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PANDORA Org home page with definition of neuro-endocrine-immune diseases. See how to donate and learn about advocacy, awareness, education and patient assistance programs.

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PANDORA Org home page with definition of neuro-endocrine-immune diseases. See how to donate and learn about advocacy, awareness, education and patient assistance programs.
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1 neuro-endocrine-immune disorders
2 diseases
3 me
4 cfs
5 fibromyalgia
6 Lyme disease
7 advocacy
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9 physician education
10 nei
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PANDORA Org home page with definition of neuro-endocrine-immune diseases. See how to donate and learn about advocacy, awareness, education and patient assistance programs.

INTERNAL PAGES

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1

What is Fibromyalgia?

http://www.pandoraorg.net/What_is_Fibromyalgia.html

Fibromyalgia causes severe, debilitating pain. What are the fibromyalgia symptoms? Fibromyalgia syndrome is a disease with widespread pain and other symptoms. The word refers to pain in the muscles and fibrous tissue. Estimates are that 3-5% of women and .5% of men have fibromyalgia. Recent research shows that fibromyalgia patients have excessive substance P, a chemical that gives the “pain” signal in the brain. Men, women and even children can get fibromyalgia. It is most common in women.

2

Advocacy

http://www.pandoraorg.net/Advocacy.html

Chronic Fatigue Syndrome Advisory Committee and Dept. Of Health and Human Services. Institute of Medicine and NIH Pathways to Prevention. Food and Drug Administration. Centers for Disease Control and Prevention. State and Local Government. Our organization has a long history of advocating for better government policies pertaining to neuro-endocrine-immune diseases. With the Advocates Extraordinaire™. Project, we train patients who are able to be their own effective advocates and speak to the news media.

3

What is MCS/EI?

http://www.pandoraorg.net/What_is_MCS_EI_.html

People with chemical sensitivities. Must take unusual steps to avoid inhaling. Chemicals that are found all around us. What are MCS/EI symptoms? Hemical sensitivity / environmental illness is when a person’s body has a severe metabolic and neurological reaction to pollutants, mold, chemicals or food additives that are common in. Air pollution, perfumes, gasoline, smoke and household cleaners are episode triggers. In severe cases, people with MCS/EI also may suffer from food intolerances.

4

Home Page

http://www.pandoraorg.net/Home_Page.html

Making myalgic encephalomyelitis,. Fibromyalgia and Lyme diagnosable and curable. Volunteer. Donate. Review. What are neuro-endocrine-immune diseases? Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome. Multiple chemical sensitivities / environmental illness. And Gulf War illnesses. Millions of Americans suffer from NEIDs. Pandora Org is raising m...

5

What is Lyme?

http://www.pandoraorg.net/What_is_Lyme_.html

The deer tick, which carries the. Bacteria, is the size of a poppy seed in the nymph stage. To avoid catching the disease, do a body check after being in nature. This should be done each day for at least three days after being in nature. What Are Symptoms of Tick-borne Infections? Chronic Lyme disease develops when a person has been infected with the bacteria. Receives treatment, yet continues to have symptoms. The infection is most often spread. Some other tick-borne infections include anaplasmosis, bab...

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openmedicinefoundation.org openmedicinefoundation.org

Information/Resources | Open Medicine Foundation

http://www.openmedicinefoundation.org/helpful-resources

Fast-tracking revolutionary research for ME/CFS. And related chronic complex diseases. Dr Ron Davis, SAB Dir. What is Chronic Lyme? Severely ill Big Data Study. OMF in the News. Dr Ron Davis, SAB Dir. What is Chronic Lyme? Severely ill Big Data Study. OMF in the News. Check out our OMF information documents and promotional materials. Check out our OMF video library. OMI): Collaborative research and clinical care to fast-track effective treatments and find diagnostic markers for neuro-immune diseases.

fmcfstriggerpoints.blogspot.com fmcfstriggerpoints.blogspot.com

Fibromyalgia (FM), Chronic Fatigue Syndrome (CFS), and Chronic Myofascial Pain (CMP) Trigger Points: June 2015

http://fmcfstriggerpoints.blogspot.com/2015_06_01_archive.html

8220;May our spirit fill us with understanding of victory and defeat, the gift of collaboration, the wisdom to choose the right path, and opportunities to inspire hope.” – Celeste Cooper http:/ CelesteCooper.com. Wednesday, June 24, 2015. David Simons, MD: Pioneer of Myofascial Medicine. Dr Simons joined Dr. Janet Travell. In her intense efforts to understand and educate other physicians regarding myofascial dysfunction, and the contribution of myofascial trigger points. To myofascial pain syndrome.

