren en samenwerken. Kom naar een van de 14 workshops. Van sociale media en innovatie tot innovatief koken! Http:/ oifede.wordpress.com/. Deel de overheid en innoveer met ons mee! Van 28 november t/m 2 december.
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