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Averie

Sunday, April 1, 2012. It is easy to see, hard to forsee. Well I am late to update again. and boy is there a lot to to update on! Just a heads up this is gonna be a long post. As 2011 came to a close we thought so would a lot of our questions. not exactly how things have panned out. So in 2012 we were given a diagnosis of LCA, Lebers Congenital Amarosis. Then in February that was taken back, because the genetic confirmation tests didn't confirm it. There are 17 known. With us. If I can get everyone a...

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Averie | ouraves.blogspot.com Reviews

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Sunday, April 1, 2012. It is easy to see, hard to forsee. Well I am late to update again. and boy is there a lot to to update on! Just a heads up this is gonna be a long post. As 2011 came to a close we thought so would a lot of our questions. not exactly how things have panned out. So in 2012 we were given a diagnosis of LCA, Lebers Congenital Amarosis. Then in February that was taken back, because the genetic confirmation tests didn't confirm it. There are 17 known. With us. If I can get everyone a...

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Averie | ouraves.blogspot.com Reviews

https://ouraves.blogspot.com

Sunday, April 1, 2012. It is easy to see, hard to forsee. Well I am late to update again. and boy is there a lot to to update on! Just a heads up this is gonna be a long post. As 2011 came to a close we thought so would a lot of our questions. not exactly how things have panned out. So in 2012 we were given a diagnosis of LCA, Lebers Congenital Amarosis. Then in February that was taken back, because the genetic confirmation tests didn't confirm it. There are 17 known. With us. If I can get everyone a...

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ouraves.blogspot.com

1

Averie: Little bit of this and a little bit of that.

http://ouraves.blogspot.com/2011/01/little-bit-of-this-and-little-bit-of.html

Friday, January 14, 2011. Little bit of this and a little bit of that. Mollie and I have experienced similar situations seperatly at the grocery store. Where Aves will be looking at something on the shelf and not see us move down the isle maybe four or five feet away and all of a sudden Averie literally starts to panic and starts screaming our names while turning around in circles searching for us, all the while, eeirly looking. Ugh, is my favorite onamonapia. January 14, 2011 at 7:04 PM.

2

Averie: May 2011

http://ouraves.blogspot.com/2011_05_01_archive.html

Tuesday, May 3, 2011. Which form of proverb do you prefer Better late than never, or Better never than late? I am late to update. SORRY. So on February 15th Averie had her blood drawn for the genetic testing, she did awesome! On April 8th we got word that the genetic test came back normal. While that sounds great, it also puts us back to square one; we still have no explanation for Averie's vision loss or why her Optic nerve is atrophic. It's going to be a long day for everyone. Thankfully one of the...

3

Averie: "A diploma only proves that you know how to look up answers". Solomon Short

http://ouraves.blogspot.com/2011/01/diploma-only-proves-that-you-know-how.html

Tuesday, January 11, 2011. A diploma only proves that you know how to look up answers". Solomon Short. 1/11/2011, what a date. Aves will never see any better than she sees right now, she will never drive a car, (unless, like my Dad and Mollie pointed out, something COULD change in medicine before she is even eligible. Love you all,. January 11, 2011 at 7:09 PM. Let me know if you ever need anything. Softball season or not! January 12, 2011 at 2:27 AM. Thanks for the update. I knew you all had the app...

4

Averie: It is easy to see, hard to forsee.

http://ouraves.blogspot.com/2012/04/it-is-easy-to-see-hard-to-forsee.html

Sunday, April 1, 2012. It is easy to see, hard to forsee. Well I am late to update again. and boy is there a lot to to update on! Just a heads up this is gonna be a long post. As 2011 came to a close we thought so would a lot of our questions. not exactly how things have panned out. So in 2012 we were given a diagnosis of LCA, Lebers Congenital Amarosis. Then in February that was taken back, because the genetic confirmation tests didn't confirm it. There are 17 known. With us. If I can get everyone a...

5

Averie: Monday is a lame way to spend 1/7 of your life.

http://ouraves.blogspot.com/2011/01/monday-is-lame-way-to-spend-17-of-your.html

Sunday, January 30, 2011. Monday is a lame way to spend 1/7 of your life. Of all the days of the week Monday's are my least favorite by FAR. However, I've been fretting this particular Monday for almost two weeks now. S only January 31st! Feels like an entire year has gone on in the last 31 days of my life. I know that i should be capitalized but i actually like lower case i's better. :). Subscribe to: Post Comments (Atom). Monday is a lame way to spend 1/7 of your life. View my complete profile.

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Averie

Sunday, April 1, 2012. It is easy to see, hard to forsee. Well I am late to update again. and boy is there a lot to to update on! Just a heads up this is gonna be a long post. As 2011 came to a close we thought so would a lot of our questions. not exactly how things have panned out. So in 2012 we were given a diagnosis of LCA, Lebers Congenital Amarosis. Then in February that was taken back, because the genetic confirmation tests didn't confirm it. There are 17 known. With us. If I can get everyone a...

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