PACOSTUDY.ORG

PACOstudy

The Patient Advisory Committee will advise the PACO research team, Brigham rheumatologists and clinic staff on new processes and solutions for the Brigham and Women's Arthritis Center. Collaborations with RA Professionals. Interviews with BWH rheumatologists and fellows to provide insight on key areas where PACO can provide support to doctors and where improvements can be made to the clinic visit. Tools for Patients and Doctors. Living Well with Rheumatoid Arthritis. Letter from the Director.

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PACOstudy | pacostudy.org Reviews

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The Patient Advisory Committee will advise the PACO research team, Brigham rheumatologists and clinic staff on new processes and solutions for the Brigham and Women's Arthritis Center. Collaborations with RA Professionals. Interviews with BWH rheumatologists and fellows to provide insight on key areas where PACO can provide support to doctors and where improvements can be made to the clinic visit. Tools for Patients and Doctors. Living Well with Rheumatoid Arthritis. Letter from the Director.

<META> KEYWORDS

1 patient advisory committee

2 patient mini workshops

3 community outreach

4 about paco

5 research team

6 publications

7 library

8 upcoming events

9 what’s new

10 contact paco

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PACOstudy | pacostudy.org Reviews

https://pacostudy.org

The Patient Advisory Committee will advise the PACO research team, Brigham rheumatologists and clinic staff on new processes and solutions for the Brigham and Women's Arthritis Center. Collaborations with RA Professionals. Interviews with BWH rheumatologists and fellows to provide insight on key areas where PACO can provide support to doctors and where improvements can be made to the clinic visit. Tools for Patients and Doctors. Living Well with Rheumatoid Arthritis. Letter from the Director.

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pacostudy.org

1

PACOstudy » Patient Advisory Committee

https://www.pacostudy.org/patient-advisory-committee

The Patient Advisory Committee, a group of approximately 12 – 14 people, meets regularly with the PACO research team and is briefed on progress, reviews plans, provides suggestions regarding proposed solutions and support services for rheumatoid arthritis care at the Brigham and Women’s Arthritis Center. Specifically, the Patient Advisory Committee. Helps the research team decide which services should be created and how they will be designed. PACO Patient Advisory Committee Newsletters. Spring 2009 PAC N...

2

PACOstudy » Tools for Patients and Doctors

https://www.pacostudy.org/tools-for-patients-and-doctors

Tools for Patients and Doctors. Brigham and Women’s Health Log. You can now download an. Version of the Health Log! Members of the PACO Patient Advisory Committee have tested early versions of the Health Log and contributed feedback during the development. Their comments include: “. These days it’s important to have your health history in your hand whenever you see a doctor.”. An electronic version of the Health Log is now available. To download the eHealthLog to your local computer. The Health Log was p...

3

PACOstudy » Living Well with Rheumatoid Arthritis©

https://www.pacostudy.org/living-well-with-rheumatoid-arthritis

Living Well with Rheumatoid Arthritis. View the video to hear patients talk about their experience in the. Living Well with Rheumatoid Arthritis Program. The Living Well with RA Program: One Year Later. One of the goals of the Patient-Centered Outcomes Initiative is to research ways that can help RA patients live better with their disease. The new. Living Well with Rheumatoid Arthritis. From our randomized control study of the. Living Well with RA program. To read our published paper. Living Well with RA.

4

PACOstudy » Letter from the Director

https://www.pacostudy.org/letter-from-the-director

Letter from the Director. Our monthly support group continues and is held the second Wednesday of every month from 12:00 pm 1:00 pm. The group meets by the check-in desks at the entrance to the Rheumatology Clinic. This group is open to anyone with rheumatoid or psoriatic arthritis and is open to new members each month, there is no commitment necessary. For more information, please contact our current PACO Study Coordinator Hannah Tadley at 617-525-6608 or [email protected]. Dr Nancy A Shadick.

5

PACOstudy » Patient Educational Seminars

https://www.pacostudy.org/patient-educational-seminars

2014 How to make taking your medications easier: Learn about a new tool for RA and Lupus patients. The powerpoint from the presentation is below as well as a link to information on the navigator project. December 4, 2013 Speak So You Can be Heard: Cracking the Code to Successful Patient Doctor Communication Lisa Adelman a Certified Holistic Health Coach. The documents handed out at the seminar are below. Questions to Ask Your Doctor. Click here for Sleep powerpoint. April 2, 2012 “Does What I Eat M...

