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Olivia's Special Heart: Our HLHS Journey

Olivias Fundraiser and Buying Tickets. Thursday, December 21, 2017. Everythings all good heading home. We are following up with local cardiology Jan 3. Now we can focus on having a great Christmas and new year. Thanks for reading and following along. All the positive thoughts and prayers have been amazing. Links to this post. Wednesday, December 20, 2017. Long night with IV itchies. Hopefully we'll get discharged before lunch time and we can do some fun things in Philly tonight. Links to this post. Our c...

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Olivia's Special Heart: Our HLHS Journey | oliviasheart.org Reviews
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Olivias Fundraiser and Buying Tickets. Thursday, December 21, 2017. Everythings all good heading home. We are following up with local cardiology Jan 3. Now we can focus on having a great Christmas and new year. Thanks for reading and following along. All the positive thoughts and prayers have been amazing. Links to this post. Wednesday, December 20, 2017. Long night with IV itchies. Hopefully we'll get discharged before lunch time and we can do some fun things in Philly tonight. Links to this post. Our c...
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Olivia's Special Heart: Our HLHS Journey | oliviasheart.org Reviews

https://oliviasheart.org

Olivias Fundraiser and Buying Tickets. Thursday, December 21, 2017. Everythings all good heading home. We are following up with local cardiology Jan 3. Now we can focus on having a great Christmas and new year. Thanks for reading and following along. All the positive thoughts and prayers have been amazing. Links to this post. Wednesday, December 20, 2017. Long night with IV itchies. Hopefully we'll get discharged before lunch time and we can do some fun things in Philly tonight. Links to this post. Our c...

INTERNAL PAGES

oliviasheart.org oliviasheart.org
1

Olivia's Special Heart: Our HLHS Journey: November 2013

http://www.oliviasheart.org/2013_11_01_archive.html

Olivias Fundraiser and Buying Tickets. Saturday, November 23, 2013. My sweet baby girl is undergoing her first sleep study. She has been so good about letting them hook her up and put all the probes on her. She only whined once and that was for the nasal cannual part. She amazes me with her strength and patience everyday. Links to this post. Wednesday, November 13, 2013. She refused to smile for any pictures. But happy birthday baby girl! Links to this post. Carving pumpkins is soooo much fun! I havent p...

2

Olivia's Special Heart: Our HLHS Journey: November 2014

http://www.oliviasheart.org/2014_11_01_archive.html

Olivias Fundraiser and Buying Tickets. Sunday, November 2, 2014. Happy 3rd Birthday Princess. Links to this post. Subscribe to: Posts (Atom). Follow Olivia by Email. Happy 3rd Birthday Princess. Babycenter Forum: HLHS Mommies. I havent posted in awhile in hopes that my next post would be: bought airplane tickets flying home today! 160; Turns out too many people we. Im not happy about this at all! Published with Blogger-droid v2.0.1. Her name Mable," says Delilah 2y/o. Post op day 4 . Frustration. 160;&#1...

3

Olivia's Special Heart: Our HLHS Journey: October 2014

http://www.oliviasheart.org/2014_10_01_archive.html

Olivias Fundraiser and Buying Tickets. Friday, October 31, 2014. Links to this post. Subscribe to: Posts (Atom). Follow Olivia by Email. Babycenter Forum: HLHS Mommies. I havent posted in awhile in hopes that my next post would be: bought airplane tickets flying home today! 160; Turns out too many people we. As many of you know, tomorrow is my birthday. Usually, I would be looking forward to a great dinner with family or a night out with the hubb. Im not happy about this at all! Move back 4 spaces. 160;&...

4

Olivia's Special Heart: Our HLHS Journey: Major milestones

http://www.oliviasheart.org/2015/06/major-milestones.html

Olivias Fundraiser and Buying Tickets. Saturday, June 13, 2015. Next Saturday, we will reach a major milestone in Olivia's life. She will attend and dance in her first dance recital. She has relentlessly practiced her tap and ballet dances each night over and over again. She loves getting her bun done and putting on her stage makeup. Olivia loves to hear her mommy/daddy read your comments! Subscribe to: Post Comments (Atom). Follow Olivia by Email. Babycenter Forum: HLHS Mommies. Move back 4 spaces.

5

Olivia's Special Heart: Our HLHS Journey: June 2015

http://www.oliviasheart.org/2015_06_01_archive.html

Olivias Fundraiser and Buying Tickets. Monday, June 29, 2015. She has been growing and changing so quickly. It is sad to think she is our last little one and she isn't that little anymore. She is in 5/6 clothes at 3 years old. Before I know it, Delilah and her will be sharing clothes. Below are some pictures from January to June of this year. Enjoy! Links to this post. Saturday, June 20, 2015. Links to this post. Saturday, June 13, 2015. Links to this post. Subscribe to: Posts (Atom). Then at rounds they...

