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Our Fragile X Journey

Our Fragile X Journey. Tuesday, March 4, 2014. It's been awhile. I seem to say that a lot with this blog. So after some gentle nagging (not really gentle at all) from some of my favorite family members, I am going to try really hard to stay on top of this. If I tried to update you from September it would take way to long so I'll just start right where we are today. Is spread the word to end the word. Why do we still need this day? Why do I keep seeing and hearing the "r" word? How insensitive you sound?

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Our Fragile X Journey | ourfxjourney.blogspot.com Reviews

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Our Fragile X Journey. Tuesday, March 4, 2014. It's been awhile. I seem to say that a lot with this blog. So after some gentle nagging (not really gentle at all) from some of my favorite family members, I am going to try really hard to stay on top of this. If I tried to update you from September it would take way to long so I'll just start right where we are today. Is spread the word to end the word. Why do we still need this day? Why do I keep seeing and hearing the r word? How insensitive you sound?

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6 posted by

7 turtles mom

8 no comments

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thank you,today,tomorrow,love,tina,posted by,turtles mom,no comments,summer is over,part 1,we conducted interviews,mommy,2 comments,older posts,favorite links,congressman gregg harper,fragile x webring,prev,random,next,join,favorite blogs,basically fx

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Our Fragile X Journey | ourfxjourney.blogspot.com Reviews

https://ourfxjourney.blogspot.com

Our Fragile X Journey. Tuesday, March 4, 2014. It's been awhile. I seem to say that a lot with this blog. So after some gentle nagging (not really gentle at all) from some of my favorite family members, I am going to try really hard to stay on top of this. If I tried to update you from September it would take way to long so I'll just start right where we are today. Is spread the word to end the word. Why do we still need this day? Why do I keep seeing and hearing the "r" word? How insensitive you sound?

INTERNAL PAGES

ourfxjourney.blogspot.com

1

Our Fragile X Journey: August 2012

http://ourfxjourney.blogspot.com/2012_08_01_archive.html

Our Fragile X Journey. Monday, August 20, 2012. Conference, Adoption Attorneys, school starts.oh my! I am going to try and put a whole lot of information for all of you in one short blog. The kids are currently engrossed in Fresh beat band. Yes we have moved from Dora to Fresh Beat Band. We're even starting to get into Max and Ruby. What is up with Max and Ruby? Do they not have parents? Are they out doing what rabbits do while their kids are baking cookies and getting bunny badges? Anyway moving on now.

2

Our Fragile X Journey: December 2012

http://ourfxjourney.blogspot.com/2012_12_01_archive.html

Our Fragile X Journey. Tuesday, December 18, 2012. Is this about me or him? I heard that phrase a few times during a recent visit with an awesome Fragile X family, a family that I am so happy to call friends. It was amazing to watch Cindi and Chris Rogers parent. I learned so much. It was so great to pick their brains while they were here visiting. Hanging out with them and their boys was SO MUCH FUN! Who are we doing this for"? Realizing that I had a little boy who was so frustrated and overstimulated i...

3

Our Fragile X Journey: July 2013

http://ourfxjourney.blogspot.com/2013_07_01_archive.html

Our Fragile X Journey. Sunday, July 28, 2013. Our Baby Girl Is 4! Dear Cynthia Diane on your 4th birthday,. Love you all the days,. Subscribe to: Posts (Atom). What Is Fragile X? Donate To Fragile X Research. Fragile X of Michigan. Time Magazine - Fragile X Factor. Living With Fragile X - A Remarkable Documentary. Our Baby Girl Is 4! Watermark template. Powered by Blogger.

4

Our Fragile X Journey: October 2012

http://ourfxjourney.blogspot.com/2012_10_01_archive.html

Our Fragile X Journey. Tuesday, October 16, 2012. A few blogs ago I talked about the posts that get put into drafts for some reason or another. This is one of those posts. I figured it was now or never. It was written very early on when we got Cupcake. I didn't change any of it except the ending. Does she hate me? Would this life we are giving her be the same kind of life she would have dreamed for her? Would this be the life she would have given her if she could? Would she recognize her? Do I show her?

5

Our Fragile X Journey: Makris Holiday Rooooaaaad trip...Part 2

http://ourfxjourney.blogspot.com/2013/08/makris-holiday-rooooaaaad-trippart-2.html

Our Fragile X Journey. Saturday, August 17, 2013. Makris Holiday Rooooaaaad trip.Part 2. Michigan will always be home.no matter where we end up, how far away we travel, Michigan will always be home. It will always have a piece of my heart and little piece always breaks every time we leave. Do I understand why we are here in Texas? I do miss the mild summer's though. It's pretty cool when your aunt and uncle have a pool! This all started out pretty innocent and turned into one wild water fight. Hanging ou...

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Our Families

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Kyle Laske, Kenneth Chesney Jr. and Michelle Laske. Austin Nantais with his sister-in-law Angela having some fun tubing - summer 2009. The Nantais Family - Austin, Sally, Natalie, Jerry and Genevieve. Andrew Langan Coutilish and Kyle Laske watching a DVD at the 2008 FXAM Holiday Party @ Andrew's house. Andrew Langan Coutilish and Aunt Therese swinging at the 2008 FXAM Family Picnic (after the annual Fun Run / Walk). Hayden Makris and his Dad Mike at the go-carts in Disneyland. A Day At A Time.

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A slight hole in his education | X-Dad

https://xdadxdad.wordpress.com/2009/08/06/a-slight-hole-in-his-education

A dad and his son with Fragile X Syndrome. Life With My X-Men. Our Fragile X Journey. Fragile X Research Foundation. National Fragile X Foundation. Brenda on Stuff It. On Train in Vain. On Train in Vain. Train in Vain…. On Paradox in Sneakers. On Your Fury Makes Me Smile. Laquo; Wheels of Progress. The Wheels of Progress Fall Off The Bicycle ». A slight hole in his education. August 6, 2009. For some reason it occurred to me to ask Sonny the other day, “What rhymes with cat? What else rhymes with cat?

