ONESTRONG.ORG

One Strong Girl

Our much loved girl died peacefully, in no pain, just after midnight October 11th, 2013. In January of 2013, after six years struggling to find a diagnosis for our daughter, we were told she would be dead within 700 days. She had a unique progressive, degenerative nervous system disorder. The only one of it's kind in the world. No known treatment or cure. PLEASE NOTE: We have no fancy automatic way to update this total. But we will attempt to provide updates on a weekly basis. And should be directed to m...

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One Strong Girl | onestrong.org Reviews

<META> DESCRIPTION

Our much loved girl died peacefully, in no pain, just after midnight October 11th, 2013. In January of 2013, after six years struggling to find a diagnosis for our daughter, we were told she would be dead within 700 days. She had a unique progressive, degenerative nervous system disorder. The only one of it's kind in the world. No known treatment or cure. PLEASE NOTE: We have no fancy automatic way to update this total. But we will attempt to provide updates on a weekly basis. And should be directed to m...

<META> KEYWORDS

1 our girl

2 the lab

3 our goal

4 donate

5 media

6 tweet

7 our daughter india

8 visit india on

9 coupons

10 reviews

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our girl,the lab,our goal,donate,media,tweet,our daughter india,visit india on

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One Strong Girl | onestrong.org Reviews

https://onestrong.org

Our much loved girl died peacefully, in no pain, just after midnight October 11th, 2013. In January of 2013, after six years struggling to find a diagnosis for our daughter, we were told she would be dead within 700 days. She had a unique progressive, degenerative nervous system disorder. The only one of it's kind in the world. No known treatment or cure. PLEASE NOTE: We have no fancy automatic way to update this total. But we will attempt to provide updates on a weekly basis. And should be directed to m...

INTERNAL PAGES

onestrong.org

1

FAQ

http://www.onestrong.org/pages/FAQ.html

How can I contact you? Media inquiries are very very welcome. Direct them to media@onestrong.org. We are a Canadian Family living in a small village 45 minutes north of the capital city, Ottawa. India's Mum, Lesley, is a writer. Her Dad, Mark, is a graphic designer. India is our only child. India had two dogs: Finn and Dimitri. Finn is a Jack Russell mix, and Dimitri is a crazy Cocker Spaniel/Border Collie cross who loved India to pieces. What is your funding goal? Click here for details. This website is...

2

Our Aim and Goal

http://www.onestrong.org/pages/goal.html

To keep India's memory alive through the funds set up in her name and to advance research, and gain insight into Neurodegenerative Lipid Disorders. India's disorder may have huge ramifications for other degenerative conditions. So, please, donate and. Share Share. Share. We're convinced there are enough people on this planet who would happily donate if they just got the chance to read about India. India's school has been incredibly supportive. And should be directed to media@onestrong.org.

3

The Lab: Our Hope

http://www.onestrong.org/pages/lab.html

Information about this lab has been taken offline. The lab would prefer to focus on the research required at present outside of media attention. This website is produced and managed by India's family and is not directly associated to or affiliated with any of the (wonderful) organizations described on this site. Media Inquiries are welcome. And should be directed to media@onestrong.org.

4

India

http://www.onestrong.org/pages/Our%20Girl.html

This is a very condensed version of India's story. For a more complete picture of India and our life with her, read her mothers' blog: Fall On Me, Dear. India was born perfectly healthy. She grew and progressed normally. Happy. Healthy. Full of spirit. One strong little girl. Always was. At the time of her death she was still a bright, caring, talented, occasionally bad-tempered teenager, pining for a love of her own like a million other girls her age. And her parents Christmas 2005. Over the past six ye...

5

One Strong Girl

http://www.onestrong.org/index.html

Our much loved girl died peacefully, in no pain, just after midnight October 11th, 2013. In January of 2013, after six years struggling to find a diagnosis for our daughter, we were told she would be dead within 700 days. She had a unique progressive, degenerative nervous system disorder. The only one of it's kind in the world. No known treatment or cure. PLEASE NOTE: We have no fancy automatic way to update this total. But we will attempt to provide updates on a weekly basis. And should be directed to m...

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gabbypiper.blogspot.com

Little Bit of Everything: A girl called India

http://gabbypiper.blogspot.com/2013/09/a-girl-called-india.html

Little Bit of Everything. Wednesday, 4 September 2013. A girl called India. India is 16 years old, and used to go to Churchill and Summit, but is now too sick to go to school at all. Her family is raising money to do research into the rare disease she has and to hopefully find a cure. She has something like Spinal Muscular Atrophy with Progressive Myoclonic Epilepsy but not exactly that. So far there is no known cure or treatment. So far she is the only person the doctors know has it. A girl called India.

gabbypiper.blogspot.com

Little Bit of Everything: September 2013

http://gabbypiper.blogspot.com/2013_09_01_archive.html

Little Bit of Everything. Sunday, 29 September 2013. Last night I watched kid snippets! I found this one especially funny because it remained me of last year on the last couple days of school! At school we did minute to win it, here is the kid snippet "minute to win it"! Last night I also watched this kid snippet it is about a cooking show! In this one the two kids are making bacon pancakes! There is a song called bacon pancakes, it is right. Below the cooking show video! Wednesday, 4 September 2013.

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One Strong Girl

Our much loved girl died peacefully, in no pain, just after midnight October 11th, 2013. In January of 2013, after six years struggling to find a diagnosis for our daughter, we were told she would be dead within 700 days. She had a unique progressive, degenerative nervous system disorder. The only one of it's kind in the world. No known treatment or cure. PLEASE NOTE: We have no fancy automatic way to update this total. But we will attempt to provide updates on a weekly basis. And should be directed to m...

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