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Chill with Polar: April 2015

http://chillwithpolar.blogspot.com/2015_04_01_archive.html

Behind the scenes with a leading US manufacturer of body cooling and hot and cold therapy products. Learn more about our products and company at www.polarproducts.com. Tuesday, April 28, 2015. Are You Up for It? The MS Fitness Challenge! Polar Products is proud to introduce one of our newest partnerships in the battle against MS. Polar Products is the official cooling sponsor. Kendra and David Lyons, MS Fitness Challenge. Polar Products will be supplying. Polar Products is proud to partner with David and...

invisiblediseases.com invisiblediseases.com

Resources

http://www.invisiblediseases.com/Resources.html

Download this CDC letter for free, here:. Letter For Help from www.InvisibleDiseases.com.doc. Do not be afraid to ask your friends and family to send letters or make phone calls to government officials and hospitals, letting them know that we need help! Now is the time to be brave and strong. We will make it to the top of this mountain together! Please do everything that you possibly can to be heard! Download this CDC letter for free, right here:. And we need your help! Millions of people are suffering w...

cfstreatmentguide.com cfstreatmentguide.com

National and International CFS Organizations - CFS Treatment Guide

http://www.cfstreatmentguide.com/national-and-international-cfsme-organizations.html

Chronic Fatigue Syndrome: A Treatment Guide, 2nd Edition. National and International CFS/ME Organizations. Dr Jay Goldstein: A-Z Treatments. NATIONAL AND INTERNATIONAL CFS/ME ORGANIZATIONS. WEBSITES WITH LISTS OF USEFUL ORGANIZATIONS. CFS Knowledge Center: comprehensive international links: http:/ cfsknowledgecenter.com/worldwide-links.php. The CFS Report: links page: http:/ www.cfidsreport.com/Links.htm. Alliance for Myalgic Encephalomyelitis links page: http:/ www.name-us.org/Links.htm. The European ME...

fmcfstriggerpoints.blogspot.com fmcfstriggerpoints.blogspot.com

Fibromyalgia (FM), Chronic Fatigue Syndrome (CFS), and Chronic Myofascial Pain (CMP) Trigger Points: ME/CFS Advocates Making a Difference: Giving Thanks, Celeste Cooper

http://fmcfstriggerpoints.blogspot.com/2015/06/mecfs-advocates-making-difference.html

8220;May our spirit fill us with understanding of victory and defeat, the gift of collaboration, the wisdom to choose the right path, and opportunities to inspire hope.” – Celeste Cooper http:/ CelesteCooper.com. Sunday, June 21, 2015. ME/CFS Advocates Making a Difference: Giving Thanks, Celeste Cooper. It’s time to say thank you. Advocates work tirelessly to change the perceptions of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). And I write articles on chronic pain for Health Central.

phoenixrising.me phoenixrising.me

Support & info groups

http://phoenixrising.me/resources/support-group-websites

A Chronic Fatigue Syndrome (ME/CFS) and NeuroEndocrineImmune (NEI) Conditions Website. I’m Fatigued, Is it ME/CFS? Support & info groups. Saving money on medications. Join a clinical trial. Roadmap for testing and treatment. Immunity & infection. Support & info groups. March 4, 2012. There are a number of excellent support groups for ME/CFS patients, and many also have good information resources about the disease. One of the very best is, of course, us! Which is the largest ME/CFS forum in the world.

mesocietyedmonton.org mesocietyedmonton.org

News - M.E. Society of Edmonton

http://www.mesocietyedmonton.org/news.html

ME Society of Edmonton. Canadian #MillionsMissing Event: Virtual March on Ottawa! En français ci-dessous). MillionsMissing Protest for ME/CFS: Virtual March on Ottawa. Join us in blasting emails to MPs across Canada. Urgent Need to Increase ME/CFS Research Funding. May 25, 2016, 11am - 12pm PST. Newfoundland Time: 3:30 pm – 4:30 pm. Atlantic Time: 3 pm – 4 pm. Eastern Time: 2 pm – 3 pm. Central Time: 1 pm – 2 pm. Mountain Time: 12 pm – 1 pm. Pacific Time: 11 am to 12 pm. How much effort is involved?

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Improving lives of neuro-endocrine-immune. Patients through assistance,. Advocacy, education and awareness. What are neuro-endocrine-immune diseases? Neuro-endocrine-immune diseases (NEIDs) are chronic multi-system illnesses that take a dramatic toll on society, individuals and their families. They include myalgic encephalomyelitis / chronic fatigue syndrome. Multiple chemical sensitivities / environmental illness. And Gulf War illnesses. Millions of Americans suffer from NEIDs. Pandora Org is raising mo...

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