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thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: Live it Happy

http://thelihns.blogspot.com/2014/04/live-it-happy.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Sunday, April 20, 2014. One thing I've often heard, from some wise cardiac practitioners, is: "Families whose HLHS child is doing well, are not sharing their journeys online - they're busy living their lives." I always thought, "yeah, that's probably true.". Well, it must be true. My last blog update was in January! We've certainly been busy living our lives. Jozie (North Dakota) and Zoe. Zoe, Will (Iowa), and Emmy. Papa and Emmy play badminton. How could w...

thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: November 2012

http://thelihns.blogspot.com/2012_11_01_archive.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Sunday, November 18, 2012. Hope in a Dewar. Less than 3 years later, we're already seeing progress with HLHS and stem cell research. Thankfully, before the tour, we were able to get photographs of the girls in front of their "dewars" which stores their cord blood/tissue. Emmy and Zoe sitting in front of Zoe's cord blood dewar. The girls, doing a bit of filming for CBR. Faux excitement about stem cells. Family photo in front of Zoe's cord tissue dewar. At th...

thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: June 2013

http://thelihns.blogspot.com/2013_06_01_archive.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Tuesday, June 25, 2013. For the past few months, we've been keeping ourselves busy. A trip to Disneyland, birthday parties, Children's Museum, soccer practice, mom and dad trips out of town for business, Emmy's summer school. Since I started drafting a blog about our Disney trip last month and never got around to finishing it, I'll just throw up some pictures and you can see how much fun the girls had yourself, without me boring you with narratives. Fifteen...

thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: The Normal Life

http://thelihns.blogspot.com/2015/06/the-normal-life.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Friday, June 19, 2015. I visited our blog today (to find a link for a new HLHS family) and couldn't believe my last post was over a year ago! Whoopsies, my bad. The past year flew by and I'm happy to report that all is well. And Normal. Zoe started and finished pre-Kindergarten - which was way more difficult for mom than Zoe! She loved it, and ended the school year with not one, but two, boyfriends. 65279;. Zoe and Ryder (aka Batman and Batgirl). And bra...

thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: Home, Sweet, Home

http://thelihns.blogspot.com/2013/08/home-sweet-home.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Thursday, August 29, 2013. Home, Sweet, Home. Even though we've been home for 5 days already, we're still unwinding. The emotional upload that occurs before a surgical trip takes a while to download from. This picture pretty much sums it up. During her echo, Zoe asked if she could see her heart smile again. The echo tech was super confused :) When the tech showed me her Fontan, she said, "wow, who did her surgery? Zoe is due back for another cardiac visit i...

thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: Our Fontan Success Story

http://thelihns.blogspot.com/2013/09/our-fontan-success-story.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Saturday, September 14, 2013. Our Fontan Success Story. Zoe rocked the Fontan. Period. Immediate extubation without consequence, great pain management (off all pain medication day 5, including Tylenol), walking less than 24 hours post open heart surgery. With such great results and speedy recovery, I've been asked a few times, "what's your secret? The answers received helped mold our plan of action. Has Reiki Masters on staff, within their cardiac unit.

thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: September 2013

http://thelihns.blogspot.com/2013_09_01_archive.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Sunday, September 22, 2013. Team Zoe: Arizona Congenital Heart Walk. It's that time of the year again; time to fire up Team Zoe and get ready for the Arizona Congenital Heart Walk. The walk is on November 3, 2013 at Tempe Diablo Stadium at 10:00 am. 2013 Team Zoe shirts are available for purchase. The shirts are $12 each ($17 each if out of state shipping is needed) and all proceeds benefit The Children's Heart Foundation. The design for this year's shirt:.

thelihns.blogspot.com thelihns.blogspot.com

The Lihn Family: October 2012

http://thelihns.blogspot.com/2012_10_01_archive.html

The Lihn Family Caleb, Stacey, Emerson and Zoe. Saturday, October 13, 2012. The last few days, it's been much cooler in Phoenix. And the girls couldn't be happier to get outside! With fall here, that means flu shot time. Zoe, of course, thought the shot was a breeze. Emmy, not so much. I had to promise her frozen yogurt afterwards just to avoid a complete meltdown. And I'll leave you with a few really fun pictures of the Lihn girls at the annual HopeKids. Wednesday, October 3, 2012. Team Zoe t-shirts are...

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Sisters With Addison's Disease

Sisters With Addison's Disease. Sisters With Addison's Disease. Olivia was diagnosed with Addison's disease at almost 3 years old in July 2008. Little sister, Kinsley, was diagnosed with Addison's @ 7 months in Feb. 2011. We now know they were both born with it! Friday, February 18, 2011. Dr Belton and Dr Desrosiers appointments. We saw Dr Belton 52 times in 2006 alone! Overall, it was a great appointment and we are very comforted by Dr Desrosiers confidence in his ability to treat our girls. I find ...

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4440 Olivia Shearing A2 Media. Wednesday, 27 March 2013. Here is the link to my evaluation blog -. Http:/ oliviashearinga2mediaevaluation.blogspot.com/. Saturday, 23 March 2013. An example of an 'Empire' review can be seen below -. For my poster, I took inspiration from the theatrical poster for 'Submarine'. Thursday, 31 January 2013. Short film - final version. Wednesday, 23 January 2013. Analysing film posters (Slideshare example). Horror film poster analysis. Thursday, 15 November 2012. I completed th...

oliviasheart.org oliviasheart.org

Olivia's Special Heart: Our HLHS Journey

Olivias Fundraiser and Buying Tickets. Thursday, December 21, 2017. Everythings all good heading home. We are following up with local cardiology Jan 3. Now we can focus on having a great Christmas and new year. Thanks for reading and following along. All the positive thoughts and prayers have been amazing. Links to this post. Wednesday, December 20, 2017. Long night with IV itchies. Hopefully we'll get discharged before lunch time and we can do some fun things in Philly tonight. Links to this post. Our c...

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Olivia's Heart Fund | Fighting back against congenital heart defects

Olivia's Heart Fund. Fighting back against congenital heart defects. Skip to primary content. Skip to secondary content. How You Can Help. Welcome to Olivia’s Heart Fund!

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