This POTS survey asks about many aspects of POTS: Treatments that worked for you, ones that didn't, how POTS affects your daily life, relationships, schooling or career, family, recreation, mood and more. It also asks about different coping strategies and practical solutions for living better. Would you take the time to donate your data?
http://www.patientscount.org/
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PatientsCount.org | patientscount.org Reviews
https://patientscount.org
This POTS survey asks about many aspects of POTS: Treatments that worked for you, ones that didn't, how POTS affects your daily life, relationships, schooling or career, family, recreation, mood and more. It also asks about different coping strategies and practical solutions for living better. Would you take the time to donate your data?
patientscount.org
Findings
http://www.patientscount.org/findings
June 21, 2016. The Social Cost of POTS. 96% of patients said POTS prevents them from socializing as much as they'd like, almost half of patients go out with friends less than once a month, and we explore the reasons why. September 15, 2015. 450 POTS patients rated 28 different non-drug therapies, including 18 dietary approaches, massage, physical therapy, counseling, essential oils, IV fluids, compression stockings, abdominal binders and more. We list ratings for which therapies "helped lots! July 9, 2015.
Apps
http://www.patientscount.org/apps
The Stand Test for POTS. We created this app to help POTS patients get diagnosed more cheaply, easily and quickly. It enables any doctor or patient to learn about POTS and to perform the Stand Test (aka poor man’s tilt table test ), which is the diagnostic test for POTS. When Jill was diagnosed with POTS, she was prescribed 19 different pills!
The Social Cost of POTS
http://www.patientscount.org/Findings/social-cost
The Social Cost of POTS. The Social Cost of POTS. In our POTS Patient-Powered Survey, one theme kept jumping out for attention.practically with jazz hands! It was the social cost of having POTS:. No effect, 1% Minor nuisance, 7% Moderate challenge, 17% Big challenge, 33% Huge detriment, 42%. And there was one point of near-complete consensus:. Yes, 96% No, 4%. Getting out with friends was rare for many POTSies, too:. Every day, 1% Most days, 4% Weekly, 20% Monthly, 28% Less than once per month, 47%.
About Us
http://www.patientscount.org/about
Like you, we want to feel better faster. We are patients aspiring to be proactive and productive, seeking ever-better practical solutions until a cure comes along. We created our latest survey to learn more about quality of life with POTS and to help guide the creation of practical solutions for living better. Patient-powered survey research is not a substitute for institutional medical research, but it's free, fast, anonymous, secure and helps us all find ways to FEEL BETTER FASTER. Jill and Mike Brook.
What helped POTS?!
http://www.patientscount.org/Findings/what-helped-POTS
Many POTS patients have spent years experimenting with various diets, lifestyle changes and alternative therapies, in search of relief. It can get exhausting, expensive and time-consuming. In hopes of making future quests more efficient, we used the POTS Patient-Powered Survey to ask 450 patients about how 28 different practices had affected their POTS symptoms. Made my POTS worse. Below are the results, showing the percentage of patients reporting each therapy as helpful:. For more than 28% of patients&...
TOTAL PAGES IN THIS WEBSITE
5
POTS Overview
http://dinet.org/index.php/information-resources/pots-place/pots-overview
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. However, the ...
Support Groups
http://www.dinet.org/index.php/information-resources/support-groups
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. Annual meetin...
NCS - General Information
http://www.dinet.org/index.php/information-resources/ncs/ncs-general-information
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. During the fa...
Knowledge Base
http://www.dinet.org/index.php/information-resources/knowledge-base
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. Is filled wit...
POTS Detection
http://www.dinet.org/index.php/information-resources/pots-place/pots-detection
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. People who ha...
Assistance
http://www.dinet.org/index.php/information-resources/assistance
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. Http:/ www...
MSA Informative Links
http://www.dinet.org/index.php/information-resources/msa-informative-links
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. Http:/ www...
Dysautonomia
http://www.dinet.org/index.php/information-resources/knowledge-base/28-general-dysautonomia/121-dysautonomia
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. Postural Orth...
NCS - Links
http://www.dinet.org/index.php/information-resources/ncs/ncs-links
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. Http:/ ageing...
DINET - Dysautonomia Information Network
http://www.dinet.org/index.php
Knowing is the first step. POTS - What Helps. POTS - What to avoid. POTS - Useful Links. NCS - General Information. DINET Connect Program Info. DINET Connect Log In. A good Dr. is hard to find. Mdash; About Us. Mdash; Knowledge Base. Mdash; Support Groups. Mdash; POTS Place. Mdash;— POTS Overview. Mdash;— POTS Symptoms. Mdash;— POTS Mechanisms. Mdash;— POTS Causes. Mdash;— POTS Detection. Mdash;— POTS - What Helps. Mdash;— POTS - What to avoid. Mdash;— POTS - Myths. Mdash;— POTS - Research. Symptoms are ...
TOTAL LINKS TO THIS WEBSITE
15
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Prophecy Healthcare
I am thrilled that we have partnered with Prophecy. They are a great company to work with, and we’ve seen a higher quality applicant since the implementation of the online competency testing. Dawn Seek, VP Operations, Family and Nursing Care. Prophecy takes the guesswork out of the hiring process. We feel confident that those applicants who move forward to the hiring manager are qualified to do the job. Yvonne Mitchell, Recruitment Program Manager, Fauquier Health. Great question. Tough answer. One of t...
PatientsCount.org
June 21, 2016. The Social Cost of POTS. 96% of patients said POTS prevents them from socializing as much as they'd like, almost half of patients go out with friends less than once a month, and we explore the reasons why. September 15, 2015. 450 POTS patients rated 28 different non-drug therapies, including 18 dietary approaches, massage, physical therapy, counseling, essential oils, IV fluids, compression stockings, abdominal binders and more. We list ratings for which therapies "helped lots! We are curr...
Patient Stemcell Resource
Enriching the lives of patients, families and friends by providing opportunities to connect with others, optimize health, and find current information regarding cell therapy, news, and events. We Provide These Services. A comprehensive source of current information focused on advances in cell therapies. Services to support, interact on a one-on-one basis with others, network and advocate for change. Submit your email address below and we’ll keep you up to date on when we GO-LIVE! The Patient Stem Cell Re...
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