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..Life With Zoe..

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Monday, March 5. My little surfer girl. Wow wow wow . where is the time going? My baby girl is growing up so fast and I would like to hit the pause button. Yesterday she turned 8 months old! Can you believe it! So what have we been up to? Nom nom nom avocado. We did b...

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..Life With Zoe.. | onebigmiracle.blogspot.com Reviews

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Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Monday, March 5. My little surfer girl. Wow wow wow . where is the time going? My baby girl is growing up so fast and I would like to hit the pause button. Yesterday she turned 8 months old! Can you believe it! So what have we been up to? Nom nom nom avocado. We did b...

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1 life with zoe

2 8 months old

3 milestones and play

4 laughter

5 teeth

6 food

7 fundraiser

8 heart

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10 jennifer

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..Life With Zoe.. | onebigmiracle.blogspot.com Reviews

https://onebigmiracle.blogspot.com

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Monday, March 5. My little surfer girl. Wow wow wow . where is the time going? My baby girl is growing up so fast and I would like to hit the pause button. Yesterday she turned 8 months old! Can you believe it! So what have we been up to? Nom nom nom avocado. We did b...

INTERNAL PAGES

onebigmiracle.blogspot.com

1

..Life With Zoe..: July 2011

http://onebigmiracle.blogspot.com/2011_07_01_archive.html

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Thursday, July 28. It Is A Sunny Day. Zoe is doing fantastic today! When we arrived to visit she was wide awake and very content. We talked to her and tickled her belly, cherishing these moments when she is happy and alert. Happy at 3 Weeks and 3 Days! Tuesday's early...

2

..Life With Zoe..: November 2011

http://onebigmiracle.blogspot.com/2011_11_01_archive.html

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Monday, November 28. And There Is A Plan. Sorry for the delay in updating, but my macbook's charger went out on me over two weeks ago. Tonight B went to Apple and replaced it for me, yea! So to update on Zoe's cardiology appointment a week ago. Even though it is chall...

3

..Life With Zoe..: February 2011

http://onebigmiracle.blogspot.com/2011_02_01_archive.html

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Wednesday, February 23. Sorry for the lagging on updates, but things have been quite a bit crazy around here. The big news is a BOY and GIRL! Here is a short recap. We are 17 weeks! I am feeling pretty good except for the never ending sciatic and back pain. I spoke wi...

4

..Life With Zoe..: March 2011

http://onebigmiracle.blogspot.com/2011_03_01_archive.html

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Wednesday, March 30. I have been out of touch for quite some time as life has turned upside down for us. This will be a long recap in as much detail as I can handle at this time. It is scattered and may make no sense at time, please bear with me. March 1st - 18 weeks.

5

..Life With Zoe..: 8 Months Old!

http://onebigmiracle.blogspot.com/2012/03/8-months-old.html

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Monday, March 5. My little surfer girl. Wow wow wow . where is the time going? My baby girl is growing up so fast and I would like to hit the pause button. Yesterday she turned 8 months old! Can you believe it! So what have we been up to? Nom nom nom avocado. We did b...

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jacobsspecialheart.blogspot.com

Jacob's Journey: August 2013

http://jacobsspecialheart.blogspot.com/2013_08_01_archive.html

Thursday, August 15, 2013. Home and LOVING IT! THANK YOU FOR ALL OF THE PRAYERS! As you can see, they worked. I am sorry I have not updated the blog since we have been home but we have been busy. Jake is doing AMAZING. He is pretty much back to normal. Happy, playing and pretty much pushing every limit and restriction he was sent home on lol. As soon as we got home I set up my command center. Anyone who knows me also knows that I do better when I am in control (I am a serious control freak). Diuril is no...

jacobsspecialheart.blogspot.com

Jacob's Journey: October 2014

http://jacobsspecialheart.blogspot.com/2014_10_01_archive.html

Tuesday, October 28, 2014. Wow, I can't believe how long it has been since I have updated Jake's blog. I haven't written in over a year! I apologize for the lack of updates, so much has happened over the last year. One big and exciting event was Jacob's Make-a-Wish trip! The last time I blogged Jake had just come home from having his Fontan (Last open heart surgery). I am happy to report that heart wise he has been doing great! Getting his EKG, such a big boy now. 1st day of Pre-K. I am not denying he is...

