cdkl5.de.tl
cdkl5 - Geschichten anderer Betroffener
http://cdkl5.de.tl/Geschichten-anderer-Betroffener.htm
Auch diese Kinder leiden an einer Mutation im CDKL5 Gen:. Vegard - http:/ vegardslife.blogspot.com/. Asha, Bree and Glyn. Http:/ ourcdkl5journey.blogspot.com/. Http:/ www.myspace.com/ourlittleangel2006. Http:/ leahrosebarnes.blogspot.com/. Http:/ alexisamber.blogspot.com/. Http:/ cdklklc5.blogspot.com/. Http:/ www.freewebs.com/hannahlouisesmith. Http:/ www.jadescdkl5journey.blogspot.com. Http:/ www.izabellabaker.com. Http:/ www.mialoudon.co.uk. Http:/ gunnersstory.blogspot.com/.
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: May 2008
http://jadescdkl5journey.blogspot.com/2008_05_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, May 28, 2008. T and Jade being silly! As you can see by the photos, we finally received our waiver to begin building again! That's our news for now...
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: March 2012
http://jadescdkl5journey.blogspot.com/2012_03_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, March 21, 2012. Sooooooo.it's been a while :). So, we head back next week for another consult with the epileptologist and a follow-up with her new ...
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: December 2008
http://jadescdkl5journey.blogspot.com/2008_12_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Wednesday, December 31, 2008. Wishing all of you the very best in 2009! Links to this post. Tuesday, December 23, 2008. On top of all of this crap, Jade's run...
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: January 2009
http://jadescdkl5journey.blogspot.com/2009_01_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, January 23, 2009. While we were waiting on the lab results, our alternative to the soy was to feed her baby food (duh! Why didn't I think of that?
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: May 2009
http://jadescdkl5journey.blogspot.com/2009_05_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Tuesday, May 26, 2009. I can't believe it's been since February that I've posted! We have a new game called, "Yay, Jade! Links to this post. Thanks for visiti...
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: November 2008
http://jadescdkl5journey.blogspot.com/2008_11_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, November 28, 2008. What I am thankful for. I suppose another update is long overdue :) First off, let's just say the dog is sucking the life out of me!
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: September 2008
http://jadescdkl5journey.blogspot.com/2008_09_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Tuesday, September 30, 2008. Tomorrow we leave for Ireland! Pray we make it there and back in one piece (pretty morbid, huh? Links to this post. Please look a...
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: October 2008
http://jadescdkl5journey.blogspot.com/2008_10_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Friday, October 31, 2008. Links to this post. Friday, October 24, 2008. Links to this post. Wednesday, October 22, 2008. He's doing well so far! It obviously ...
jadescdkl5journey.blogspot.com
Jade's journey with CDKL5: December 2007
http://jadescdkl5journey.blogspot.com/2007_12_01_archive.html
Jade's journey with CDKL5. Little is known about CDKL5. I am hoping by creating this blog, word will get out and parents will communicate more if their child(ren) have been diagnosed with this mutation. It is a devastating neurological condition causing a variety of problems, intractable epilepsy being one of the primary signs. Welcome to our blog. Sunday, December 30, 2007. Thanks to everyone for your posts. I'm glad people are reading the blog (should I be? Our nanny is now getting settled in and the k...