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Hitting on all cylinders | X-Dad

https://xdadxdad.wordpress.com/2009/08/11/hitting-on-all-cylinders

A dad and his son with Fragile X Syndrome. Life With My X-Men. Our Fragile X Journey. Fragile X Research Foundation. National Fragile X Foundation. Brenda on Stuff It. On Train in Vain. On Train in Vain. Train in Vain…. On Paradox in Sneakers. On Your Fury Makes Me Smile. You Big Meanie ». Hitting on all cylinders. August 11, 2009. What the heck happened with this day? Then there are days like yesterday. I’d sure like to know what we did. Of the sprinkler, and they both had a fine time. 8211; Alas, I had...

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Train in Vain | X-Dad

https://xdadxdad.wordpress.com/2009/08/24/train-in-vain

A dad and his son with Fragile X Syndrome. Life With My X-Men. Our Fragile X Journey. Fragile X Research Foundation. National Fragile X Foundation. Brenda on Stuff It. On Train in Vain. On Train in Vain. Train in Vain…. On Paradox in Sneakers. On Your Fury Makes Me Smile. Laquo; Your Fury Makes Me Smile. Catch-up Post ». August 24, 2009. Damn, I should hire myself out a blog-post-title thinker-upper. Train in Vain! A hip musical reference and a dead-on summary of the story I’m here to tell! 8220;Yes, Son...

xdadxdad.wordpress.com

The Wheels of Progress Fall Off The Bicycle | X-Dad

https://xdadxdad.wordpress.com/2009/08/07/the-wheels-of-progress-fall-off-the-bicycle

A dad and his son with Fragile X Syndrome. Life With My X-Men. Our Fragile X Journey. Fragile X Research Foundation. National Fragile X Foundation. Brenda on Stuff It. On Train in Vain. On Train in Vain. Train in Vain…. On Paradox in Sneakers. On Your Fury Makes Me Smile. Laquo; A slight hole in his education. The Wheels of Progress Fall Off The Bicycle. August 7, 2009. This entry was posted on August 7, 2009 at 8:42 am and is filed under Family. Leave a Reply Cancel reply. Enter your comment here.

xdadxdad.wordpress.com

Stuff It | X-Dad

https://xdadxdad.wordpress.com/2009/07/31/stuff-it

A dad and his son with Fragile X Syndrome. Life With My X-Men. Our Fragile X Journey. Fragile X Research Foundation. National Fragile X Foundation. Brenda on Stuff It. On Train in Vain. On Train in Vain. Train in Vain…. On Paradox in Sneakers. On Your Fury Makes Me Smile. Laquo; Always Look On The Bright Side of Life. You Can’t Make Me ». July 31, 2009. His newfound hobby of feeding the dog from the table, Sonny has to be closely watched during mealtimes. Eating is a physical activity! I don’t full...

xdadxdad.wordpress.com

X-Dad | A dad and his son with Fragile X Syndrome | Page 2

https://xdadxdad.wordpress.com/page/2

A dad and his son with Fragile X Syndrome. August 5, 2009. Does Sonny make another appearance. Harry’s doing four laps for Sonny’s every one. If Sonny wanted to bike to school, he’d have to start out now to get there the following week. Once he figures that out, he’ll learn in no time. Then we’ll have to teach him how to ride around the streets safely. And then we’ll have to start thinking about whether, and when, to let him go off on his own. That’s. Away, but who can help thinking about it? We’re...

xdadxdad.wordpress.com

September | 2009 | X-Dad

https://xdadxdad.wordpress.com/2009/09

A dad and his son with Fragile X Syndrome. Archive for September, 2009. September 1, 2009. Man, this blogging thing is tricky. When there’s not much going on, it follows that there’s nothing worth blogging about. But when. Is going on, there’s no time to write about it. Let’s catch up, using broad strokes:. Peanut agreed that one more time was the way to go, and she would be quiet and keep still throughout the procedure. Would you like to place money on how long. Life With My X-Men. Our Fragile X Journey.

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FXtraspecial: Facebook groups...

http://fxtraspecial.blogspot.com/2013/06/facebook-groups.html

Blessings they are. Patience we need. For what they have to give. Let us all take heed. Tuesday, June 4, 2013. Https:/ www.facebook.com/groups/189561464532499/? Https:/ www.facebook.com/FragileXAndAutismFamiliesForStx209. Check out this site too! Http:/ www.fragilexfiles.com/. Http:/ ourfxjourney.blogspot.com/. Http:/ myfragilexboy.blogspot.com.au/. Http:/ famigliagrande.blogspot.com/. Http:/ lifewithmyxmen.blogspot.com/. Subscribe to: Post Comments (Atom). Simple theme. Theme images by Jason Morrow.

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Ourfx Shutting Down February 3rd. We are sad to announce that Ourfx will be shutting down on February 3rd 2012. We are closing the site in order to focus the time and energy working on new projects and opportunities. We would like to thank all those people who we have connected with over the course of this project especially from the trading, business and start up communities for all you have done to support this project. Contact us at contact@ourfx.com.

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Our Fragile X Journey

Our Fragile X Journey. Tuesday, March 4, 2014. It's been awhile. I seem to say that a lot with this blog. So after some gentle nagging (not really gentle at all) from some of my favorite family members, I am going to try really hard to stay on top of this. If I tried to update you from September it would take way to long so I'll just start right where we are today. Is spread the word to end the word. Why do we still need this day? Why do I keep seeing and hearing the "r" word? How insensitive you sound?

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