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our journey with infantile spasms

Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story...

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our journey with infantile spasms | ourbeautifulemily.blogspot.com Reviews
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Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story...
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6 so it begins
7 this path
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our journey with infantile spasms | ourbeautifulemily.blogspot.com Reviews

https://ourbeautifulemily.blogspot.com

Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story...

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ourbeautifulemily.blogspot.com ourbeautifulemily.blogspot.com
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our journey with infantile spasms: September 2012

http://ourbeautifulemily.blogspot.com/2012_09_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Thursday, September 27, 2012. It's been a while. I haven't blogged since February! Many things have happened since then. Pneumonia.twice, RSV, moved.twice, 3rd birthday, and now the NAVY! Joe, Emily's dad, has enlisted in the Navy. Boot camp is March 12th. We will, of course, miss our family and friends. She started therapy in a new...

2

our journey with infantile spasms: February 2012

http://ourbeautifulemily.blogspot.com/2012_02_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Monday, February 6, 2012. I have decided to remove the privacy on my blog. Any legal issues have been resolved now. I will update from time to time. My daily updates will be on facebook at Emily page. https:/ www.facebook.com/? If you "like" the page you will get updates in your facebook feed. I will update on fb later.

3

our journey with infantile spasms: January 2013

http://ourbeautifulemily.blogspot.com/2013_01_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Friday, January 25, 2013. Joe called me at 1:30am to let me know he is there safely. It was a quick call. He said he could call again in 2 weeks. Emily won't sleep at night and wakes up crying. Normally, Joe would get up with her and go in the living room and hold her. It was their alone time. I can't do it like he does apparently.

4

our journey with infantile spasms: January 2012

http://ourbeautifulemily.blogspot.com/2012_01_01_archive.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Friday, January 27, 2012. I am doing most of my updates about Emily on a facebook page for her. It is much easier to keep up with. I can text pictures and info in without having to log onto a computer. Https:/ www.facebook.com/pages/For-the-love-of-Emily/365099180170471. Links to this post. Subscribe to: Posts (Atom).

5

our journey with infantile spasms: First phone call

http://ourbeautifulemily.blogspot.com/2013/01/first-phone-call.html

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Friday, January 25, 2013. Joe called me at 1:30am to let me know he is there safely. It was a quick call. He said he could call again in 2 weeks. Emily won't sleep at night and wakes up crying. Normally, Joe would get up with her and go in the living room and hold her. It was their alone time. I can't do it like he does apparently.

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fansofjames.blogspot.com fansofjames.blogspot.com

Fans of James: July 2012

http://fansofjames.blogspot.com/2012_07_01_archive.html

Fans of James Facebook Page. Monday, July 30, 2012. I just wanted to extended a GIANT THANK YOU. To all 44 donators to James fund. we up to $2,430 and we have 29 days left of this campaign. I will post the link to the new campaign closer to the end of this one. I am not allowed to extend the campaign, I just have to create a new one. Tuesday, July 24, 2012. Today James got onto a work-out call for the 1st time with me. He has tried it once with OT but 1st time with me and he did a good job! We met with t...

princessemilyjean.blogspot.com princessemilyjean.blogspot.com

Raising Emily: Persistence

http://princessemilyjean.blogspot.com/2010/03/persistence.html

A Father's Journey Through Infantile Spasms. Sunday, March 21, 2010. So how in the world does a person get through all this when all they want to do sometimes is throw in the towel? I've found that being persistent is key. It's not easy but if you stay persistent things tend to work themselves out. The Parable of the Persistent Widow. 1 Then Jesus told his disciples a parable to show them that they should always pray and not give up. Will he keep putting them off? 8 I tell you, he will see that they get ...

fansofjames.blogspot.com fansofjames.blogspot.com

Fans of James: January 2013

http://fansofjames.blogspot.com/2013_01_01_archive.html

Fans of James Facebook Page. Friday, January 25, 2013. My Facebook friend Patti Vasquez did such a wonderful thing for our family. She was on the Steve Cochran show Thursday (AM 560) to talk about an upcoming show she will be performing locally. While on the air she spoke about James. Here the audio clip in the background of James video. Here is what she wrote on her Facebook page: Thank you Steve Cochran. For having me on 560 AM today. For those of you who missed it we talked about Stacy. July 1, 2012.

