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PCD Support

Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with an abnormality of cilia, which may affect the lungs, sinuses and ears. This web site offers information about P.C.D., information about current research into the condition and links to other pages of interest across the Internet.

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Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with an abnormality of cilia, which may affect the lungs, sinuses and ears. This web site offers information about P.C.D., information about current research into the condition and links to other pages of interest across the Internet.
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PCD Support | pcdsupport.org.uk Reviews

https://pcdsupport.org.uk

Primary Ciliary Dyskinesia (PCD) is an inherited, relatively rare condition associated with an abnormality of cilia, which may affect the lungs, sinuses and ears. This web site offers information about P.C.D., information about current research into the condition and links to other pages of interest across the Internet.

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1

PCD Family Support Group : News and Events

http://pcdsupport.org.uk/index.php/news_detail/fundraising_2015

PCD Day Video 2016. Thursday, July 28, 2016. Lastest research news from the Royal Brompton. Thursday, July 21, 2016. PCD Day at Woburn Safari Park. Thursday, June 23, 2016. Adult Care Service Consultation. Tuesday, April 05, 2016. PCD Awareness Event at Royal Brompton Hospital- 22nd April 2016. Tuesday, April 05, 2016. PCD Medical Board Meeting 2016, 15th March 2016. Wednesday, March 30, 2016. Tweets by @PCD UK. Monday, April 20, 2015.

2

PCD Family Support Group : News and Events

http://pcdsupport.org.uk/index.php/news_detail/pcd_day_2015

PCD Day Video 2016. Thursday, July 28, 2016. Lastest research news from the Royal Brompton. Thursday, July 21, 2016. PCD Day at Woburn Safari Park. Thursday, June 23, 2016. Adult Care Service Consultation. Tuesday, April 05, 2016. PCD Awareness Event at Royal Brompton Hospital- 22nd April 2016. Tuesday, April 05, 2016. PCD Medical Board Meeting 2016, 15th March 2016. Wednesday, March 30, 2016. Tweets by @PCD UK. Wednesday, March 11, 2015.

3

PCD Family Support Group : News and Events

http://pcdsupport.org.uk/index.php/news_detail/pcd_day_20151

PCD Day Video 2016. Thursday, July 28, 2016. Lastest research news from the Royal Brompton. Thursday, July 21, 2016. PCD Day at Woburn Safari Park. Thursday, June 23, 2016. Adult Care Service Consultation. Tuesday, April 05, 2016. PCD Awareness Event at Royal Brompton Hospital- 22nd April 2016. Tuesday, April 05, 2016. PCD Medical Board Meeting 2016, 15th March 2016. Wednesday, March 30, 2016. Tweets by @PCD UK. Thursday, June 25, 2015. PCD Day June 2015.

4

PCD Family Support Group : Cookies

http://pcdsupport.org.uk/index.php/cookies

Cookies are small text files stored by your browser on your computer or phone and they are used to make websites easier for visitors to use. They allow sites to store things like user preferences and gather anonymous data about how the site is used to help improve a visitor’s experience. Please note that no advertising cookies are used on this site and no cookie data is used for marketing purposes. The cookies used by this site. When you visit this site, the following type of cookies can be created:.

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PCD Family Support Group : How to Help

http://pcdsupport.org.uk/index.php/how_to_help/how_you_can_help

How you can Help. How You Can Help. The PCD Family Support Group relies entirely on voluntary donations, we do not receive any public money to support our work. We would really be grateful if you could consider having a fundraising event for us or could volunteer some time to help us run the charity. Please Contact Us. If you need any further information. There are a number of ways to make a donation. You can either send a cheque or postal order to:-. PCD Family Support Group. C/o 19 Barrowby Avenue,.

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Maya's March - PCD

http://www.mayasmarch.com/PCD.html

June 5, 2016. Raising funds for PCD research at SickKids Hospital. Maya's March is named after ten year old Maya Murphy who was born with a rare genetic disorder called Primary Ciliary Dyskinesia. Primary Ciliary Dyskinesia is a rare genetic disorder affecting the structure or function of cilia. Cilia are microscopic hair-like formations that sweep mucous toward the nose and throat where it can be coughed out. Find out how you can get involved! Primary Ciliary Dyskinesia (PCD). Maya's family feels blesse...

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La DCP dans le monde | Dyskinesia

http://www.dyskinesia.be/la-dcp-dans-le-monde

Aller au contenu principal. Mise à disposition de matériel. La DCP dans le monde. La DCP dans le monde. Laisser un commentaire Annuler la réponse. Votre adresse de messagerie ne sera pas publiée. Les champs obligatoires sont indiqués avec *. Adresse de contact *. Le portail de la dyskinésie ciliaire primitive. Encore un grand merci! Marché de printemps 2016. Dans La dyskinésie ciliaire primitive. Dans La dyskinésie ciliaire primitive. Dans La dyskinésie ciliaire primitive. Dans Marché de printemps 2016.

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Stonac Ltd – Milton Keynes | Process Improvement, Project Management, Mentoring & Leadership Coaching. | About

http://www.stuartcopeland.co.uk/stonac-ltd-process-improvement-project-management-leadership-coaching/about-us-2

Find Stonac on Facebook. COACHING & MENTORING. Want to be updated with our latest news? Stonac Limited was formed in July 2000 by the husband and wife team of Stuart and Fiona Copeland. Feedback from our customers typically includes words like focused, tenacious, rigorous and organised. We’d also like to think we inject some energy and fun to the subject. We are passionate about business improvement and that includes our own, so we keep up to date with techniques and developments relevant to our work.

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WHO IS?

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PCD Australia

http://www.pcdaustralia.org.au/stories.php

The Faces of PCD. I was born a month earlier than expected due to my mother having toxaemia. I was taken to intensive care where an incubator was my home for a number of weeks. I was born with a rare genetic lung disorder. It was tough on my parents, as the for the first five years of my life, they and the doctors had no idea what was wrong with me. Website Design, hosting and ongoing support proudly donated by:. Arpastart Web Design and Development.

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PCD Australia

http://www.pcdaustralia.org.au/faces.php

The Faces of PCD. The Faces of PCD. Website Design, hosting and ongoing support proudly donated by:. Arpastart Web Design and Development.

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PCD Australia

http://www.pcdaustralia.org.au/fiona-mcbeath.php

The Faces of PCD. In 1990 after frequent hospital visits for ear and chest infections we were referred to Dr A James Martin at the Women’s and Children’s Hospital WCH. Then the testing began! The best advice I can give to parents is the advice Dr A James Martin gave me very early on. This was to live my life and not let my children’s condition consume me and once diagnosed not let the condition define them. They are and always will be more than PCD! Back to Our Stories.

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PCD Australia

http://www.pcdaustralia.org.au/bridget-bourke.php

The Faces of PCD. Hi I am Bridget. I am 19 years old and I have PCD. Yet, having numerous, and pretty much constant infections, throughout my teen years has meant I have missed quite a bit of schooling. This has affected both my learning and social opportunities. I learnt earlier on in high school to ALWAYS EMAIL teachers! Doesn’t matter if you emailed them yesterday, email again! If you give them as much information on the workload you can complete, as soon as possible, schools can be very accommodating.

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PCD Support

Welcome to our website which provides an up to date information service about the condition, how it is diagnosed and how to live with it on a daily basis. Please look at the video case studies with real life people affected by PCD telling their stories. The condition involves current infections in the nose, ears, sinuses and lungs. If left untreated can lead to a form of lung damage known as a “bronchiectasis”. European Lung Foundation Pregnancy Survey 2018. Please help the European Lung Foundation learn...

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