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Pat Furlong's Blog

Thursday, September 9, 2010. Coach to Cure MD. A game-changing strategy. Fast forward to 2010. Jim Tressel, OSU’s coach and one of our biggest supporters will be wearing an armband and leading the Buckeyes to victory! Now, not only am I supporting OSU, OSU is supporting us. Football is the stuff of dreams for all of us – wishing in our own life to make that Touchdown. What will you be doing on 9.25.2010? Visit Team PPMD's page. Or create your own page. Tuesday, August 17, 2010. Why did Blake die? When we...

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Pat Furlong's Blog | patfurlongsblog.blogspot.com Reviews
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Thursday, September 9, 2010. Coach to Cure MD. A game-changing strategy. Fast forward to 2010. Jim Tressel, OSU’s coach and one of our biggest supporters will be wearing an armband and leading the Buckeyes to victory! Now, not only am I supporting OSU, OSU is supporting us. Football is the stuff of dreams for all of us – wishing in our own life to make that Touchdown. What will you be doing on 9.25.2010? Visit Team PPMD's page. Or create your own page. Tuesday, August 17, 2010. Why did Blake die? When we...
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Pat Furlong's Blog | patfurlongsblog.blogspot.com Reviews

https://patfurlongsblog.blogspot.com

Thursday, September 9, 2010. Coach to Cure MD. A game-changing strategy. Fast forward to 2010. Jim Tressel, OSU’s coach and one of our biggest supporters will be wearing an armband and leading the Buckeyes to victory! Now, not only am I supporting OSU, OSU is supporting us. Football is the stuff of dreams for all of us – wishing in our own life to make that Touchdown. What will you be doing on 9.25.2010? Visit Team PPMD's page. Or create your own page. Tuesday, August 17, 2010. Why did Blake die? When we...

INTERNAL PAGES

patfurlongsblog.blogspot.com patfurlongsblog.blogspot.com
1

Pat Furlong's Blog: October 2008

http://patfurlongsblog.blogspot.com/2008_10_01_archive.html

Tuesday, October 14, 2008. What't the deal on Losartin? You are all aware of the Losartin paper by R. Cohn and colleague and like many other drugs/supplements/nutraceuticals, we continues to discuss this within the community and ask various physicians to prescribe Losartin for our boys. And some parents are giving it to their son, with or without the blessing of the physician. And TIME matters. We want to EndDuchenne and as fast as possible.So, where is the happy middle? 2 Another physician said there is...

2

Pat Furlong's Blog: June 2010

http://patfurlongsblog.blogspot.com/2010_06_01_archive.html

Wednesday, June 16, 2010. Happens every time. Mom gets on the phone. Some light goes on and your children have a question or problem that needs immediate attention. "Let me call you back.". What we can say is that Danny had a cardiac event. There was no damage to the heart. Echo was unchanged. And levels decreased. Here’s the take-away message. Kids (all of them) get sick when we feel least prepared or connected. No matter where you take your son for care, take home information about the hospital’s...

3

Pat Furlong's Blog: It's the little things.

http://patfurlongsblog.blogspot.com/2010/08/its-little-things.html

Wednesday, August 4, 2010. It's the little things. Genetic Alliance Gene Screen. Rick Guidotti is a professional photographer with a long career capturing the beauty, first of professional models for magazines such as Vogue. At a certain moment, Rick was captured by another beauty, a young woman with Albinism and abruptly changed his focus to portray the beauty of rare disease. Evolving power dynamics in clinical care.” The debate concentrated on CARE – basically a discussion of who is in...This meeting ...

4

Pat Furlong's Blog: A Bedtime Story

http://patfurlongsblog.blogspot.com/2010/07/bedtime-story.html

Tuesday, July 27, 2010. Who gets the award for finding the treatment or cure? Let’s imagine you are considering having a child. You think of the options: the impact on your life, the impact on your budget, your job, and who you will need to call upon to help you with the baby. Novel project – intense review. You are pregnant, thrilled of course, and take good care of yourself, trying your best to ensure a healthy baby. Fellowship – additional staff to focus on the project. And lest we not forget about th...

5

Pat Furlong's Blog: Coach to Cure MD. A game-changing strategy.

http://patfurlongsblog.blogspot.com/2010/09/as-young-high-school-girl-i-walked.html

Thursday, September 9, 2010. Coach to Cure MD. A game-changing strategy. Fast forward to 2010. Jim Tressel, OSU’s coach and one of our biggest supporters will be wearing an armband and leading the Buckeyes to victory! Now, not only am I supporting OSU, OSU is supporting us. Football is the stuff of dreams for all of us – wishing in our own life to make that Touchdown. What will you be doing on 9.25.2010? Visit Team PPMD's page. Or create your own page. Subscribe to: Post Comments (Atom).

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jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: Eleven years old

http://jillcastle.blogspot.com/2010/09/eleven-years-old.html

Tuesday, September 14, 2010. Eleven years ago today you entered this world and our lives would forever change. I should have known by the nature of your birth, you were here to show us a different way of doing things. You were two weeks late and fought the process every step of the way. Even from the beginning, your spirit was incredibly strong and you were definitely doing things your own way. September 15, 2010 at 2:31 AM. Happy Birthday Anthony. :). Subscribe to: Post Comments (Atom).

