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paulsedmansca7.com

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Paul’s Story | Paul Sedmans SCA7 Pages

http://paulsedmansca7.com/pauls-story

Paul Sedmans SCA7 Pages. My life with SCA7. I was born on the 30th of March 1956. To all extents a healthy baby boy. For the first 45 years that proved to be so. I was born to a pair of loving parents, George and Miriam. They had waited six years before having me and so were ready to have a child when I came along. My two siblings, Jill and David followed in quick succession. We were just a normal working class family living a normal life in North West Lancashire. Leave a Reply Cancel reply.

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Vanessa’s Story | Paul Sedmans SCA7 Pages

http://paulsedmansca7.com/vanessas-story

Paul Sedmans SCA7 Pages. My life with SCA7. Vanessa was born on 31st of March 1984. She was a perfectly normal child growing up. When we moved to the States she did all of the normal things that our friends did. She wake boarded, snowboarded and was constantly being offered modelling jobs. When she was 16 here sight started to deteriorate. She was diagnosed with Foveal Dystrophy at U.C.L.A. We all thought that she had Stargardts Disease. So did U.C.L.A. Leave a Reply Cancel reply.

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