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paradifference.org

About us | The Paradifference foundation

The Gustavsson family founded the Paradifference Foundation in February 2014. Our eldest daughter Amanda developed her first paraganglioma tumor in 2008, and today it has spread to her bones (metastatic paraganglioma). Since 2011 we know that this is caused due to a genetic mutation that she carries called SDHB.

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The Gustavsson family founded the Paradifference Foundation in February 2014. Our eldest daughter Amanda developed her first paraganglioma tumor in 2008, and today it has spread to her bones (metastatic paraganglioma). Since 2011 we know that this is caused due to a genetic mutation that she carries called SDHB.
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About us | The Paradifference foundation | paradifference.org Reviews

https://paradifference.org

The Gustavsson family founded the Paradifference Foundation in February 2014. Our eldest daughter Amanda developed her first paraganglioma tumor in 2008, and today it has spread to her bones (metastatic paraganglioma). Since 2011 we know that this is caused due to a genetic mutation that she carries called SDHB.

LINKS TO THIS WEBSITE

pheoparatroopers.org pheoparatroopers.org

Allies Links | Pheo Para Troopers

http://www.pheoparatroopers.org/troopers/allies-links

Join Us / Login. We have collected some of the most useful links around the web for information on pheochromocytoma and paraganglioma. If you would like to talk to us about adding your link, send us an email to info@pheoparatroopers.org. The Alliance is a non-profit organization with a focus on finding a cure for Pheo Para through education, research, and fundraising. This site includes a message board. Where patients can communicate with each other. Kasshoku Saiboshu wo Kangaeru-kai. This site (in Japan...

pheoparatroopers.org pheoparatroopers.org

Ally – The Paradifference Foundation | Pheo Para Troopers

http://www.pheoparatroopers.org/2015/05/troopers-ally-the-paradifference-foundation

Join Us / Login. Ally – The Paradifference Foundation. One of our Allies in gathering support for research is The Paradifference Foundation. The Gustavsson family formed the foundation in February 2014, after their eldest daughter’s paraganglioma turned metastatic due to a. The Paradifference currently supports six projects:. Three projects conducted at the Mayo Clinic in Rochester, Minnesota headed by Dr Jim Maher. Dr Jim Maher also recorded a wonderful video to introduce his story, explain his research...

sdhbcoalition.org sdhbcoalition.org

Links and Additional Resources – SDHB Coalition

http://www.sdhbcoalition.org/links-resources

The Board of Directors. Signs & Symptoms. Links & Resources. The aim of this organization is to financially support research in the field of paraganglioma and pheochromocytoma, with special regard to malignant paragangliomas caused by the SDHB mutation. They hope to aid in the development of more efficient treatment, and essentially finding a cure for the disease. This organization offers support and information for pheochromocytoma and other related conditions. Designed by BucksMont Tech.

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