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: August 2011

http://jillcastle.blogspot.com/2011_08_01_archive.html

Tuesday, August 23, 2011. Things I’ve learned lately…. 8226; I know much less than I thought I did. 8226; I can handle a lot more than I think I can. 8226; The more I act like a martyr or victim, the more my son feels like he’s a burden. 8226; I need to teach my community how to support me and my family. They want to, they just don’t know how. 8226; I can’t do it alone and I cheat my boys and friends when I try. 8226; Life can change in just minutes with new information. 8226; Everyone has a story.

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: August 2010

http://jillcastle.blogspot.com/2010_08_01_archive.html

Saturday, August 7, 2010. The Power of Forgiveness. We do this disability training where we show a picture to a room of teachers. Almost always half the room sees one image and half the room sees another in the same photo. And no matter what you do, you can't get people to see it differently than the image they first saw. Perception is a powerful thing. How can I expect God or others to forgive me if I can’t forgive you? Subscribe to: Posts (Atom). Where you can find me. The Power of Forgiveness.

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: April 2010

http://jillcastle.blogspot.com/2010_04_01_archive.html

Sunday, April 25, 2010. Bloom where you're planted. Today from where I stand, I see only the beauty of what I have, not what’s missing. And the world looks completely different. When my perspective broadened and opened up, the possibilities of expanding where I am at seem endless. It’s amazing that the same exact garden where I used to only see limitations and weeds, now has rich soil that’s ready to go. Friday, April 2, 2010. Autobiography in Five Chapters" from the Tibetan book of Living and Dying.

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: May 2011

http://jillcastle.blogspot.com/2011_05_01_archive.html

Tuesday, May 17, 2011. Was it even possible once we are gown ups to experience unconditional love the way a child does? Isn’t that an example of true love? But perhaps I had it backwards for so long. Maybe when you challenge yourself to step off that edge, stop coveting love, and find it in yourself to give it all away, that’s when there’s change. It’s changing for me, right before my eyes with each time I am able to bravely try a new way. Subscribe to: Posts (Atom). Where you can find me.

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: Things I’ve learned lately…

http://jillcastle.blogspot.com/2011/08/things-ive-learned-lately.html

Tuesday, August 23, 2011. Things I’ve learned lately…. 8226; I know much less than I thought I did. 8226; I can handle a lot more than I think I can. 8226; The more I act like a martyr or victim, the more my son feels like he’s a burden. 8226; I need to teach my community how to support me and my family. They want to, they just don’t know how. 8226; I can’t do it alone and I cheat my boys and friends when I try. 8226; Life can change in just minutes with new information. 8226; Everyone has a story.

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: September 2010

http://jillcastle.blogspot.com/2010_09_01_archive.html

Tuesday, September 14, 2010. Eleven years ago today you entered this world and our lives would forever change. I should have known by the nature of your birth, you were here to show us a different way of doing things. You were two weeks late and fought the process every step of the way. Even from the beginning, your spirit was incredibly strong and you were definitely doing things your own way. Subscribe to: Posts (Atom). Where you can find me. Coach to Cure MD. A game-changing strategy.

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: Being comfortable with change

http://jillcastle.blogspot.com/2010/07/being-comfortable-with-change.html

Thursday, July 8, 2010. Being comfortable with change. Today I have one year of continuous sobriety. I can honestly say as far as personal change, this has been the hardest thing I’ve ever done. It’s not the abstinence that’s been hard…………It was all the truth that came with it. But that’s the thing….once you see the truth, you can’t ever get away with anything less again. The Story of the dragonfly. Subscribe to: Post Comments (Atom). Where you can find me. Coach to Cure MD. A game-changing strategy.

jillcastle.blogspot.com jillcastle.blogspot.com

Jill Anne Castle: The Power of Forgiveness

http://jillcastle.blogspot.com/2010/08/power-of-forgiveness.html

Saturday, August 7, 2010. The Power of Forgiveness. We do this disability training where we show a picture to a room of teachers. Almost always half the room sees one image and half the room sees another in the same photo. And no matter what you do, you can't get people to see it differently than the image they first saw. Perception is a powerful thing. How can I expect God or others to forgive me if I can’t forgive you? Subscribe to: Post Comments (Atom). Where you can find me. The Power of Forgiveness.

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patfurlongsblog.blogspot.com patfurlongsblog.blogspot.com

Pat Furlong's Blog

Thursday, September 9, 2010. Coach to Cure MD. A game-changing strategy. Fast forward to 2010. Jim Tressel, OSU’s coach and one of our biggest supporters will be wearing an armband and leading the Buckeyes to victory! Now, not only am I supporting OSU, OSU is supporting us. Football is the stuff of dreams for all of us – wishing in our own life to make that Touchdown. What will you be doing on 9.25.2010? Visit Team PPMD's page. Or create your own page. Tuesday, August 17, 2010. Why did Blake die? When we...

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