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Patrick Hoopes | Got guts? Life with Short Gut Syndrome & more

Life with Short Gut Syndrome and more. Patrick in the news. Transplant Day 804 and Look Ma. No lines! Composed yesterday in the surgery waiting room*. This is a good news post. But I’m finding myself so very out of practice at writing updates in the surgery waiting room that I am having a little bit of a hard time getting started. But also at Patrick’s follow-up in October, the doctors decided to stop Patrick’s prednisolone, which was a major part of his immune suppression. Within two weeks, he start...

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Brian Hoopes

4213 ●●●●●er Rd

Tayl●●●●ille , Utah, 84119

United States

(801)●●●●●-6526
br●●●●●●●●●●@gmail.com

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Brian Hoopes

4213 ●●●●●er Rd

Tayl●●●●ille , Utah, 84119

United States

(801)●●●●●-6526
br●●●●●●●●●●@gmail.com

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Brian Hoopes

4213 ●●●●●er Rd

Tayl●●●●ille , Utah, 84119

United States

(801)●●●●●-6526
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Patrick Hoopes | Got guts? Life with Short Gut Syndrome & more | patrickhoopes.com Reviews
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Life with Short Gut Syndrome and more. Patrick in the news. Transplant Day 804 and Look Ma. No lines! Composed yesterday in the surgery waiting room*. This is a good news post. But I’m finding myself so very out of practice at writing updates in the surgery waiting room that I am having a little bit of a hard time getting started. But also at Patrick’s follow-up in October, the doctors decided to stop Patrick’s prednisolone, which was a major part of his immune suppression. Within two weeks, he start...
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Patrick Hoopes | Got guts? Life with Short Gut Syndrome & more | patrickhoopes.com Reviews

https://patrickhoopes.com

Life with Short Gut Syndrome and more. Patrick in the news. Transplant Day 804 and Look Ma. No lines! Composed yesterday in the surgery waiting room*. This is a good news post. But I’m finding myself so very out of practice at writing updates in the surgery waiting room that I am having a little bit of a hard time getting started. But also at Patrick’s follow-up in October, the doctors decided to stop Patrick’s prednisolone, which was a major part of his immune suppression. Within two weeks, he start...

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liverforlulu.blogspot.com liverforlulu.blogspot.com

Liver for LuLu: ashley

http://liverforlulu.blogspot.com/2010/02/ashley.html

Tuesday, February 16, 2010. We had my friend Ally, http:/ www.allybrynndesigns.blogspot.com/. Create the above picture for both of Ashley's. Parents from the little we knew about her from the original Tribune article. She was passionate about animals- so are we. With her MuM's permission, here are some of the many pictures from this bitter, bitter, bittersweet day and my account as best as I can share it. James and I felt driven, compelled, eager to go to our Ashley's funeral. We knew she was LuLu's.

liverforlulu.blogspot.com liverforlulu.blogspot.com

Liver for LuLu: They say it's your birthday!

http://liverforlulu.blogspot.com/2012/01/they-say-its-your-birthday.html

Wednesday, January 4, 2012. They say it's your birthday! Earrings, take 2. (last round closed up) She was a champ, didn't cry- didn't even want to sit on my lap.I guess that's what happens when you have a medical baby. Needles don't scare this girl. Had pizza and presents.with bubby, daddy and aunt mary jane. Cute Christmas card from MJ, will frame this and put with my holiday decorations. Sawyer will need to see that Santa can be black too. The House that James Built. January 4, 2012 at 7:08 PM. An ode ...

liverforlulu.blogspot.com liverforlulu.blogspot.com

Liver for LuLu: Organ Donation Facts and Fiction - Be a Donor............(pretty please)

http://liverforlulu.blogspot.com/2010/01/organ-donation-facts-and-fiction-be.html

Friday, January 22, 2010. Organ Donation Facts and Fiction - Be a Donor.(pretty please). Http:/ organdonor.gov/donor/index.htm. Facts and Fiction, Please read). Http:/ organdonor.gov/donor/index.htm. How to become a donor,. Please do-that's a plead). Lulu Continues to do well, all things considered.we are hoping to take her off the ventilator sometime this afternoon. There is much crying, wincing and pain-arms tied to the bed so she doesn't pull out her tubes. Because of the ventilator. I hope things so ...

liverforlulu.blogspot.com liverforlulu.blogspot.com

Liver for LuLu: August 2012

http://liverforlulu.blogspot.com/2012_08_01_archive.html

Sunday, August 5, 2012. Merry little Christmas 2012. The House that James Built. Links to this post. Subscribe to: Posts (Atom). Love being their MuM.throw-up, poop and all. The day started out ever so lovely. A Badger brunch at my sister-in-law Whitneys house. Love seeing my nieces and nephews who I&#39. Angels here, angels there, angels everywhere. This beautiful, custom piece of art was made by my friend Ally Christensen. It is Miss Lu asleep in her crib (double click to see her big . Lulu's liver BFF...

liverforlulu.blogspot.com liverforlulu.blogspot.com

Liver for LuLu: Merry little Christmas 2012

http://liverforlulu.blogspot.com/2012/08/merry-little-christmas-2010.html

Sunday, August 5, 2012. Merry little Christmas 2012. The House that James Built. Alternative breast cancer treatments. Wow, the way she looked right now makes me so inspired as well. The best alternative cancer treatment. Centers in the US should see that they have helped someone like her. October 22, 2012 at 1:09 AM. Subscribe to: Post Comments (Atom). Love being their MuM.throw-up, poop and all. Angels here, angels there, angels everywhere. An ode to Bob Marley- every little thing- turned out alright!

liverforlulu.blogspot.com liverforlulu.blogspot.com

Liver for LuLu: October 2011

http://liverforlulu.blogspot.com/2011_10_01_archive.html

Thursday, October 13, 2011. I recently came across this blog. It could have been. So lessons relearned, seeing LuLu in the special glory that is hers rather than such a terrible two. I thank God she has such a strong spirit, it served her well through disease and sickness and I know it will continue to be such an asset for wise, beautiful, tough as nails LuLu. Love you girl. The House that James Built. Links to this post. Subscribe to: Posts (Atom). Love being their MuM.throw-up, poop and all. Http:/ org...

liverforlulu.blogspot.com liverforlulu.blogspot.com

Liver for LuLu: September 2011

http://liverforlulu.blogspot.com/2011_09_01_archive.html

Monday, September 5, 2011. Kissing Ashley's name on the Donor Wall. Ashley Lauren Maynard.can you find it? LuLu met her Livers Daddy for the first time this weekend and we loved spending time with him, remembering Ashley and eating good food. London calls him LiverDaddy, so cute. Meeting LuLu. He has known her well through her blog but this was the first time they were able to meet as Will lives back east. We appreciate his love and concern for London and her health. Me and my miracle. Links to this post.

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Patrick Hoopes | Got guts? Life with Short Gut Syndrome & more

Life with Short Gut Syndrome and more. Patrick in the news. Transplant Day 804 and Look Ma. No lines! Composed yesterday in the surgery waiting room*. This is a good news post. But I’m finding myself so very out of practice at writing updates in the surgery waiting room that I am having a little bit of a hard time getting started. But also at Patrick’s follow-up in October, the doctors decided to stop Patrick’s prednisolone, which was a major part of his immune suppression. Within two weeks, he start...

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