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Pneumothorax. Ptosis. Torticollis. Joubert. Miracle.

Our journey with Connor.

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Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. | ourjourneywithconnor.blogspot.com Reviews
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Our journey with Connor.
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Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. | ourjourneywithconnor.blogspot.com Reviews

https://ourjourneywithconnor.blogspot.com

Our journey with Connor.

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ourjourneywithconnor.blogspot.com ourjourneywithconnor.blogspot.com
1

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle.: January 2015

http://ourjourneywithconnor.blogspot.com/2015_01_01_archive.html

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. Our journey with Connor. Tuesday, January 6, 2015. New Year - New Adventures. Connor loves wearing his fox hat! It’s been a wild few months for our family. The biggest news is, of course, that we are moving to the Chicago area. I took a new call with the Evangelical Lutheran Church in America to serve as the Director of the Youth Gathering ( www.elca.org/youthgathering. Vince and Connor after the concert. We had a lovely Christmas season. Connor re...

2

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle.: March 2015

http://ourjourneywithconnor.blogspot.com/2015_03_01_archive.html

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. Our journey with Connor. Sunday, March 29, 2015. It’s a strange thing to be heartbroken and thankful at the same time. And so, when you’re told that your baby has a condition that will limit the possibilities or at least make them much, much harder to achieve you are heartbroken. You grieve for the little things that will be lost and for the big things that may be out of reach. Love in your life. Clara made this adorable playdough art of she and Connor.

3

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle.: New Year - New Adventures

http://ourjourneywithconnor.blogspot.com/2015/01/new-year-new-adventures.html

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. Our journey with Connor. Tuesday, January 6, 2015. New Year - New Adventures. Connor loves wearing his fox hat! It’s been a wild few months for our family. The biggest news is, of course, that we are moving to the Chicago area. I took a new call with the Evangelical Lutheran Church in America to serve as the Director of the Youth Gathering ( www.elca.org/youthgathering. Vince and Connor after the concert. We had a lovely Christmas season. Connor re...

4

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle.: February 2015

http://ourjourneywithconnor.blogspot.com/2015_02_01_archive.html

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. Our journey with Connor. Sunday, February 15, 2015. The Struggle is Real. 8221; at which point he started crying harder. I just sat there looking at him and then myself turned into a puddle of tears. He stopped screaming and watched me cry. Maybe feeling sorry for what he had done? Maybe puzzled over why mama was acting like this? Who knows – but he certainly responded to this emotional scene he was witnessing. Vision wise both his Vision Therapist and...

5

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle.: Whirlwind Summer

http://ourjourneywithconnor.blogspot.com/2014/08/whirlwind-summer.html

Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. Our journey with Connor. Sunday, August 17, 2014. It’s hard to believe that the school and program year begins again in just two short weeks. It’s been a whirlwind of a summer. I’ve been traveling a lot for work and it feels like (since getting home on Wednesday night from the latest trip) I’m just getting my feet on the ground for summer vacation. Practicing on his Amtryke! Doing some standing in his new shoes that. Go over his DAFO leg braces. Subscr...

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Pneumothorax. Ptosis. Torticollis. Joubert. Miracle. Our journey with Connor. Saturday, March 17, 2018. Sissy Saves the Day. Connor was invited to a friend’s birthday party for the first time recently. A little boy from his kindergarten class invited him and although we were skeptical he would enjoy it (it was at one of those bounce house places), we RSVPed yes. Who knows when the next invitation would come? I asked if we should come over thinking Clara could maybe get him to enjoy the party a bit more.

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