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parentingcfs | Navigating adolescent CFSNavigating adolescent CFS
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Navigating adolescent CFS
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parentingcfs | Navigating adolescent CFS | parentingcfs.wordpress.com Reviews
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Navigating adolescent CFS
parentingcfs.wordpress.com
Two and a half years…but who’s counting?! | parentingcfs
https://parentingcfs.wordpress.com/2013/10/07/two-and-a-half-years-but-whos-counting
How did we get here? Two and a half years…but who’s counting? October 7, 2013. Filed under: CFS Symptoms. 8212; parentingcfs @ 4:17 am. Apologies for my long absence. I have thought many times of my blog. As all who know this illness know, there are so many unknowns that I find I’ve become a little fearful of reporting what’s working for my girl lest it be completely the wrong thing for your child. But, ‘A life lived in fear is a life half lived’. So here goes my cautiously optimistic rooftop shouting!
Dr Rosamund Vallings MNZM, MB BS | parentingcfs
https://parentingcfs.wordpress.com/2013/04/29/dr-rosamund-vallings-mnzm-mb-bs
How did we get here? Dr Rosamund Vallings MNZM, MB BS April 29, 2013. Filed under: CFS Symptoms. 8212; parentingcfs @ 12:26 pm. Last weekend I was fortunate enough to attend a seminar given by Dr Vallings here in Melbourne. As she explained at the seminar, she decided to write her book “Chronic Fatigue Syndrome M.E. Symptoms Diagnosis Management”. These are some of the things I learnt (or relearnt! 8211; The ratio of females to males affected appears to be more like 3:2 than the 5:1 previously believed.
What we think’s worked for our girl – so far…. | parentingcfs
https://parentingcfs.wordpress.com/2013/11/26/what-we-thinks-worked-for-our-girl-so-far
How did we get here? What we think’s worked for our girl – so far…. November 26, 2013. Filed under: CFS Resources. 8212; parentingcfs @ 12:37 am. The following post contains anecdotal information and my thoughts. It is not meant to reflect medical advice pertaining to any other person. First, I would like to clarify that my daughter’s symptoms appear to me (and her BP doctor) to have all fitted neatly into POTS (plus PEM? Or is that just part of the POTS for some? This is a good place to stop. There ...
What we think’s worked for our girl…so far…Part 2 | parentingcfs
https://parentingcfs.wordpress.com/2014/02/10/what-we-thinks-worked-for-our-girl-so-far-part-2
How did we get here? What we think’s worked for our girl…so far…Part 2 February 10, 2014. Filed under: CFS Treatments. 8212; parentingcfs @ 5:05 am. The following post contains anecdotal information and my thoughts. It is not meant to reflect medical advice pertaining to any other person. Very difficult with this illness to quantify change but I’ll try! Less light sensitive (no longer lives in a darkened room). Able to concentrate for around 20 minutes on written work. Sometimes 30. 5) an excellent crani...
Thankful Thursday | parentingcfs
https://parentingcfs.wordpress.com/2013/05/09/thankful-thursday
How did we get here? Thankful Thursday May 9, 2013. 8212; parentingcfs @ 3:52 am. In no particular order, today I am grateful for: (apart from the usual 2 arms 2 legs etc! 8211; an unseasonably warm, sunny day in Melbourne. 8211; my supportive, self-disciplined and generally awesome husband and the fact that he has been at home much more than usual. 8211; the wonderful primary school my kids went to who have been nothing but supportive and are running a fundraiser next Monday organised by my son. 8211; t...
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One Agent for Change
http://agentforchange.blogspot.com/2012/06/normal-0-false-false-false-en-us-x-none.html
One Agent for Change. Well-Come to Agent for Change, a blog created by Marly Silverman, to serve as a catalyst for change that is much needed on the issues affecting millions of individuals stricken with neuroendocrineimmune disorders worldwide. Through this blog I want to share ideas, exchange, communicate and find solutions for everyday living. The goal is to pursue quality of life that will make a difference in the lives of individuals with neuroendocrineimmune disorders (NEIDs). The CDC is looking fo...
Sarah's World: Why PHANU need our support and reasons to hope for ME/CFS/Fibro:
http://kiwikchat.blogspot.com/2012/08/why-phanu-need-our-support-and-reasons.html
I write about the best things in life, family, friends and chocolate and how they help me cope with one of life's challenges, M.E. I've changed the blog address from www.sarahsworld.me back to the. Original (badly chosen, but I'm stuck with it) address of www.kiwikchat.blogspot.com . This means that some links to older posts and old links from other sites don't work. :(. Friday, August 31, 2012. Why PHANU need our support and reasons to hope for ME/CFS/Fibro:. But, well, important. One of their key areas...
Sarah's World: Speed, setting and frequency does matter – update on saline IV’s
http://kiwikchat.blogspot.com/2012/07/speed-setting-and-frequency-does-matter.html
I write about the best things in life, family, friends and chocolate and how they help me cope with one of life's challenges, M.E. I've changed the blog address from www.sarahsworld.me back to the. Original (badly chosen, but I'm stuck with it) address of www.kiwikchat.blogspot.com . This means that some links to older posts and old links from other sites don't work. :(. Saturday, July 7, 2012. Speed, setting and frequency does matter – update on saline IV’s. Benefit from saline IVs. Setting/environment ...
thethingwithfeathers-hope.blogspot.com
The Saga (and I) Continue Wearily On | The Thing With Feathers
http://thethingwithfeathers-hope.blogspot.com/2012/06/saga-and-i-continue-wearily-on.html
The Thing With Feathers. Hanging onto hope for dear life, through 15 years living with severe Myalgic Encephalomyelitis. The Meaning of The Thing With Feathers. Saturday, 16 June 2012. The Saga (and I) Continue Wearily On. It's a ridiculous situation and one that just shouldn't happen short of the unexpected death of your doctor! Really, how closed minded do you have to be to think that way? Level of safety in that. Even worse, he is currently on a 3 week holiday, so everything is completely on hold!
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parentingcfs | Navigating adolescent CFS
How did we get here? What we think’s worked for our girl…so far…Part 2. February 10, 2014. Filed under: CFS Treatments. 8212; parentingcfs @ 5:05 am. The following post contains anecdotal information and my thoughts. It is not meant to reflect medical advice pertaining to any other person. Very difficult with this illness to quantify change but I’ll try! Less light sensitive (no longer lives in a darkened room). Able to concentrate for around 20 minutes on written work. Sometimes 30. 5) an excellent cran...
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The P Word | Muddling my way through parenting
Muddling my way through parenting. 8216;Rhythm’ is one of those words whose usage seems to be exponentially growing. Much like ‘season’ or phrases such as ‘looking forwards’ (what on earth is wrong with ‘in the future’? But I see this as a healthy thing. Synonyms such as ‘pattern’ or ‘balance’ could be easily substituted (and often are) as words to describe the efforts of parents to search for what works best for them and their families during different phases of life. I work for a small-ish charity (abo...
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Determine your personality type: are you an attacher, a detacher, or a defender? I look forward to showing you how to use this vision to achieve your parenting goals. Let’s look at what some of those goals might be. Establish strong connections with your child. Change self-defeating behavior patterns. Deepen communication with your child. Identify your gifts, enhance relationships. Become a facilitator, help support the flowering of your child’s personality. I look forward to hearing your comments.
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