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Peter's Progess

TPN cholestasis, liver AVM, portal hypertension, portal vein clot, Omegaven, multivisceral transplant, liver transplant, intestinal transplant, Dr. Puder, Dr. Kim, Dr. Kamin, Dr. Jennings, Children's Hospital Boston

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Peter's Progess | peter-joseph.blogspot.com Reviews
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TPN cholestasis, liver AVM, portal hypertension, portal vein clot, Omegaven, multivisceral transplant, liver transplant, intestinal transplant, Dr. Puder, Dr. Kim, Dr. Kamin, Dr. Jennings, Children&#39;s Hospital Boston
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Peter's Progess | peter-joseph.blogspot.com Reviews

https://peter-joseph.blogspot.com

TPN cholestasis, liver AVM, portal hypertension, portal vein clot, Omegaven, multivisceral transplant, liver transplant, intestinal transplant, Dr. Puder, Dr. Kim, Dr. Kamin, Dr. Jennings, Children&#39;s Hospital Boston

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1

Peter's Progess: Teeth updates, fat-soluble vitamin deficiencies, and eating

http://peter-joseph.blogspot.com/2015/04/teeth-updates-fat-soluble-vitamin.html

Thursday, April 23, 2015. Teeth updates, fat-soluble vitamin deficiencies, and eating. We got the approval from the CAIR team that Peter can wait another 6 months before going to Boston again. Twice a year visits seem like a luxury compared to 6 to 12 visits a year! Subscribe to: Post Comments (Atom). Thank you for visiting my blog on Peter. Comments are welcome, as are links to others who are posting the progress of their children's illness/recovery. How your doctor can obtain Omegaven. Info about the f...

2

Peter's Progess: July 2013

http://peter-joseph.blogspot.com/2013_07_01_archive.html

Wednesday, July 31, 2013. Updates on health and enoying summer. Peter is still into landmarks and geography, and on this trip, Peter got to see the CT State House building up close, instead of our usual whizzing by at 65 MPH on the highway. He was so pleased to get a chance to see it up close! The doctors and nurses all get a kick out of quizzing him to see if they can stump him. Now we need to find a friend for him who likes geography and wants to share this interest with him! Subscribe to: Posts (Atom).

3

Peter's Progess: May 2013

http://peter-joseph.blogspot.com/2013_05_01_archive.html

Thursday, May 2, 2013. Still off TPN and making many enteral changes. Other news is that Peter's zinc and vitamin D stores are low. We are going to begin supplementing with extra zinc, beyond what is in his multivitamin. The vitamin D stores have been an ongoing issue for a good while, with supplementing going as high as 8000 IU to as low as 2000 IU. We are going to try 4000 IU this month and see how he does on that. Subscribe to: Posts (Atom). How your doctor can obtain Omegaven. Http:/ www.children...

4

Peter's Progess: February 2015

http://peter-joseph.blogspot.com/2015_02_01_archive.html

Sunday, February 1, 2015. Help save The Prouty Garden at Boston Children's Hospital. This is an email sent out earlier today. I am posting it in hopes that others will read it and want to sign the petition as well. Hello to all of you. Would you also consider asking others you know to sign? Boston Children's Hospital: Preserve Prouty Garden. View on www.change.org. Subscribe to: Posts (Atom). Omegaven is the lipid that saved my son from TPN-induced liver failure. I am posting links for anyone trying ...

5

Peter's Progess: Happy Anniversary!

http://peter-joseph.blogspot.com/2014/04/happy-anniversary.html

Wednesday, April 23, 2014. Peter’s one year anniversary off TPN was March 21st! Though I never updated on this blog, we did celebrate this great achievement with him. It such a blessing that he was able to get off TPN and has been able to stay off it. Subscribe to: Post Comments (Atom). Thank you for visiting my blog on Peter. Comments are welcome, as are links to others who are posting the progress of their children's illness/recovery. Omegaven is the lipid that saved my son from TPN-induced liver failu...