jacobsspecialheart.blogspot.com

Jacob's Journey: October 2012

http://jacobsspecialheart.blogspot.com/2012_10_01_archive.html

Tuesday, October 23, 2012. Hitting the Odds (again): The Factor Five Leiden Gene. When we left off I was talking about our trip to Cincinnati. Well we have actually been there again since then but I will get to that in a minute. To finish the blog post I started TWO months ago, the second day Jake had a ultrasound of his clot (Which he screamed through). Fast forward 3 weeks which also happened to be 3 weeks ago (told you I am behind on updating). Jacob has 1 Factor Five Leiden gene. My little man didn't...

jacobsspecialheart.blogspot.com

Jacob's Journey: Long overdue update...

http://jacobsspecialheart.blogspot.com/2014/10/long-overdue-update.html

Tuesday, October 28, 2014. Wow, I can't believe how long it has been since I have updated Jake's blog. I haven't written in over a year! I apologize for the lack of updates, so much has happened over the last year. One big and exciting event was Jacob's Make-a-Wish trip! The last time I blogged Jake had just come home from having his Fontan (Last open heart surgery). I am happy to report that heart wise he has been doing great! Getting his EKG, such a big boy now. 1st day of Pre-K. I am not denying he is...

jacobsspecialheart.blogspot.com

Jacob's Journey: July 2013

http://jacobsspecialheart.blogspot.com/2013_07_01_archive.html

Wednesday, July 31, 2013. She left and we went on with our day. Since they wake Jake up like that he starts out the day trusting no one. He tells anyone who steps foot in our room "Bye-Bye. See you later". He is afraid of everyone. It is pretty sad, but he is so sweet about it. Next the fellow came in. He told me the X-ray looked a lot worse (My heart sank). Think there is enough stuff in his bed lol? Lol Wait. WHAT? Within 10 minutes he started vomiting. FINALLY AN ANSWER TO HIS VOMITING. Jake ate like ...

jacobsspecialheart.blogspot.com

Jacob's Journey: New Year... New Updates!

http://jacobsspecialheart.blogspot.com/2015/01/new-year-new-updates.html

Saturday, January 17, 2015. New Year. New Updates! I hope everyone had a great holiday season. The boys had a wonderful Christmas and got spoiled by Santa. Their elf (Ralphie). Came back to stay with us again and Jake LOVE it. Jake really got into the holiday spirit this year. He especially loved all of the decorations. It was so cute seeing how excited he was over Christmas. So that is great news as well. Dr Stines (Jake's local cardio). And purple fingernails are all the rage now, haven't you heard?

jacobsspecialheart.blogspot.com

Jacob's Journey: September 2012

http://jacobsspecialheart.blogspot.com/2012_09_01_archive.html

Thursday, September 6, 2012. Cincinnati Appointments: Part 1. Yesterday Jake and I traveled to Cincinnati Children's Hospital Medical Center. We had a ton of appointments and it was a very long exhausting two days. I have decided to break this into two blog posts because there is so much to cover. This was music to my ears because I have been concerned lately that he has been more "Blue" and had lower sats. He said his heart function was great and everything looked beautiful. YAY! 4 No concerning dysmorp...

jacobsspecialheart.blogspot.com

Jacob's Journey: April 2012

http://jacobsspecialheart.blogspot.com/2012_04_01_archive.html

Monday, April 30, 2012. The good news about extubation is I can hold him again! Thank you ladies for getting me out even just to another floor for a while. It helps especially talking with people who walk this journey every day. Wish us luck with the scope and week ahead. I will update tomorrow! Sunday, April 29, 2012. Day 5 Holding Strong. Jacob has been doing much better. I actually slept until 10:30 this morning! Jacob's Monitor. Holding Steady. They added oral meds (Valium and Morphine). Jacob's card...

jacobsspecialheart.blogspot.com

Jacob's Journey: May 2012

http://jacobsspecialheart.blogspot.com/2012_05_01_archive.html

Tuesday, May 15, 2012. Home but not so settled. We are back in West Virginia and a ton has gone on since my last post. Sorry I have not posted earlier but we have been trying to get into our routine and have had a few trips to the hospital. Jake is doing great and is loving being home. His breathing is so quiet it is kind of Eerie. Sunday night (May 6 th. Fast forward to the next morning. I woke up at about 7am. I heard the nurse say "He had a great night". I quickly told her NO, I want an attending NOW!

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..Life With Zoe..

Finding courage and hope to mend half a heart. Zoe was born on July 4, 2011 with Hypoplastic Left Heart Syndrome. This is our journey to find courage and hope to mend our daughter's half of a heart. Photography by Craig Coppola Photography. Monday, March 5. My little surfer girl. Wow wow wow . where is the time going? My baby girl is growing up so fast and I would like to hit the pause button. Yesterday she turned 8 months old! Can you believe it! So what have we been up to? Nom nom nom avocado. We did b...

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