juliesyarn.blogspot.com juliesyarn.blogspot.com

The crazy life of a mom, scientist, and knitter: February 2010

http://juliesyarn.blogspot.com/2010_02_01_archive.html

The crazy life of a mom, scientist, and knitter. I am wife to an amazing man, mom to two incredibly handsome little boys, and a full-time Ph.D. grad student in immunology who used to knit in her spare time, but now just wishes she could. View my complete profile. Blogs I Follow and others. Knit By God's Hand. The death of blogs. Dragon Tails and other Schweighardt Adventures. Grandma G's Summer Camp. Our journey with infantile spasms. July 19, 2012 - Back from Gatlinburg! Eat at Joe's - Recipes. He is be...

jadonsisstory.blogspot.com jadonsisstory.blogspot.com

Jadons IS Story: August 2014

http://jadonsisstory.blogspot.com/2014_08_01_archive.html

Jadon's Infantile Spasms Story. Sunday, August 3, 2014. I'm leaving you a picture of my brother and I at the pediatricians office the other day. This pic was taken at the beginning, it wasn't long until we took these girl looking gowns off. LOL Anyway we went for our well checks. We have both grown 3 inches since last year. Our pediatrician said we are growing and doing well! Subscribe to: Posts (Atom). There is great meaning in life for those who are willing to make the journey for the ones we love!

jadonsisstory.blogspot.com jadonsisstory.blogspot.com

Jadons IS Story: March 2014

http://jadonsisstory.blogspot.com/2014_03_01_archive.html

Jadon's Infantile Spasms Story. Sunday, March 2, 2014. Therapy, Therapy, and Sports! Pics of me kicking the ball and throwing the ball! My mom never dreamed she would be able to see me play soccer. God is good! Look at that one handed hit for a 4 year old. Yeah mom says I'm amazing, I'm just finding ways to do the things I want to do! Subscribe to: Posts (Atom). There is great meaning in life for those who are willing to make the journey for the ones we love! Louisiana, United States.

jadonsisstory.blogspot.com jadonsisstory.blogspot.com

Jadons IS Story: January 2014

http://jadonsisstory.blogspot.com/2014_01_01_archive.html

Jadon's Infantile Spasms Story. Tuesday, January 28, 2014. We love Detroit Children's Hospital! Thanks for all your prayers! Thursday, January 9, 2014. The Scar I Wear. Subscribe to: Posts (Atom). There is great meaning in life for those who are willing to make the journey for the ones we love! It's been a hard journey for us, but the joy that Jadon brings to our family is worth it! It's amazing what a person can do with only half a brain! Louisiana, United States. View my complete profile.

jadonsisstory.blogspot.com jadonsisstory.blogspot.com

Jadons IS Story: Unexpected but needed update!

http://jadonsisstory.blogspot.com/2014/06/unexpected-but-needed-update.html

Jadon's Infantile Spasms Story. Saturday, June 28, 2014. Unexpected but needed update! I know I said I wasn't going to blog until after my 3 week therapy but I have a few new things and a prayer request. First of all I'm loving every minute of summer. We have been spending a lot of time at the library. We are part of the summer reading program and we have almost met our summer reading goal! Thanks again for the prayers. Love, Jadon. Subscribe to: Post Comments (Atom). Louisiana, United States.

jadonsisstory.blogspot.com jadonsisstory.blogspot.com

Jadons IS Story: Therapy, Therapy, and Sports!!!

http://jadonsisstory.blogspot.com/2014/03/therapy-therapy-and-sports.html

Jadon's Infantile Spasms Story. Sunday, March 2, 2014. Therapy, Therapy, and Sports! Pics of me kicking the ball and throwing the ball! My mom never dreamed she would be able to see me play soccer. God is good! Look at that one handed hit for a 4 year old. Yeah mom says I'm amazing, I'm just finding ways to do the things I want to do! Subscribe to: Post Comments (Atom). There is great meaning in life for those who are willing to make the journey for the ones we love! Louisiana, United States.

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our journey with infantile spasms

Our journey with infantile spasms. Our beautiful daughter, Emily, was diagnosed with infantile spasms in dec, 09. Our world has been turned upside down and this is our story. Friday, January 25, 2013. Joe called me at 1:30am to let me know he is there safely. It was a quick call. He said he could call again in 2 weeks. Emily won't sleep at night and wakes up crying. Normally, Joe would get up with her and go in the living room and hold her. It was their alone time. I can't do it like he does apparently.

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