ncfragilex.org
Prevalence and Risk of Migraine Headaches in Adult Fragile X Premutation Carriers – North Carolina Fragile X Resource Center
http://ncfragilex.org/prevalence-and-risk-of-migraine-headaches-in-adult-fragile-x-premutation-carriers
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. Prevalence and Risk of Migraine Headaches in Adult Fragile X Premutation Carriers. Wwwncbi.nlm.nih.gov/pubmed/23373759. Prevalence and Risk of Migraine Headaches in Adult Fragile X Premutation Carriers. February 8, 2013. February 8, 2013. Reading, Writing & Behavior? Fragile X – A to Z: A Guide For Families By Families →. National Fragile X Foundation.
ncfragilex.org
Workshops – North Carolina Fragile X Resource Center
http://ncfragilex.org/2014workshop-resources
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. November 15, 2015. An overview of the steps involved in preparing for the car of children/adults with disabilities and a discussion of the various scenarios involved in the decision making. Resources from this Workshop. Includes: Letter of intent and Adult Medicaid Manual. March 1, 2014. The Impact of Hyperarousal on Development and Learning. The Behavior of Language.
fxam.org
Resources
http://www.fxam.org/resources.html
We know how frustrating it is to not know where to go for help, or to get information, or to find support and services that are available. Below are some - certainly not all - links, information and contacts that may be able to direct you to the right places. Should you come across other items that you think would be beneficial to others, feel free to send that to us atsupport@fxam.org. Be sure to check back often as we add more and more to this page. National Fragile X Foundation. Your Genes Your Health.
ncfragilex.org
Top 10 Things a Teacher Should Know About Fragile X Syndrome – North Carolina Fragile X Resource Center
http://ncfragilex.org/top-10-things-a-teacher-should-know-about-fragile-x-syndrome
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. Top 10 Things a Teacher Should Know About Fragile X Syndrome. Students with fragile X syndrome can often be like the proverbial girl with the curl in the middle of her forehead when they’re good, they’re very, very good, and when they are bad they are horrid. Knowing these 10 things will help bring out the good and minimize the horrid! Don’t force eye contact. Accomm...
ncfragilex.org
Useful Links – North Carolina Fragile X Resource Center
http://ncfragilex.org/links-and-resources
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. The National Fragile X Foundation unites the Fragile X community to enrich lives through educational and emotional support, promote public and professional awareness, and advance research toward improved treatments and a cure for Fragile X. Pediatric Occupational Therapy has offices in Raleigh and Durham, and focuses on sensory processing issues, cognitive, motor, an...
ncfragilex.org
Preparing for Your Child’s Individual Education Programs (IEPs) – North Carolina Fragile X Resource Center
http://ncfragilex.org/preparing-for-your-childs-individual-education-programs-ieps
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. Preparing for Your Child’s Individual Education Programs (IEPs). First, I took a class on IEPs, offered by our local Arc (the national organization for people with intellectual disabilities, www.thearc.org. The best part was that they spoke about the specific IEP form that our school district used, not a generic one. Next, I asked my husband to come with me to every ...
ncfragilex.org
What is Fragile X? – North Carolina Fragile X Resource Center
http://ncfragilex.org/fragile-x
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. What is Fragile X? FRAGILE X SYNDROME (FXS). You can have fragile X syndrome even if your parents do not have it; a family history of fragile X syndrome, developmental problems, or intellectual disability may not be present. Intellectual disabilities, ranging from mild learning disabilities to more severe intellectual impact. Anxiety and unstable mood. Fragile X-asso...
ncfragilex.org
Event Photo Gallery – North Carolina Fragile X Resource Center
http://ncfragilex.org/photos
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. NC LINKS leaders at St. Louis, MO for LINKS Conference – October 26-27, 2013. NC Fragile X Awareness Day Bowlathon – July 21, 2013. Check out the cool link below (thanks Angel! Https:/ www.youtube.com/watch? Preparing for Your Child’s Individual Education Programs (IEPs). Top 10 Things a Teacher Should Know About Fragile X Syndrome. National Fragile X Foundation.
ncfragilex.org
Duke Fragile X Clinic – North Carolina Fragile X Resource Center
http://ncfragilex.org/north-carolina-fragile-x-clinic
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. Duke Fragile X Clinic. Our clinic serves families on a weekly basis. We welcome new families, as well as families that have been coming for several years. Most of our patients are North Carolina residents, but we also see individuals from out-of-state. For new and return appointments, or for medication refills on established patients,. Our clinic’s providers include:.
ncfragilex.org
Examining Factors that Lead to Positive Family Adaptation to Fragile X Syndrome – North Carolina Fragile X Resource Center
http://ncfragilex.org/examining-factors-that-lead-to-positive-family-adaptation-to-fragile-x-syndrome
North Carolina Fragile X Resource Center. A member of the National Fragile X Foundation's Community Support Network. Duke Fragile X Clinic. Examining Factors that Lead to Positive Family Adaptation to Fragile X Syndrome. Examining Factors that Lead to Positive Family Adaptation to Fragile X Syndrome. May 1, 2014. May 2, 2014. Fragile X – A to Z: A Guide For Families By Families. Top 10 Things a Teacher Should Know About Fragile X Syndrome →. Preparing for Your Child’s Individual Education Programs (IEPs).