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Faith's Place: Late night party :)

http://faiths-place-08.blogspot.com/2013/06/late-night-party.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Sunday, June 9, 2013. Late night party :). The anesthesiologist called me earlier tonight to see if I had any questions, and told me that because of some new HIPAA thing, they don't release the medical charts to him until the day of! Subscribe to: Post Comments (Atom).

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Faith's Place: And away we go!

http://faiths-place-08.blogspot.com/2013/06/and-away-we-go.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Tuesday, June 11, 2013. And away we go! Her guts are working. And I am signing discharge papers! Happy Birthday to me! Subscribe to: Post Comments (Atom). Welcome to Faith's Place! She learned to eat and drink by mouth, and by 18 months old, she was 100% orally fed!

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Faith's Place: No place like HOME

http://faiths-place-08.blogspot.com/2013/06/no-place-like-home.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Wednesday, June 12, 2013. No place like HOME. Today started out awesome for Faith, she got up this morning and was acting almost normal! I am really impressed with how well the meds are working, especially now that I've seen how uncomfortable she is when they wear off!

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Faith's Place: Seriously?!

http://faiths-place-08.blogspot.com/2013/06/seriously.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Friday, June 14, 2013. I called the urologist's office and the GI doctor's office this morning. The urologist's office ordered Zofran and wanted us to push her to drink lots of fluids at home; the GI's office said with her history we should go to the ER. Since ...Pain ...

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Faith's Place: Last update for tonight

http://faiths-place-08.blogspot.com/2013/06/last-update-for-tonight.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Monday, June 10, 2013. Last update for tonight. We are in Faith's room, and she is eating. She did need some Zofran; she started out with a couple of Popsicles but they didn't stay down very long. Please pray for Faith's pain to be minimal. Welcome to Faith's Place!

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Faith's Place: 5 years later...

http://faiths-place-08.blogspot.com/2013/11/5-years-later.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Wednesday, November 13, 2013. Six days after she was born, she went to the operating room again, and they were able to close up her belly. She did well after surgery, and we were able to hold her for the first time when she was 8 days old. Somehow, God led me to Google...

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Faith's Place: Pre-op

http://faiths-place-08.blogspot.com/2013/06/pre-op.html

God is our merciful Father and the source of all comfort. He comforts us in all our troubles so that we can comfort others. When they are troubled, we will be able to give them the same comfort God has given us. 2 Corinthians 1:3b-4, NLT). Monday, June 10, 2013. Hanging out watching Scooby Doo in pre-op. So far she's only complained about being hungry once! Haven't seen any docs yet. Subscribe to: Post Comments (Atom). Welcome to Faith's Place! If you are new to Faith's blog, click on "2008" in the archi...

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Carter Cates: Plano Balloon Festival...

http://cartermcates.blogspot.com/2011/09/plano-balloon-festival.html

Friday, September 23, 2011. Last weekend we took Carter to his first balloon festival in Plano. We got rained out Friday night, but I think he thought the bus ride over was best part anyway. But Saturday we were on,. With a beautiful Texas sky and great weather. Look ma, no hands. Didn't take long to find some good music. Which of course meant dancing. in the streets! Next time I'm gonna take one of those hats you get tips in! People were all over him! He got to ride his first ever inflatable! Wow, where...

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Carter Cates: talk about a perfect day...

http://cartermcates.blogspot.com/2011/09/talk-about-perfect-day.html

Monday, September 5, 2011. Talk about a perfect day. I never really got labor day. I knew we didn't go to school, didn't go to work, but what is Labor Day really all about? My interpretation goes something like this. started school 2 weeks ago, completely exhausted from all the schedule changes and trying to be everything to everyone, praying for a day to rest, need to catch-up on a long list of things. hello Labor day! Our ground has cracks in it the size of. well, Texas! Which brings me to Carter.

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Peter's Progess

Friday, February 9, 2018. Back on TPN. as of last April! I'm glad that these blog accounts don't just disappear after long silences. Maybe it is best to just update in summary form from time to time, versus delivering updates blow by blow. It does make for some very long pauses, but it also means less time on the computer, too. Here is the latest in summary fashion. On a less medical note, Peter is 12 years old now! Saturday, September 17, 2016. Physicians as part of the cure. On the question of illness ...

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