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Kyler and Wiskott Aldrich Syndrome

Friday, March 11, 2011. 1 YEAR POST BMT! As of today our sweet baby Kyler is 1 year post transplant! Im going to start this update with just a catch-up/ reminder on what all he went through to get here:. 8 Days of chemo (3 of which was ATG which was VERY rough on him). 11 surgeries to this date. ( He will have 1 more and we hope that is all). The Transplant itself (which was a female cord from Europe that was a 6/6 match and same blood type). SEVERAL CT scans, Xrays, and ultrasounds. Thought I would star...

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Kyler and Wiskott Aldrich Syndrome | ourperfectlittleboy.blogspot.com Reviews

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Friday, March 11, 2011. 1 YEAR POST BMT! As of today our sweet baby Kyler is 1 year post transplant! Im going to start this update with just a catch-up/ reminder on what all he went through to get here:. 8 Days of chemo (3 of which was ATG which was VERY rough on him). 11 surgeries to this date. ( He will have 1 more and we hope that is all). The Transplant itself (which was a female cord from Europe that was a 6/6 match and same blood type). SEVERAL CT scans, Xrays, and ultrasounds. Thought I would star...

<META> KEYWORDS

1 skip to main

2 skip to sidebar

3 several medications

4 2 feeding tubes

5 posted by

6 kyler's mommy

7 5 comments

8 hi everyone

9 sooo sweet

10 2 comments

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Kyler and Wiskott Aldrich Syndrome | ourperfectlittleboy.blogspot.com Reviews

https://ourperfectlittleboy.blogspot.com

Friday, March 11, 2011. 1 YEAR POST BMT! As of today our sweet baby Kyler is 1 year post transplant! Im going to start this update with just a catch-up/ reminder on what all he went through to get here:. 8 Days of chemo (3 of which was ATG which was VERY rough on him). 11 surgeries to this date. ( He will have 1 more and we hope that is all). The Transplant itself (which was a female cord from Europe that was a 6/6 match and same blood type). SEVERAL CT scans, Xrays, and ultrasounds. Thought I would star...

INTERNAL PAGES

ourperfectlittleboy.blogspot.com

1

Kyler and Wiskott Aldrich Syndrome: January 1st 2011

http://www.ourperfectlittleboy.blogspot.com/2011/01/january-1st-2011.html

Saturday, January 1, 2011. Thought I would start the New Year out with an update on my little man Kyler. Firts of all, he is off of ALL his meds except IVIG, bactrim on weekends and megace (his appetite stimulant). So far he is doing really great! We all had a GREAT Christmas. His room looks like Toys R Us exploded in it and I LOVE it! Im so glad he had a huge, fun Christmas. He definately deserves it. I love him so! January 2, 2011 at 6:37 AM. Best Wishes to a very happy and healthy New year.

2

Kyler and Wiskott Aldrich Syndrome: more BMT pics

http://www.ourperfectlittleboy.blogspot.com/2010/10/more-bmt-pics.html

Wednesday, October 13, 2010. Subscribe to: Post Comments (Atom). Kyler and Wiskott Aldrich Syndrome. Transplant pics. Way Overdue! So far so Good! I am Jill. I am married to a wonderful man Coty and we have an amazing little boy Kyler who has a rare disorder called Wiskott-Aldrich syndrome. This blog will follow him from the time he was diagnosed up until he is a year post BMT. View my complete profile.

3

Kyler and Wiskott Aldrich Syndrome: July 2010

http://www.ourperfectlittleboy.blogspot.com/2010_07_01_archive.html

Tuesday, July 27, 2010. Tuesday, July 13, 2010. Subscribe to: Posts (Atom). Kyler and Wiskott Aldrich Syndrome. I am Jill. I am married to a wonderful man Coty and we have an amazing little boy Kyler who has a rare disorder called Wiskott-Aldrich syndrome. This blog will follow him from the time he was diagnosed up until he is a year post BMT. View my complete profile.

4

Kyler and Wiskott Aldrich Syndrome: So far so Good! :)

http://www.ourperfectlittleboy.blogspot.com/2010/10/so-far-so-good.html

Friday, October 8, 2010. So far so Good! It has been a while since I have updated. SO much has happened.but Ill just try to keep it to the basics. First I'll talk about health related issues: Kyler is doing great! NowThe Fun info .He is growing up soo fast and he is soo funny! He is learning to say the most hilarious stuff! He is almost walking.He gets excited and starts running and falls down. He is doing great though pushing his little push and walk toy. He is still just as amazing as ever! Im so happy...

5

Kyler and Wiskott Aldrich Syndrome: 1 YEAR POST BMT!!! :)

http://www.ourperfectlittleboy.blogspot.com/2011/03/1-year-post-bmt.html

Friday, March 11, 2011. 1 YEAR POST BMT! As of today our sweet baby Kyler is 1 year post transplant! Im going to start this update with just a catch-up/ reminder on what all he went through to get here:. 8 Days of chemo (3 of which was ATG which was VERY rough on him). 11 surgeries to this date. ( He will have 1 more and we hope that is all). The Transplant itself (which was a female cord from Europe that was a 6/6 match and same blood type). SEVERAL CT scans, Xrays, and ultrasounds. Congratulations on t...

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wiskott.org

Find a Family - The Wiskott-Aldrich Foundation

http://www.wiskott.org/patients-and-families/find-a-family

Application Process and Timeline. Find a Clinical Trial. Find a Support Group. Find a Clinical Trial. ASCGT NIH Gene Therapy Symposium. September 26-27, 2011. Bethesda, MD. Physicians in the U.S. Find a Clinical Trial. Clinical Trials and Studies. IL 2, Eltrombopag, IVIG. Find a Support Group. Please register and sign up for the Wiskott-Aldrich Syndrome group). This is an active forum where many families have come together to provide support and share information with each other. If you have a mo...Happy...

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Kyler and Wiskott Aldrich Syndrome

Friday, March 11, 2011. 1 YEAR POST BMT! As of today our sweet baby Kyler is 1 year post transplant! Im going to start this update with just a catch-up/ reminder on what all he went through to get here:. 8 Days of chemo (3 of which was ATG which was VERY rough on him). 11 surgeries to this date. ( He will have 1 more and we hope that is all). The Transplant itself (which was a female cord from Europe that was a 6/6 match and same blood type). SEVERAL CT scans, Xrays, and ultrasounds. Thought I would star...

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