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brassstudy.org

About RA

http://www.brassstudy.org/brass-participants/symptoms

brassstudy.org

Related Links

http://www.brassstudy.org/brass-participants/related-links

Helpful RA related Websites. 8211; A national not-for-profit organization that supports different types of arthritis and related conditions with advocacy, programs, services and research. The Arthritis Foundation publishes a bi-monthly magazine called Arthritis Today which covers medications, lifestyle issues, nutrition, and many other topics. American College of Rheumatology. 8211; Easy to read fact sheets with information for patients about 30 rheumatic diseases and 12 rheumatic conditions. National In...

brassstudy.org

Abstracts

http://www.brassstudy.org/publications/abstracts

2014 Abstracts- Accepted for Presentation at the American College of Rheumatology Conference – Boston, MA. Iannaccone C, Cui J, Coblyn J, Liao K, Weinblatt M, Shadick N. The Association of Body Mass Index (BMI) and Radiographic Progression of Joint Disease in Rheumatoid Arthritis (RA). Iannaccone C, Cui J, Coblyn J, Weinblatt M, Shadick N. Predictors of Deterioration in Subjective Cognition: Results from a Rheumatoid Arthritis (RA) Observational Cohort Study. Benefits of Early Onset of DAS2(CRP) 2.6 ...

brassstudy.org

The Funders

http://www.brassstudy.org/brass-information/funders

brassstudy.org

Newsletters

http://www.brassstudy.org/newsletters

Download 2004 PDF Newsletter. Download 2005 PDF Newsletter. Download 2006 PDF Newsletter. Download 2009 PDF Newsletter. Download 2010 PDF Newsletter. Download 2012 PDF Newsletter. Download 2013 PDF Newsletter.

brassstudy.org

About BRASS

http://www.brassstudy.org/brass-information/overview

The goal of the BRASS registry is to establish a prospective observational cohort of rheumatoid arthritis patients. Determine and validate biomarkers that predict drug response and toxicity in rheumatoid arthritis. Determine and validate biomarkers that predict disease activity and prognosis in rheumatoid arthritis. Evaluate the natural history of treated rheumatoid arthritis by measuring clinical, functional, psycho-social, and economic outcomes. Why is BRASS Important? In the future, results from the r...

brassstudy.org

BRASS Bookshelf

http://www.brassstudy.org/brass-participants/brass-bookshelf

Arthritis Action Program: An Integrated Plan of Traditional and Complementary Therapies Michael Weinblatt, M.D. PubDate: Dec. 2001. Dr Michael Weinblatt, one of the primary investigators of BRASS, offers a medical guide to rheumatoid arthritis, including background information about RA and an analysis of alternative therapies. He compares current medications and their risks and offers a physician’s perspective on managing the illness. This guide is a valuable reference and resource. PubDate: Feb. 2006.

brassstudy.org

BRASS Staff

http://www.brassstudy.org/brass-information/staff

Principal Investigator – Dr. Nancy Shadick. Principal Investigator – Dr. Michael E. Weinblatt. In 2001, he was president of the American College of Rheumatology. Dr. Weinblatt is also an avid cyclist and has cycled across the U.S. twice. Project Manager – Christine Iannaccone. BRASS Research Assistants – 2014.

brassstudy.org

Posters

http://www.brassstudy.org/publications/posters

Brigham and Women’s Rheumatoid Arthritis Sequential Study (BRASS) – ACR 2010. Brigham and Women’s Rheumatoid Arthritis Sequential Study (BRASS) – ACR2009. Brigham and Women’s Rheumatoid Arthritis Sequential Study (BRASS) – ACR2008. Brigham and Women’s Rheumatoid Arthritis Sequential Study (BRASS) – ACR 2010. The Role of Objective Measures vs. Patient Reported Outcomes (PROs) as a Reflection of Flares in Patients with RA: Results from the Brigham RA Sequential Study (BRASS). Brigham and Women’s Hosp...

brassstudy.org

Stories

http://www.brassstudy.org/brass-participants/stories

Story 1- Beginning years with rheumatoid arthritis. Learning I had rheumatoid arthritis My rheumatoid arthritis came on quickly 20 years ago when I was fifty-one. It was frightening. I could barely take myself to the bathroom. 8221; My husband and I both needed to work to make ends meet.

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The Patient Advisory Committee will advise the PACO research team, Brigham rheumatologists and clinic staff on new processes and solutions for the Brigham and Women's Arthritis Center. Collaborations with RA Professionals. Interviews with BWH rheumatologists and fellows to provide insight on key areas where PACO can provide support to doctors and where improvements can be made to the clinic visit. Tools for Patients and Doctors. Living Well with Rheumatoid Arthritis. Letter from the Director.

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