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Cystic Fibrosis:We're Learning As We Go

A blog about having a child with cystic fibrosis.

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Cystic Fibrosis:We're Learning As We Go | ourcfstory.blogspot.com Reviews
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A blog about having a child with cystic fibrosis.
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Cystic Fibrosis:We're Learning As We Go | ourcfstory.blogspot.com Reviews

https://ourcfstory.blogspot.com

A blog about having a child with cystic fibrosis.

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1

Cystic Fibrosis:We're Learning As We Go: Great Strides 2015

http://www.ourcfstory.blogspot.com/2015/07/great-strides-2015.html

We're Learning As We Go. Wednesday, July 22, 2015. Our original Great Strides walk was rescheduled this year due to severe weather. So on June 27th, we were finally able to get together to celebrate our fundraising efforts! Thanks to all of Emery's Angels we were able to raise $33,729 for the Cystic Fibrosis Foundation! Every year I am amazed at how generous people can be. Since Emery was diagnosed 3 years ago we have raised over $70,000 for the Cystic Fibrosis Foundation. It makes a difference! People f...

2

Cystic Fibrosis:We're Learning As We Go: June 2015

http://www.ourcfstory.blogspot.com/2015_06_01_archive.html

We're Learning As We Go. Tuesday, June 16, 2015. On June 4th, Emery went in for endoscopic sinus surgery to have nasal polyps removed and to get her sinuses cleaned out. It ended up taking about 2 hours to do the procedure and afterwards her doctor said it was a really good thing that we brought her in. He showed us a picture of one of her nasal passages which I will spare you in case you are eating! But it was very interesting to see! Subscribe to: Posts (Atom). Emery's Angels - Great Strides 2015.

3

Cystic Fibrosis:We're Learning As We Go: April 2015

http://www.ourcfstory.blogspot.com/2015_04_01_archive.html

We're Learning As We Go. Friday, April 24, 2015. Our local chapter of the Cystic Fibrosis Foundation awarded our team, Emery's Angels, with the "Newby" Award for fearlessly playing a significant role in the chapter though new to the world of cystic fibrosis! We are honored to be a part of this organization! Thursday, April 16, 2015. Our CF Awareness/Fundraising Video. Thursday, April 9, 2015. Here are the t-shirts for our Great Strides walk this year. But you don't have to be walking to buy one! E was bo...

4

Cystic Fibrosis:We're Learning As We Go: "As long as it's healthy!"

http://www.ourcfstory.blogspot.com/2014/12/as-long-as-its-healthy.html

We're Learning As We Go. Monday, December 22, 2014. As long as it's healthy! I was talking to someone the other day about whether or not they were planning to try to have a baby soon. We talked about the timing and he said they were trying to plan around a vacation and a few other things. But then he said, "honestly, it doesn't matter when we have a baby.as long as it's healthy! I used to say that too. Just so you know, it sounds or rather feels. Like a punch in the gut. But what happens if they're not?

5

Cystic Fibrosis:We're Learning As We Go: Sinus Problems

http://www.ourcfstory.blogspot.com/2015/05/sinus-problems.html

We're Learning As We Go. Wednesday, May 13, 2015. I've had concerns for awhile about E's constant runny/stuffy nose and snoring. It got to the point where we knew it was time to dig further and figure out what the problem was, so we made an appointment with a pediatric ENT. She's so easy going when it comes to doctor visits. The CT scan confirmed that she has extensive sinus blockage. I'll update again after the surgery. Please keep E in your prayers! May 14, 2015 at 9:21 AM. Such a great mommy! Our litt...

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boys. brothers. best friends. » ashleyannphotography.com

http://www.ashleyannphotography.com/blog/2015/05/19/boys-brothers-best-friends

Family. Travel. DIY. Advocacy. Capturing the Everyday. Boys brothers. best friends. It is so wet here. Standing water covers large portions of our yard. It is wet, but it is also warm. The boys contemplated digging a pool, but my oldest informed me it would take too long so they settled for a hot tub. The hot tub also came with a slide/diving board. I mean, who doesn’t want to slide into a pit of mud? My oldest called the slide “luxury”. Well, son, that is one way to describe it. Link to this post. When ...

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Cystic Fibrosis:We're Learning As We Go

Were Learning As We Go' itemprop='name'/. We're Learning As We Go. Wednesday, July 22, 2015. Our original Great Strides walk was rescheduled this year due to severe weather. So on June 27th, we were finally able to get together to celebrate our fundraising efforts! Thanks to all of Emery's Angels we were able to raise $33,729 for the Cystic Fibrosis Foundation! It makes a difference! Tuesday, June 16, 2015. On June 4th, Emery went in for endoscopic sinus surgery to have nasal polyps removed and to get he...

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